Skip to content
  • About
  • Contact
  • Contribute
  • Book
  • Careers
  • Podcast
  • Recommended
  • Speaking
KevinMD
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking
KevinMD
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking
  • About KevinMD | Kevin Pho, MD
  • Be heard on social media’s leading physician voice
  • Contact Kevin
  • Discounted enhanced author page
  • DMCA Policy
  • Establishing, Managing, and Protecting Your Online Reputation: A Social Media Guide for Physicians and Medical Practices
  • Group vs. individual disability insurance for doctors: pros and cons
  • KevinMD influencer opportunities
  • Opinion and commentary by KevinMD
  • Physician burnout speakers to keynote your conference
  • Physician Coaching by KevinMD
  • Physician keynote speaker: Kevin Pho, MD
  • Physician Speaking by KevinMD: a boutique speakers bureau
  • Primary care physician in Nashua, NH | Kevin Pho, MD
  • Privacy Policy
  • Recommended services by KevinMD
  • Terms of Use Agreement
  • Thank you for subscribing to KevinMD
  • Thank you for upgrading to the KevinMD enhanced author page
  • The biggest mistake doctors make when purchasing disability insurance
  • The doctor’s guide to disability insurance: short-term vs. long-term
  • The KevinMD ToolKit
  • Upgrade to the KevinMD enhanced author page
  • Why own-occupation disability insurance is a must for doctors

From a mother: What my child’s oncologist should know

Suzanne Leigh
Patient
February 28, 2014
Share
Tweet
Share

unnamed

Please let us know that we’re not alone. We realize that our doctors are not our friends, but telling us that the medical team will be sticking with us during this journey that we were never on board with, is an empowering message when we are at our most powerless.

Show us that you care about our child, too. We know that you identify our child by her diagnosis, but we identify her as our daughter. Let us know that you understand our child and tell us something about her personality that will resonate with us. Talk to our child, rather than just to us, as much as feasible.

Hold off on the scan “show and tell.” Some parents want to see the imaging of their child’s tumor. I know I did — initially. But with recurrences, seeing evidence of the tumor that I was told would ultimately take my daughter’s life was horrifying. Some doctors seemed eager to share the scans — perhaps because it gave them a reprieve from my crumpled, tear-stained face? Ask us first, rather than assume that we would want to see it.

Ban junior doctors from sitting in on an emotional conversation. If you have devastating news to break, ask residents and fellows to exit the room while we come to grips with the ramifications of what you have to say. When emotions are high and we are at our most vulnerable, we don’t want to be politely scrutinized as if we were lab rats — even if it means that those in training might lose out on a one-of-a-kind lesson in patient-doctor communications.

Be accessible by email if you can’t make the phone. We won’t try to “friend” you on Facebook or e-mail you pictures of our cute dog, but some of our questions are best answered by you alone. If our e-mails are short, clear and seemingly important, please respond, however briefly, even if it’s just to acknowledge that we’ve been heard.  When our messages are relayed verbally from nurse to nurse, we worry that by the time they reach you, the crux of our concern has been lost in translation.

Remember our child. If our child is cured, we are bonded to you forever, because you were the one that treated her. If our child dies, we are bonded to you forever, because you were the one that tried to save her. Our relationship with you is paradoxically as intimate as it is distant; you are part of our family and you are the stranger beside us. We know little about you — we don’t know the names of your children, what you like to do outside of the hospital, where you live — but you’ve been there in those fist-pumping moments of glory when a scan has been clear, a tumor has been successfully resected or a drug has beaten a stubborn headache. And you’ve been there when a new symptom has revealed that the prognosis is grim. You’ve witnessed us laugh and cheer and you’ve witnessed us sob.

Remember our child; we will always remember you, probably with fondness and almost certainly with gratitude. If our child has died, we recognize that while the disease ultimately triumphed and the treatment failed, you did not fail our child.

Remember her, please.

Suzanne Leigh blogs at The Mourning After Natasha.

Prev

Can decision support tools actually harm patients?

February 28, 2014 Kevin 21
…
Next

The myth of the entitled single mother remains as relevant as ever

February 28, 2014 Kevin 54
…

Tagged as: Oncology/Hematology

< Previous Post
Can decision support tools actually harm patients?
Next Post >
The myth of the entitled single mother remains as relevant as ever

ADVERTISEMENT

More by Suzanne Leigh

  • Criticizing The Fault in Our Stars does childhood cancer a disservice

    Suzanne Leigh
  • a desk with keyboard and ipad with the kevinmd logo

    Should doctors tell parents of terminal children to quit pursuing quackery?

