Skip to content
  • About
  • Contact
  • Contribute
  • Book
  • Careers
  • Podcast
  • Recommended
  • Speaking
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking

The indignity of a cancer that takes away bowel functions

Raymond Abbott
Conditions
December 12, 2019
Share
Tweet
Share

I first became John Dolan’s social worker following his colon surgery, surgery for removal of a very large cancerous tumor, the largest the experienced surgeon said he had ever seen.  John was told he had about three months to live. So much for predictions!  He lived another 16 months.

To the chagrin of his very large Catholic family, he was one of thirteen children; he was all the time rejecting their offers of help, and well before his cancer diagnosis. He could become nasty, frighteningly so, with death threats common, and always spelled out very graphically.

He had a colostomy system, which in those years involved using colostomy bags and keeping the area clean, which proved difficult for John. He had a very active lifestyle.  He walked a lot and often hauled back to his apartment trash, junk he found, and very heavy items like sofas. This aggravated the opening where the bags were attached, and despite my best efforts, he developed what was called a “prolapsed colostomy.”  His intestine was spilling out, often inside his colostomy bag, and looked like a snake or a large red Polish sausage. It wasn’t pretty.

I tried to have a colostomy nurse go to John’s apartment to help him with the care of his colostomy.  But I could not get the nursing services to go out more than once because John lived in such filthy surroundings.  They also didn’t like the fact that he did not believe in air conditioning, and they were asked to visit him, go to his third-floor apartment in August.

In time, my job became kind of as a maintenance man for John. I would see to his colostomy supplies each week and sometimes transport him to wherever he wished to go. Both were tasks his sisters offered to do. They seldom refused him anything, even in the face of their nervousness, and at times downright fear for their own safety.  He was said to throw things at them, even heavy cans of soup.

I prided myself in getting John to his medical appointments and on time and relatively clean, even if I had to take a few items of clothing home with me to wash.

Months went by in this way, doing what I just described. John got weaker by the day.

To me, John looked very French. He had a thin face and dark thinning hair, and something of a wild look in his brown eyes.  In my imagination, I could easily transport him to a Paris street and put a beret on him and a paintbrush and call John Dolan an artist, which was something he dabbled in. A good way to provoke his rage, I observed, was to cut short his presentation of his drawings, his portfolio, although I never heard him call it that. What he had was a stack of large pencil drawings, and it took an hour or more for him to go through his explanation of each picture.

Toward the end of his life and when especially delusional, he began to blame me for his weight loss. He would not be so skinny, he said, if only I had transported him more often to the fast-food restaurants he wanted to frequent.

Now we were here, in the large Catholic cathedral in downtown Louisville with John’s brother, a priest, serving mass to a crowd of family and friends.

Father Dolan said how John went from having a good factory job, until about age 30, to being on welfare and living like a bum in the center city. It was not a homily full of understanding or compassion.

I heard no acknowledgment of John being severely mentally ill. There often isn’t with the extended family. Then the fellow said this: Whenever he thought of his brother, a Linda Ronstadt song came to mind, “Desperado.” He brought out his guitar and from the altar sang the song for us.   A song about a fellow who was a bad acting character, an unappreciative hombre, who turned away all help brought his way.  I think John might have liked being remembered as an outlaw.

Myself, I would have welcomed an opportunity that day to say a few words about what I knew of John Dolan after 16 months in his company, and just every day. I even saw him the day he died. The majesty of the cathedral would have impressed John tremendously, and I would have said that.

ADVERTISEMENT

Also, I would have mentioned John’s love, his infatuation, of things associated with royalty and how when he learned my birthday was April 21, he made quite a fuss,  proclaiming it a very special date because it was also the birthday of Queen Elizabeth, something I didn’t know. I might have lied and said how John often spoke fondly of his two sisters, Ann and Betty Lou.  He never did. I suppose my main purpose would have been to convey, if I could manage it, just how much this guy suffered (even though he made others suffer for knowing him).  He was never married, had no children, and had little experience with women in spite of many longings.  He had not much education or a sense as to how to get along in this world, and he was extremely angry, and terribly alone. Then there was the added indignity of a cancer that took away his bowel functions, eventually leaving him with his insides spilling out for all to see, and this happening to him before age 50.  Yet I never once heard John say, “Why me? Why is all this happening to me?”

Raymond Abbott is a social worker and novelist.

Image credit: Shutterstock.com 

Prev

Compromise vs. greed in ending surprise medical bills

December 12, 2019 Kevin 13
…
Next

The tension between hospital administrators and medical residents

December 12, 2019 Kevin 12
…

Tagged as: Oncology/Hematology

Post navigation

< Previous Post
Compromise vs. greed in ending surprise medical bills
Next Post >
The tension between hospital administrators and medical residents

ADVERTISEMENT

ADVERTISEMENT

ADVERTISEMENT

More by Raymond Abbott

  • From hospital bed to harsh truths: a writer’s unexpected journey

    Raymond Abbott
  • Proud dental school patient shows off a rare gold foil filling

    Raymond Abbott
  • The teacher who changed my life through reading

    Raymond Abbott

Related Posts

  • Hormone replacement therapy is still linked to cancer

    Martha Rosenberg
  • We have a shot at preventing cervical cancer

    Lisa N. Abaid, MD, MPH
  • Obstruction of medical justice: How health care fails patients with cancer

    Miriam A. Knoll, MD
  • Despite progress in cancer care, cost and equity challenges still must be addressed

    David M. Aboulafia, MD
  • Using the Avengers to explain how cancer treatments work

    Jennifer Lycette, MD
  • Is social media a friend or foe of science?

