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The harmful effects of shaming patients for self-education

Maryanna Barrett, MD
Physician
March 27, 2023
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“Don’t confuse your Google search with my medical degree.”

We’ve all seen the mug and likely had a little chuckle. Maybe it has even recalled to mind a particular patient or encounter. Other than thinking of it as a snarky joke (no shade on those of you who have one, truly), I have not given it much thought until a recent patient encounter.

A few weeks ago, I had the pleasure to see a longstanding patient of mine who was unfortunately diagnosed with terminal breast cancer in her mid-30s. Not only is she well enough to come to routine appointments, but she is positively thriving. I expressed my delight at seeing her so vibrant and inquired about the current regimen and any recent follow-up. She was pleased to report a stable PET scan. She also noted that she is the only patient currently treated by her oncologist who did not require any dose decreases for side effects of her oral chemo drug. On further inquiry, I learned that she had created a virtual database of breast cancer treatment protocols, trials, guidelines, and literature covering the management of side effects worldwide. She even taught her oncologist a few side-effect management hacks that she found in the European literature that the physician was unaware of but grateful to be able to pass on to other patients. I congratulated her for being proactive about her health, prompting her to share that a different oncologist had previously shamed her for the same thing.

Hearing this gave me yet another glimpse of understanding about the state of our current broken health care system. Patients feel at odds with the health care system for many reasons. This, the shaming of patients by their doctor for sincere efforts at self-education is one that had not immediately occurred to me. I realized that this could tremendously impact the doctor-patient relationship and the patient’s health outcomes. Quality health care that yields the best results must involve a partnership between a patient and her doctor. Don’t get me wrong, if a patient comes to me with bad advice from a nefarious or dubious source; I believe it is my duty to address that with her. But this can and should be done respectfully. After all, Dr. Google is so helpful and accommodating to patients because our broken health care system is not.

For patients who are reading this, please don’t take this to mean that you must pursue an honorary degree in your diagnoses if that makes you uncomfortable. But on the flip side of that, if you have a diagnosis and choose to educate yourself to that level, I applaud you, and so should your doctor, even when it means you know more than we do about it. You are the expert on your life and body and have every right to participate in your health education and care. If you bring your elevated knowledge about your diagnosis and marry it with the experience of your doctor, you can achieve the best outcomes.

For my colleagues who are reading this, I see you and understand your pain. You are doing noble work in a system that is anything but noble and puts unbearable weight on your time, energy, and humanity. Please do not take this article as admonishment. Let it remind you not to let a broken system break you personally. The system that has trained and programmed us needs us to race through thirty to forty patients a day for the bottom line, but what do we, or our patients, get out of that? We all know this is a soul-sucking way to care for patients, for them and us. As I continue to grow in my practice, I realize how much I learn by engaging my patients in their care and how much they have taught me directly and indirectly. I appreciate how much more fulfilling it is to practice in a way that empowers my patients. I will not pretend practicing on my terms is easy while the medical-industrial-complex closes in from all angles. Still, I have firmly decided that I will not compromise my values no matter where my practice takes me. I am so grateful to my patients for teaching me this.

As for that self-righteous ceramic mug, there is no need to shatter it. Maybe keep it in the physician’s lounge.

Maryanna Barrett is an obstetrician-gynecologist.

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