Rheumatology

Understanding autoimmune flares: triggers, symptoms, and treatment options

Conditions
June 5, 2024

Just when you think your autoimmune disease(s) are calming down and you feel better, a dramatic worsening of disease signs and symptoms can happen without warning. They are unpredictable and disruptive, and can cause a disturbing influence in your every attempt to feel well.

Taking medications, following a healthy diet and exercise program, and getting enough sleep don’t seem to stop “flares.” These are the markers of autoimmune disease activity, meaning …

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Crippling fatigue: a common enemy of autoimmune disease

Conditions
May 25, 2024

For many people with autoimmune disease, fatigue is the most debilitating symptom. Why autoimmune disease and fatigue go together is not entirely understood, although inflammation may be part of the reason. Other possible factors include pain, poor sleep, inactivity, and depressed mood. Fatigue is not just feeling tired. Fatigue is composed of both physical fatigue and mental fatigue. Unlike being tired, fatigue is rarely resolved with rest or sleep. Trying …

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Autoimmune disease? You’re more likely to get heart disease. Here’s why.

Conditions
May 13, 2024

The prevalence of coronary artery disease (CAD) and stroke is increased in patients with chronic inflammatory diseases such as rheumatoid arthritis (RA) or systemic lupus erythematosus (SLE). These are also known as IMID: immune-mediated inflammatory diseases. Rheumatic IMIDs, including rheumatoid and osteoarthritis, are associated with multiple cardiovascular issues with an enhanced cardiovascular risk, including premature coronary artery disease. Lupus can also increase coronary artery disease because of the elevated chronic …

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The dichotomy of patient health literacy

Conditions
May 11, 2024

“You sure know a lot about your condition.”

Many patients with long-term illnesses have heard this. When it comes from a medical professional, it’s never a compliment. It’s a statement that is usually, at best, laced with disapproval.

The thing is, patients like me, who have long-term complex conditions, are encouraged to know a lot. As someone with CVID and other issues, I’ve attended seminars and patient Q&As with immunologists. There’s a …

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From doctor to patient: my Sjogren’s journey and a challenge to colleagues

Conditions
April 28, 2024

As physicians, we are trained to dissect symptoms and to hunt for a diagnosis. But my own journey with Sjogren’s, like my patients’, wasn’t a textbook case. It was a puzzle with pieces scattered over decades, ignored or dismissed at each turn, including by myself.

There’s the college student, fearing the agony a simple meal might bring, never dreaming of asking why. The med student, convinced of an impending heart attack, …

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Autoimmune disease flares: stress, grief, and management tips

Conditions
April 4, 2024

Autoimmune diseases occur when the immune system mistakenly attacks healthy cells and tissues in the body. More than 80 recognized autoimmune diseases exist, including alopecia areata, rheumatoid arthritis, psoriasis, lupus, multiple sclerosis, celiac disease, scleroderma, and Raynaud’s. These conditions can cause a wide range of symptoms, making management crucial for maintaining a good quality of life.

Why the immune system attacks healthy cells is a bit of a mystery in most …

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Real pain deserves real treatment

Conditions
March 29, 2024

When a patient comes to us and describes confusing symptoms that don’t seem to fit into any immediate category, we can see it in two different ways: as a challenge, we can rise to, a riddle to solve … or we can see it as an opportunity to denigrate the patient, to imply that they are malingering or that it’s “all in their head.” This tendency is amplified when we …

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Navigating the health system with Ehlers-Danlos syndrome [PODCAST]

Podcast
March 13, 2024
YouTube video

 

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We sit down with Denise Reich, a patient advocate, to explore her journey of navigating the healthcare system with Ehlers-Danlos syndrome (EDS). Denise shares her experiences from the initial mention of EDS during …

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Ehlers-Danlos syndrome: Overcoming doctor bias for a life-changing diagnosis

Conditions
February 21, 2024

“Do you have Ehlers-Danlos syndrome?”

It wasn’t a question I expected during an ophthalmology appointment. It was, however, one I’d been asked before. Two other specialists had suggested I might have connective tissue issues, but nothing had ever come of it. All I could tell my ophthalmologist, then, was what I’d said before when it had come up: “No, not as far as I know, but I’ll ask about it.”

