Skip to content
  • About
  • Contact
  • Contribute
  • Book
  • Careers
  • Podcast
  • Recommended
  • Speaking
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking

Doctors need to partner with families to save lives

Bonnie Friedman
Patient
June 22, 2016
Share
Tweet
Share

“Hey, doc, you’re killing me.” Or, more specifically, us.

A recent report from researchers at the Johns Hopkins University School of Medicine points to medical errors as the third leading cause of death in this country. Despite the many safeguards put in place by the government, hospitals, and doctors, themselves, more than 250,000 people a year in the U.S. die from hospital-acquired infections, wrong-site surgeries, medication mistakes and a host of other missteps with deadly consequences.

What’s a patient to do? Flat on their backs and often disoriented, they are literally in no position to speak up on their own behalf.  That’s where family or close friends come in. Every hospital patient needs an advocate — someone who knows the patient’s medical history and can interact effectively with doctors and nurses when they observe or suspect a problem.

The need for an advocate is underscored by the fact that most hospital patients are not seen by their primary care physicians. Hospitalists frequently manage care. They may be excellent doctors, but they have no history with their patients.

On top of that, we see a proliferation of specialists and sub-specialists that can lead to an impersonal, fragmented medical system driven by metrics and policies that hardly seem patient friendly.

And while medical care may be more personalized in areas such as cancer treatment, it is more impersonal when it comes to corporate medicine and Medicare or other insurance rules. Technological changes bring remarkable advancement but force medical professionals to spend more time in front of computers and less time with their patients.

The yin and yang will undoubtedly be with us for many years to come. In Chinese philosophy and medicine, these polar opposites are interdependent; they can’t exist without each other. In hospital care, I would argue, the professional medical team, the patient, and the advocate are interdependent, too. To be successful, they must work together towards a common goal.

One thing I learned as my husband’s advocate is that my role is as important as the doctors and the nurses; it’s just different.

I have been advocating for my husband for more than 24 years through 14 separate hospitalizations of varying lengths and severity. Some of have been truly life-and-death situations.

Once I stopped a technician from performing an MRI. My husband has a pacemaker which could have stopped working because of the magnetic resonance. Another time I called in an intensivist to consult when I believed my husband was dying, and everyone else was focused on organs and systems they thought were improving. He made changes that really did save my husband’s life. On several occasions I have inserted myself into medical rounds, providing essential background information missing from the files. At least once I insisted on more tests when I knew something significant was being overlooked.

I don’t have medical training. What I do have is a big-picture understanding of how to work with doctors and nurses within the hospital environment to get the best care for my husband. I also have an appreciation for diplomacy mixed with a healthy dose of chutzpah — that wonderful Yiddish word meaning personal guts and gumption.

All hospital patients need a family member or close friend to speak up and connect the dots when doctors don’t communicate well with one another; to become an integral member of the health care team, participating with doctors and nurses in decision-making; and to trust her instincts when something is wrong. Knowing the patient better than anyone else in the hospital counts for a lot in getting the best care.

On the other side of the equation, medical professionals need to respect and make time for advocates, answering questions, providing jargon-free information and creating space for decision-making and discussion. Families must have education and understanding in order to be truly effective partners in the process. That includes a full grasp of discharge plans and instructions.  Misunderstanding and miscommunication too often lead to readmission—an outcome no one wants to see, least of all the patient.

ADVERTISEMENT

The Agency for Healthcare Research and Quality, part of the U.S. Department of Health and Human Services, developed a guide to promote stronger engagement among medical professionals, patients and families to improve outcomes in hospital safety and quality.

“Working with patients and families as advisors at the organizational level is a critical part of patient and family engagement and patient- and family-centered approaches to improving quality and safety,” the guide counsels. “Patient and family advisors are valuable partners in efforts to reduce medical errors and improve the safety and quality of health care.”

Our health care system may be far from perfect. At times, it seems complex, opaque and frustrating. Collaboration between medical professionals and families can make a qualitative and quantitative difference for patients. They, after all, are the ones with real skin in the game.

Bonnie Friedman is the author of Hospital Warrior: How to Get the Best Care for Your Loved One.

Image credit: Shutterstock.com

Prev

The superhuman efforts of the trauma surgeons at Orlando Health

June 22, 2016 Kevin 3
…
Next

Why MOC is broken and how to fix it

June 22, 2016 Kevin 21
…

Tagged as: Hospital-Based Medicine

Post navigation

< Previous Post
The superhuman efforts of the trauma surgeons at Orlando Health
Next Post >
Why MOC is broken and how to fix it

ADVERTISEMENT

ADVERTISEMENT

ADVERTISEMENT

More by Bonnie Friedman

  • The advocate’s sword stands polished and ready

    Bonnie Friedman
  • Medicare for all: a campaign promise, catchy bumper sticker, or viable program?

    Bonnie Friedman
  • What is one thing that separates good doctors from great ones?

    Bonnie Friedman

Related Posts

  • Doctors, listen up! You’ll be a patient soon.

    Michele Luckenbaugh
  • Can doctors see beyond a patient’s weight?

    Laura Fraser
  • Does an HMO hinder the efforts of concierge doctors to address patient needs?