    Suzanne Leigh

More in Patient

  • AI’s role in streamlining colorectal cancer screening [PODCAST]

    The Podcast by KevinMD
  • There’s no one to drive your patient home

    Denise Reich
  • Dying is a selfish business

    Nancie Wiseman Attwater
  • A story of a good death

    Carol Ewig
  • We are warriors: doctors and patients

    Michele Luckenbaugh
  • Patient care is not a spectator sport

    Jim Sholler
  • Most Popular

  • Past Week

    • Medicare practice expense cuts will hurt patients

      John Birkmeyer, MD | Policy
    • When shared decision making gives way to medical paternalism

      DeAnna Pollock, MD | Physician
    • How xenotransplantation could finally solve organ shortages

      Rafael S. Garcia-Cortes, MD | Conditions
    • 25 of 32 years of life expectancy came from this

      Richard A. Lawhern, PhD | Education
    • The family caregiving truth nobody wants to admit

      Barbara Sparacino, MD | Conditions
    • A physician’s journey with a hidden CSF leak and delayed diagnosis

      Anonymous | Conditions
  • Past 6 Months

    • Why clinicians fail at writing expert reports

      Tracy Liberatore, Esq, PA | Conditions
    • Rethinking the role of family physicians vs. specialists

      Ronald L. Lindsay, MD | Physician
    • Clinicians are failing at value-based care because no one taught them the system [PODCAST]

      The Podcast by KevinMD | Podcast
    • Why clinical listening skills outpace artificial intelligence

      Ryan Egeland, MD, PhD | Tech
    • Why Florida physician background checks are driving doctors away

      Tamzin A. Rosenwasser, MD | Physician
    • The hidden clinical cost of HCC coding in primary care

      Jeffrey H. Millstein, MD | Physician
  • Recent Posts

    • A physician’s journey with a hidden CSF leak and delayed diagnosis

      Anonymous | Conditions
    • Bariatric surgery vs. semaglutides vs. endoscopic visceral lipectomy

      Robert Cucin, MD, JD | Conditions
    • Failing the residency match: What I learned from not matching

      Camellia Russell | Education
    • Why the U.S. needs more preventive medicine and public health doctors

      Jacob Player, MD, MPH | Policy
    • The hidden costs of delayed diagnosis and diagnostic ambiguity

      Bita Ghatan | Conditions
    • The true crime community is radicalizing kids online

      Dexter Ingram & Matthew Turner, MD & Stephen Sandelich, MD | Physician

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

View 55 Comments >

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

  • Most Popular

  • Past Week

    • Medicare practice expense cuts will hurt patients

      John Birkmeyer, MD | Policy
    • When shared decision making gives way to medical paternalism

      DeAnna Pollock, MD | Physician
    • How xenotransplantation could finally solve organ shortages

      Rafael S. Garcia-Cortes, MD | Conditions
    • 25 of 32 years of life expectancy came from this

      Richard A. Lawhern, PhD | Education
    • The family caregiving truth nobody wants to admit

      Barbara Sparacino, MD | Conditions
    • A physician’s journey with a hidden CSF leak and delayed diagnosis

      Anonymous | Conditions
  • Past 6 Months

    • Why clinicians fail at writing expert reports

      Tracy Liberatore, Esq, PA | Conditions
    • Rethinking the role of family physicians vs. specialists

      Ronald L. Lindsay, MD | Physician
    • Clinicians are failing at value-based care because no one taught them the system [PODCAST]

      The Podcast by KevinMD | Podcast
    • Why clinical listening skills outpace artificial intelligence

      Ryan Egeland, MD, PhD | Tech
    • Why Florida physician background checks are driving doctors away

      Tamzin A. Rosenwasser, MD | Physician
    • The hidden clinical cost of HCC coding in primary care

      Jeffrey H. Millstein, MD | Physician
  • Recent Posts

    • A physician’s journey with a hidden CSF leak and delayed diagnosis

      Anonymous | Conditions
    • Bariatric surgery vs. semaglutides vs. endoscopic visceral lipectomy

      Robert Cucin, MD, JD | Conditions
    • Failing the residency match: What I learned from not matching

      Camellia Russell | Education
    • Why the U.S. needs more preventive medicine and public health doctors

      Jacob Player, MD, MPH | Policy
    • The hidden costs of delayed diagnosis and diagnostic ambiguity

      Bita Ghatan | Conditions
    • The true crime community is radicalizing kids online

      Dexter Ingram & Matthew Turner, MD & Stephen Sandelich, MD | Physician

MedPage Today Professional

An Everyday Health Property Medpage Today

Copyright © 2026 KevinMD.com | Powered by Astra WordPress Theme

  • Terms of Use | Disclaimer
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

From a mother: What my child’s oncologist should know
55 comments

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...