    Michael Joyce, MD

More in Conditions

  • How kindness in disguise is holding women back in academic medicine

    Sylk Sotto, EdD, MPS, MBA
  • Measles is back: Why vaccination is more vital than ever

    American College of Physicians
  • Hope is the lifeline: a deeper look into transplant care

    Judith Eguzoikpe, MD, MPH
  • From hospital bed to harsh truths: a writer’s unexpected journey

    Raymond Abbott
  • Bird flu’s deadly return: Are we flying blind into the next pandemic?

    Tista S. Ghosh, MD, MPH
  • “The medical board doesn’t know I exist. That’s the point.”

    Jenny Shields, PhD
  • Most Popular

  • Past Week

    • The silent toll of ICE raids on U.S. patient care

      Carlin Lockwood | Policy
    • Why recovery after illness demands dignity, not suspicion

      Trisza Leann Ray, DO | Physician
    • Addressing the physician shortage: How AI can help, not replace

      Amelia Mercado | Tech
    • Why medical students are trading empathy for publications

      Vijay Rajput, MD | Education
    • Why does rifaximin cost 95 percent more in the U.S. than in Asia?

      Jai Kumar, MD, Brian Nohomovich, DO, PhD and Leonid Shamban, DO | Meds
    • How AI is revolutionizing health care through real-world data

      Sujay Jadhav, MBA | Tech
  • Past 6 Months

    • What’s driving medical students away from primary care?

      ​​Vineeth Amba, MPH, Archita Goyal, and Wayne Altman, MD | Education
    • Make cognitive testing as routine as a blood pressure check

      Joshua Baker and James Jackson, PsyD | Conditions
    • The hidden bias in how we treat chronic pain

      Richard A. Lawhern, PhD | Meds
    • A faster path to becoming a doctor is possible—here’s how

      Ankit Jain | Education
    • Residency as rehearsal: the new pediatric hospitalist fellowship requirement scam

      Anonymous | Physician
    • The broken health care system doesn’t have to break you

      Jessie Mahoney, MD | Physician
  • Recent Posts

    • How AI is revolutionizing health care through real-world data

      Sujay Jadhav, MBA | Tech
    • Ambient AI: When health monitoring leaves the screen behind

      Harvey Castro, MD, MBA | Tech
    • How kindness in disguise is holding women back in academic medicine

      Sylk Sotto, EdD, MPS, MBA | Conditions
    • Why physician voices matter in the fight against anti-LGBTQ+ laws

      BJ Ferguson | Policy
    • From burnout to balance: a lesson in self-care for future doctors

      Seetha Aribindi | Education
    • How conflicts of interest are eroding trust in U.S. health agencies [PODCAST]

      The Podcast by KevinMD | Podcast

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

View 1 Comments >

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

ADVERTISEMENT

ADVERTISEMENT

ADVERTISEMENT

  • Most Popular

  • Past Week

    • The silent toll of ICE raids on U.S. patient care

      Carlin Lockwood | Policy
    • Why recovery after illness demands dignity, not suspicion

      Trisza Leann Ray, DO | Physician
    • Addressing the physician shortage: How AI can help, not replace

      Amelia Mercado | Tech
    • Why medical students are trading empathy for publications

      Vijay Rajput, MD | Education
    • Why does rifaximin cost 95 percent more in the U.S. than in Asia?

      Jai Kumar, MD, Brian Nohomovich, DO, PhD and Leonid Shamban, DO | Meds
    • How AI is revolutionizing health care through real-world data

      Sujay Jadhav, MBA | Tech
  • Past 6 Months

    • What’s driving medical students away from primary care?

      ​​Vineeth Amba, MPH, Archita Goyal, and Wayne Altman, MD | Education
    • Make cognitive testing as routine as a blood pressure check

      Joshua Baker and James Jackson, PsyD | Conditions
    • The hidden bias in how we treat chronic pain

      Richard A. Lawhern, PhD | Meds
    • A faster path to becoming a doctor is possible—here’s how

      Ankit Jain | Education
    • Residency as rehearsal: the new pediatric hospitalist fellowship requirement scam

      Anonymous | Physician
    • The broken health care system doesn’t have to break you

      Jessie Mahoney, MD | Physician
  • Recent Posts

    • How AI is revolutionizing health care through real-world data

      Sujay Jadhav, MBA | Tech
    • Ambient AI: When health monitoring leaves the screen behind

      Harvey Castro, MD, MBA | Tech
    • How kindness in disguise is holding women back in academic medicine

      Sylk Sotto, EdD, MPS, MBA | Conditions
    • Why physician voices matter in the fight against anti-LGBTQ+ laws

      BJ Ferguson | Policy
    • From burnout to balance: a lesson in self-care for future doctors

      Seetha Aribindi | Education
    • How conflicts of interest are eroding trust in U.S. health agencies [PODCAST]

      The Podcast by KevinMD | Podcast

MedPage Today Professional

An Everyday Health Property Medpage Today
  • Terms of Use | Disclaimer
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

The indignity of a cancer that takes away bowel functions
1 comments

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...