    Kevin R.R. Williams
  • When doctors are right

    Sophia Zilber
  • Who says doctors don’t care?

    Cindy Thompson
  • Here are some things that patients wish doctors knew

    R. Lynn Barnett

More in Patient

  • AI’s role in streamlining colorectal cancer screening [PODCAST]

    The Podcast by KevinMD
  • There’s no one to drive your patient home

    Denise Reich
  • Dying is a selfish business

    Nancie Wiseman Attwater
  • A story of a good death

    Carol Ewig
  • We are warriors: doctors and patients

    Michele Luckenbaugh
  • Patient care is not a spectator sport

    Jim Sholler
  • Most Popular

  • Past Week

    • What’s driving medical students away from primary care?

      ​​Vineeth Amba, MPH, Archita Goyal, and Wayne Altman, MD | Education
    • Make cognitive testing as routine as a blood pressure check

      Joshua Baker and James Jackson, PsyD | Conditions
    • A faster path to becoming a doctor is possible—here’s how

      Ankit Jain | Education
    • A world without antidepressants: What could possibly go wrong?

      Tomi Mitchell, MD | Meds
    • The hidden cost of delaying back surgery

      Gbolahan Okubadejo, MD | Conditions
    • The dreaded question: Do you have boys or girls?

      Pamela Adelstein, MD | Physician
  • Past 6 Months

    • What’s driving medical students away from primary care?

      ​​Vineeth Amba, MPH, Archita Goyal, and Wayne Altman, MD | Education
    • Internal Medicine 2025: inspiration at the annual meeting

      American College of Physicians | Physician
    • The silent crisis hurting pain patients and their doctors

      Kayvan Haddadan, MD | Physician
    • What happened to real care in health care?

      Christopher H. Foster, PhD, MPA | Policy
    • Are quotas a solution to physician shortages?

      Jacob Murphy | Education
    • The hidden bias in how we treat chronic pain

      Richard A. Lawhern, PhD | Meds
  • Recent Posts

    • Why ADHD in women is finally getting the attention it deserves

      Arti Lal, MD | Conditions
    • How a $75 million jet brought down America’s boldest doctor

      Arthur Lazarus, MD, MBA | Physician
    • Why ruling out sepsis in emergency departments can be lifesaving

      Claude M. D'Antonio, Jr., MD | Conditions
    • The hidden cost of delaying back surgery

      Gbolahan Okubadejo, MD | Conditions
    • Precision and personalization: Charting the future of cancer care [PODCAST]

      The Podcast by KevinMD | Podcast
    • Expert Q&A: Dr. Jared Pelo, ambient clinical pioneer, explains how Dragon Copilot helps clinicians deliver better care

      Jared Pelo, MD & Microsoft & Nuance Communications | Sponsored

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

Leave a Comment

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

ADVERTISEMENT

ADVERTISEMENT

ADVERTISEMENT

  • Most Popular

  • Past Week

    • What’s driving medical students away from primary care?

      ​​Vineeth Amba, MPH, Archita Goyal, and Wayne Altman, MD | Education
    • Make cognitive testing as routine as a blood pressure check

      Joshua Baker and James Jackson, PsyD | Conditions
    • A faster path to becoming a doctor is possible—here’s how

      Ankit Jain | Education
    • A world without antidepressants: What could possibly go wrong?

      Tomi Mitchell, MD | Meds
    • The hidden cost of delaying back surgery

      Gbolahan Okubadejo, MD | Conditions
    • The dreaded question: Do you have boys or girls?

      Pamela Adelstein, MD | Physician
  • Past 6 Months

    • What’s driving medical students away from primary care?

      ​​Vineeth Amba, MPH, Archita Goyal, and Wayne Altman, MD | Education
    • Internal Medicine 2025: inspiration at the annual meeting

      American College of Physicians | Physician
    • The silent crisis hurting pain patients and their doctors

      Kayvan Haddadan, MD | Physician
    • What happened to real care in health care?

      Christopher H. Foster, PhD, MPA | Policy
    • Are quotas a solution to physician shortages?

      Jacob Murphy | Education
    • The hidden bias in how we treat chronic pain

      Richard A. Lawhern, PhD | Meds
  • Recent Posts

    • Why ADHD in women is finally getting the attention it deserves

      Arti Lal, MD | Conditions
    • How a $75 million jet brought down America’s boldest doctor

      Arthur Lazarus, MD, MBA | Physician
    • Why ruling out sepsis in emergency departments can be lifesaving

      Claude M. D'Antonio, Jr., MD | Conditions
    • The hidden cost of delaying back surgery

      Gbolahan Okubadejo, MD | Conditions
    • Precision and personalization: Charting the future of cancer care [PODCAST]

      The Podcast by KevinMD | Podcast
    • Expert Q&A: Dr. Jared Pelo, ambient clinical pioneer, explains how Dragon Copilot helps clinicians deliver better care

      Jared Pelo, MD & Microsoft & Nuance Communications | Sponsored

MedPage Today Professional

An Everyday Health Property Medpage Today
  • Terms of Use | Disclaimer
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

Leave a Comment

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...