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Stephanie Ernst

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Stephanie Ernst is a patient advocate.

Patients are not waiting: What MCDA twin parents teach us about shared decision-making

Stephanie Ernst
Conditions
May 10, 2025

Monochorionic diamniotic (MCDA) twin pregnancies come with more scans, more risk, and more decisions to make in very little time. Parents are expected to absorb complex medical information, navigate unfamiliar terminology, and act quickly, often under pressure. When care teams do not meet that need for clarity and support, parents do what any reasonable person would do.

They go looking for answers.

In 2024, we published a study in Midwifery that explored …

Read more…

Patients are not waiting: What MCDA twin parents teach us about shared decision-making

Clinical research is evolving. Patient involvement is no longer optional.

Stephanie Ernst
Conditions
April 30, 2025

In January 2025, the International Council for Harmonisation (ICH) formally adopted the updated E6(R3) Good Clinical Practice (GCP) guidelines. Annex 1 and the revised 12 principles are already in effect. Annex 2 arrives in July. This is not just regulatory housekeeping. It is a clear message to the research world: Meaningful patient involvement is no longer aspirational. It is expected.

For decades, clinical research positioned patients as participants, …

Read more…

Clinical research is evolving. Patient involvement is no longer optional.

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  • Most Popular

  • Past Week

    • How to improve protein absorption after gastric bypass

      Kevin Huffman, DO | Conditions
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  • Past 6 Months

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      Justin Oldfield, MD | Physician
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      Edmond Cabbabe, MD | Physician
    • Why nature-based medicine is the future of health care

      John La Puma, MD | Education
    • The cost of chaos in medical malpractice litigation

      Howard Smith, MD | Physician
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      Beata Pasek, EdD | Conditions
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      Santoshi Billakota, MD | Physician
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      Alan P. Feren, MD | Physician
    • How lifestyle interventions reverse type 2 diabetes

      Mahima Gulati, MD | Conditions
    • Why thymic involution is the aging organ doctors miss

      Francisco M. Torres, MD | Conditions

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