Skip to content
  • About
  • Contact
  • Contribute
  • Book
  • Careers
  • Podcast
  • Recommended
  • Speaking
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking

Making life meaningful despite a debilitating disease

Bobbi Emel
Patient
August 26, 2011
Share
Tweet
Share

I worked with Joe over a year ago and now he returned to see me with a new problem. He had just been diagnosed with a rare degenerative disorder that would eventually rob him of the use of his limbs as his muscles weakened over time. Joe wanted to talk about how he could prepare himself for this decline.

Joe is in his sixties and has worked in high tech for a long time. He loves it. A bit of an extrovert, he loves going to work every day with younger people who are smart, capable, and fun. He has a mentorship role with several of these co-workers that he really enjoys. And he loves to sit at his computer and solve difficult software problems as his fingers fly over the keyboard.

“What am I going to do in a few years when I can’t use my hands anymore?” Joe asked me. “And I won’t be able to drive to work. I’ll most likely be in a wheelchair . . . what then?”

 Does resiliency fit with chronic illness?

I had pondered these very questions after Joe emailed me to ask for an appointment, explaining about the newly-diagnosed degenerative disorder in his message. I thought about my tenets of developing resiliency: acceptance, build a support system, gain perspective, see what is to be learned, and find the gifts in the moment. These fit well for someone who is overcoming temporary adversity, I thought, but what about someone with a chronic condition? And now, with Joe in my office, what about someone who just became aware that he has a chronic condition?

And then, as I’ve experienced so often in the therapy setting, Joe answered his own question and some of my own as well.

 A new mission, a new meaning

“I can imagine,” he began, “that someday I’ll be sitting in a wheelchair in an assisted living facility. I won’t be able to move very much but my mind will still be active.” He looked up at the ceiling as he leaned back in his chair. “I think I’ll just have to develop a new mission statement for myself, a new way to make life meaningful for me.”

I was beyond moved by Joe’s response. I was really expecting him to bemoan his fate and anticipate a difficult life with disability. That’s what most of us would do. Instead, Joe combined his inner scientist’s discipline with his own optimistic personality and immediately moved into acceptance and perspective mode. He accepted what this disorder would eventually do to him and sought a new way to look at what his life would be about. And, in so doing, Joe found hope.

Will Joe always be upbeat and optimistic about his physical condition? My guess is he’ll have some pretty rough struggles along the way. But we’re already talking about his new mission statement. The disorder isn’t going to affect his ability to talk, so we’ve been discussing ways he can still mentor others and be involved in the career he loves.

Making life meaningful. Isn’t this what resiliency is all about?

Bobbi Emel is a psychotherapist who blogs at Bounce Blog.

Submit a guest post and be heard on social media’s leading physician voice.

ADVERTISEMENT

Prev

Hurricane tips that patients and health professionals should know

August 26, 2011 Kevin 1
…
Next

Does acupuncture work for headaches?

August 26, 2011 Kevin 3
…

Tagged as: Patients

Post navigation

< Previous Post
Hurricane tips that patients and health professionals should know
Next Post >
Does acupuncture work for headaches?

ADVERTISEMENT

More by Bobbi Emel

  • a desk with keyboard and ipad with the kevinmd logo

    How do the elderly become more resilient?

    Bobbi Emel
  • a desk with keyboard and ipad with the kevinmd logo

    Do positive emotions increase life satisfaction?

    Bobbi Emel
  • a desk with keyboard and ipad with the kevinmd logo

    Your worst days can bring out your best resiliency skills

    Bobbi Emel

More in Patient

  • AI’s role in streamlining colorectal cancer screening [PODCAST]

    The Podcast by KevinMD
  • There’s no one to drive your patient home

    Denise Reich
  • Dying is a selfish business

    Nancie Wiseman Attwater
  • A story of a good death

    Carol Ewig
  • We are warriors: doctors and patients

    Michele Luckenbaugh
  • Patient care is not a spectator sport

    Jim Sholler
  • Most Popular

  • Past Week

    • The decline of the doctor-patient relationship

      William Lynes, MD | Physician
    • Rethinking cholesterol and atherosclerosis

      Larry Kaskel, MD | Conditions
    • The difference between a doctor and a physician

      Mick Connors, MD | Physician
    • Physician burnout as a relationship crisis

      Tomi Mitchell, MD | Physician
    • A pediatrician on the lead contamination crisis

      Eric Fethke, MD | Physician
    • The infectious hypothesis of Alzheimer’s disease

      Larry Kaskel, MD | Conditions
  • Past 6 Months

    • Rethinking the JUPITER trial and statin safety

      Larry Kaskel, MD | Conditions
    • The dangerous racial bias in dermatology AI

      Alex Siauw | Tech
    • When language barriers become a medical emergency

      Monzur Morshed, MD and Kaysan Morshed | Physician
    • The mental health workforce is collapsing

      Ronke Lawal | Conditions
    • A doctor’s struggle with burnout and boundaries

      Humeira Badsha, MD | Physician
    • The hypocrisy of insurance referral mandates

      Ryan Nadelson, MD | Physician
  • Recent Posts

    • How to prepare for your death [PODCAST]

      The Podcast by KevinMD | Podcast
    • The dismantling of public health infrastructure

      Ronald L. Lindsay, MD | Physician
    • The case for therapeutic nicotine use

      Larry Kaskel, MD | Conditions
    • What is your physician well-being strategy?

      Jennifer Shaer, MD | Physician
    • Why are we devaluing primary care?

      Ryan Nadelson, MD | Physician
    • A nurse’s view on the broken health care system

      Amanda Dean, RN | Conditions

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

View 2 Comments >

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

ADVERTISEMENT

  • Most Popular

  • Past Week

    • The decline of the doctor-patient relationship

      William Lynes, MD | Physician
    • Rethinking cholesterol and atherosclerosis

      Larry Kaskel, MD | Conditions
    • The difference between a doctor and a physician

      Mick Connors, MD | Physician
    • Physician burnout as a relationship crisis

      Tomi Mitchell, MD | Physician
    • A pediatrician on the lead contamination crisis

      Eric Fethke, MD | Physician
    • The infectious hypothesis of Alzheimer’s disease

      Larry Kaskel, MD | Conditions
  • Past 6 Months

    • Rethinking the JUPITER trial and statin safety

      Larry Kaskel, MD | Conditions
    • The dangerous racial bias in dermatology AI

      Alex Siauw | Tech
    • When language barriers become a medical emergency

      Monzur Morshed, MD and Kaysan Morshed | Physician
    • The mental health workforce is collapsing

      Ronke Lawal | Conditions
    • A doctor’s struggle with burnout and boundaries

      Humeira Badsha, MD | Physician
    • The hypocrisy of insurance referral mandates

      Ryan Nadelson, MD | Physician
  • Recent Posts

    • How to prepare for your death [PODCAST]

      The Podcast by KevinMD | Podcast
    • The dismantling of public health infrastructure

      Ronald L. Lindsay, MD | Physician
    • The case for therapeutic nicotine use

      Larry Kaskel, MD | Conditions
    • What is your physician well-being strategy?

      Jennifer Shaer, MD | Physician
    • Why are we devaluing primary care?

      Ryan Nadelson, MD | Physician
    • A nurse’s view on the broken health care system

      Amanda Dean, RN | Conditions

MedPage Today Professional

An Everyday Health Property Medpage Today
  • Terms of Use | Disclaimer
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

Making life meaningful despite a debilitating disease
2 comments

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...