Educating health care professionals on effective communication in rare disease diagnoses is crucial to improving the rare disease patient narrative
For over 14 years, the last day of February, a month known for its rare number of days, has been recognized by organizations across the globe as Rare Disease Day. With over 300 million patients worldwide impacted by 7,000+ rare diseases, the day serves as an international campaign to raise awareness around rare diseases and advocate for improved care for rare disease patients.
An often overlooked aspect of the rare …