Skip to content
  • About
  • Contact
  • Contribute
  • Book
  • Careers
  • Podcast
  • Recommended
  • Speaking
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking

5 ways to help make a cancer diagnosis more manageable

Andrew Griffith
Patient
September 22, 2012
Share
Tweet
Share

Over the past few years, I have had more than my share of navigating my way through the emotional and practical aspects of my treatment for mantle cell lymphoma. While at the back of my mind the broader questions – why me?, how long will I live? – remain, once I got over the initial anger and depression after the initial diagnosis (and after my relapse), I found these practical tips and approaches helped me and my family get through it all:

1. Be thankful for what you have. I am unlucky – I have an aggressive form of lymphoma that can be treated, not cured. However, if I am unlucky with cancer, I am lucky in the strong support of my wife, family and friends on the emotional and practical side. I also have a good benefits plan, along with free healthcare, so I have no financial worries. And whenever I go to the hospital, I am reminded that there are people worse off than me.

2. Take it one step at a time. I could not process all the information and treatment plan at the same time. I could not worry about whether the allo SCT would work and whether I would get GvHD at the same time.  The best advice I got from the medical team was to take it step by step. Worry about the current stage, not the future. By dividing treatment into “chewable chunks,” I could also celebrate each milestone – getting through each round of chemo, getting past the first month post-transplant, making it to the 100 day milestone.

3. Don’t get spooked by the stats. In my case, the stats are awful (overall, 50-60 percent mortality within one year). But these are averages, I am an individual. I took the stats seriously, but also, with my medical team, placed the stats in the context of my age, general health, and previous treatment, all of which improved my odds. Some doctors were better than others in walking me through this.

4. Research but not over research. At the beginning, I spent far too much time trolling the web for medical information and patient experiences. After a while, I found my balance between enough information to be knowledgeable but not so much to become obsessive and worry even more. I also found that a lot of information was dated, and it was better to focus on getting more recent information from my medical team.

5. Own your file. It was my life at stake, and I needed to manage my information and interactions with my medical team. I started a binder, organized by topic, and then switched to an iPad to take notes for my appointments. I always would come prepared with questions for my doctors, and, given previous notes, could challenge them when treatment directions would change.  My medical team knew me as an empowered and prepared patient, and it strengthened our relationship and my understanding of the why. Of course, these practical suggestions need to be complemented by a deeper reflection on what you want your life to be, during and post-treatment.

None of these make the journey easy or diminish what is a hard road. However, together, they all helped make it more manageable for me and my family.

Andrew Griffith is a cancer survivor who blogs at My Lymphoma Journey.  He can be reached on Twitter @lymphomajourney.

Prev

Do your homework when looking for a new doctor

September 21, 2012 Kevin 3
…
Next

Becoming a doctor in a family of physicians

September 22, 2012 Kevin 0
…

Tagged as: Oncology/Hematology

Post navigation

< Previous Post
Do your homework when looking for a new doctor
Next Post >
Becoming a doctor in a family of physicians

ADVERTISEMENT

More by Andrew Griffith

  • a desk with keyboard and ipad with the kevinmd logo

    The evolution of writing during a cancer journey

    Andrew Griffith
  • The duality that cancer patients face

    Andrew Griffith
  • a desk with keyboard and ipad with the kevinmd logo

    How to strengthen the partnership with your medical team

    Andrew Griffith

More in Patient

  • AI’s role in streamlining colorectal cancer screening [PODCAST]

    The Podcast by KevinMD
  • There’s no one to drive your patient home

    Denise Reich
  • Dying is a selfish business

    Nancie Wiseman Attwater
  • A story of a good death

    Carol Ewig
  • We are warriors: doctors and patients

    Michele Luckenbaugh
  • Patient care is not a spectator sport

    Jim Sholler
  • Most Popular

  • Past Week

    • The human case for preserving the nipple after mastectomy

      Thomas Amburn, MD | Conditions
    • Nuclear verdicts and rising costs: How inflation is reshaping medical malpractice claims