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A patient advocate’s battle scars in health care [PODCAST]

Podcast
December 28, 2023
YouTube video

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Join Dinaaz Lentin, a patient advocate. In this discussion, Dinaaz shares her powerful book, BATTLE SCARS: A courageous memoir of one person’s life experience within our health care system. Get ready to dive into her personal journey, …

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Behind closed doors of traveling: the concerns often overlooked

Conditions
December 17, 2023

One thing is for sure: in today’s modern world, and as we recover from the impact of a pandemic, we are busier than ever. Another certainty is just how many of us are constantly on the move, with over 900 million people traveling internationally every year. Whether you’re traveling for pleasure or business, many do so without ever considering the health risks and security concerns to which we are exposed. …

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A complex patient interviews a retired physician

Conditions
December 9, 2023

Dr. James (Jim) Whitlock, a neurologist, and Ann McColl met at a writers’ workshop in Maine in 2022 and discovered a shared interest: patients with complex conditions and their journeys in the medical system. Dr. Whitlock’s practice focused on the rehabilitation of individuals with severe traumatic brain injuries. Attorney McColl had been a patient with a debilitating spinal condition and was ultimately helped by a neurosurgeon. A year after her …

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Protecting your health from environmental threats [PODCAST]

Podcast
November 29, 2023
YouTube video

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Join Tami Burdick, a patient advocate and the author of Diagnosis Detective: Curing Granulomatous Mastitis. Discover the overlooked factors that can contribute to unexplained health issues and learn practical steps to protect yourself and your loved ones …

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Unmasking medical gaslighting [PODCAST]

Podcast
October 22, 2023
YouTube video

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Join Tami Burdick, a patient advocate and author of Diagnosis Detective: Curing Granulomatous Mastitis. Discover the ins and outs of medical gaslighting, learn to recognize the red flags, and explore how both patients and health care providers …

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Challenges faced by patients with mast cell disorders

Conditions
October 15, 2023

As an allergist/immunologist, the spectrum of mast cell disorders, including mastocytosis, idiopathic anaphylaxis, chronic hives, and angioedema, is not a new concept. That said, in recent years, we have seen an uptick in patients presenting with a spectrum of symptoms attributed to misbehaving mast cells. Although the medical community has acquired extensive knowledge of these more established diagnoses over time, the newer entity mast cell activation syndrome (MCAS) is not …

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Navigating grief: a doctor’s personal journey [PODCAST]

Podcast
October 8, 2023
YouTube video

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Join Humeira Badsha, a rheumatologist, as she shares her recent, unexpected journey through grief, offering profound insights into the emotional challenges faced by medical professionals. From a tearful moment of vulnerability with a patient to the traumatic …

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Everyday dangers unknowingly impacting our health

Conditions
October 1, 2023

When we think of symptoms or ailments, they are often a signal to us that there’s something off with our health. Yet, many of us, as well as doctors, often don’t think so much outside the traditional box when it comes to what may be influencing or causing these health issues. I have even experienced this personally in my life.

Some people may even experience ongoing frustrations with concerns failing to …

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Medical gaslighting: a growing challenge in today’s medical landscape

Conditions
September 5, 2023

Chances are, you or someone you know has fallen victim to medical gaslighting at some point, especially as we see an increase in this unfortunate practice in today’s modern health care system. Maybe you have experienced medical gaslighting without even realizing it. What exactly is medical gaslighting? It’s a term given to a practice stemming from our medical community where doctors and specialists alike make patients feel a multitude of …

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Heart disease in the shadows: a closer look at cardiac sarcoidosis

Conditions
August 14, 2023

My new internist began my annual checkup with a nervous confession: “You are my first patient with cardiac sarcoidosis.” Even during an urgent care visit for potential cellulitis, I was met with raised eyebrows from the treating physician who reviewed my chart: “Very interesting, I’ve never seen a case of this heart disease.” With over 7000 rare diseases affecting more than 25 million people in the United States alone, patients …

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