      Robert E. White, Jr. & The Doctors Company | Policy
    • IMGs are the future of U.S. primary care

      Adam Brandon Bondoc, MD | Physician
    • Why I left the clinic to lead health care from the inside

      Vandana Maurya, MHA | Conditions
    • How doctors can think like CEOs [PODCAST]

      The Podcast by KevinMD | Podcast
    • A surgeon’s testimony, probation, and resignation from a professional society

      Stephen M. Cohen, MD, MBA | Physician
  • Past 6 Months

    • Health equity in Inland Southern California requires urgent action

      Vishruth Nagam | Policy
    • How restrictive opioid policies worsen the crisis

      Kayvan Haddadan, MD | Physician
    • Why primary care needs better dermatology training

      Alex Siauw | Conditions
    • Why pain doctors face unfair scrutiny and harsh penalties in California

      Kayvan Haddadan, MD | Physician
    • How a doctor defied a hurricane to save a life

      Dharam Persaud-Sharma, MD, PhD | Physician
    • What street medicine taught me about healing

      Alina Kang | Education
  • Recent Posts

    • Affordable postpartum hemorrhage solutions every OB/GYN can use worldwide [PODCAST]

      The Podcast by KevinMD | Podcast
    • When cancer costs too much: Why financial toxicity deserves a place in clinical conversations

      Yousuf Zafar, MD | Physician
    • Psychiatrist tests ketogenic diet for mental health benefits

      Zane Kaleem, MD | Conditions
    • The hidden rewards of a primary care career

      Jerina Gani, MD, MPH | Physician
    • Why physicians should not be their own financial planner

      Michelle Neiswender, CFP | Finance
    • Why doctors regret specialty choices in their 30s

      Jeremiah J. Whittington, MD | Physician

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

View 3 Comments >

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

ADVERTISEMENT

  • Most Popular

  • Past Week

    • The human case for preserving the nipple after mastectomy

      Thomas Amburn, MD | Conditions
    • Nuclear verdicts and rising costs: How inflation is reshaping medical malpractice claims

      Robert E. White, Jr. & The Doctors Company | Policy
    • IMGs are the future of U.S. primary care

      Adam Brandon Bondoc, MD | Physician
    • Why I left the clinic to lead health care from the inside

      Vandana Maurya, MHA | Conditions
    • How doctors can think like CEOs [PODCAST]

      The Podcast by KevinMD | Podcast
    • A surgeon’s testimony, probation, and resignation from a professional society

      Stephen M. Cohen, MD, MBA | Physician
  • Past 6 Months

    • Health equity in Inland Southern California requires urgent action

      Vishruth Nagam | Policy
    • How restrictive opioid policies worsen the crisis

      Kayvan Haddadan, MD | Physician
    • Why primary care needs better dermatology training

      Alex Siauw | Conditions
    • Why pain doctors face unfair scrutiny and harsh penalties in California

      Kayvan Haddadan, MD | Physician
    • How a doctor defied a hurricane to save a life

      Dharam Persaud-Sharma, MD, PhD | Physician
    • What street medicine taught me about healing

      Alina Kang | Education
  • Recent Posts

    • Affordable postpartum hemorrhage solutions every OB/GYN can use worldwide [PODCAST]

      The Podcast by KevinMD | Podcast
    • When cancer costs too much: Why financial toxicity deserves a place in clinical conversations

      Yousuf Zafar, MD | Physician
    • Psychiatrist tests ketogenic diet for mental health benefits

      Zane Kaleem, MD | Conditions
    • The hidden rewards of a primary care career

      Jerina Gani, MD, MPH | Physician
    • Why physicians should not be their own financial planner

      Michelle Neiswender, CFP | Finance
    • Why doctors regret specialty choices in their 30s

      Jeremiah J. Whittington, MD | Physician

MedPage Today Professional

An Everyday Health Property Medpage Today
  • Terms of Use | Disclaimer
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

5 ways to help make a cancer diagnosis more manageable
3 comments

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...