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Navigating the health system with Ehlers-Danlos syndrome [PODCAST]

The Podcast by KevinMD
Podcast
March 13, 2024
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We sit down with Denise Reich, a patient advocate, to explore her journey of navigating the healthcare system with Ehlers-Danlos syndrome (EDS). Denise shares her experiences from the initial mention of EDS during an ophthalmology appointment to finally receiving a formal diagnosis. We delve into the challenges she faced advocating for herself amidst dismissive attitudes from healthcare professionals and how the diagnosis of EDS has impacted her medical care. Denise sheds light on common misconceptions surrounding EDS, the negative perceptions within the medical community, and the steps needed to address them. Through her story, we uncover the importance of early recognition and validation of symptoms in patients, along with empowering messages for those struggling to have their concerns taken seriously.

Denise Reich is a patient advocate.

She discusses the KevinMD article, “Ehlers-Danlos syndrome: Overcoming doctor bias for a life-changing diagnosis.”

Our presenting sponsor is Nuance, a Microsoft company.

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Discover AI-powered clinical documentation that writes itself. Visit https://nuance.com/daxinaction to see a 12-minute DAX Copilot demo.

VISIT SPONSOR → https://nuance.com/daxinaction

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  • Most Popular

  • Past Week

    • Why patient trust in physicians is declining

      Mansi Kotwal, MD, MPH | Physician
    • Why doctors struggle with treating friends and family

      Rebecca Margolis, DO and Alyson Axelrod, DO | Physician
    • Why insurance must cover home blood pressure monitors

      Soneesh Kothagundla | Conditions
    • Is tramadol really ineffective and risky?

      John A. Bumpus, PhD | Meds
    • When racism findings challenge institutional narratives

      Anonymous | Physician
    • 5 things health care must stop doing to improve physician well-being

      Christie Mulholland, MD | Physician
  • Past 6 Months

    • Why patient trust in physicians is declining

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    • The blind men and the elephant: a parable for modern pain management

      Richard A. Lawhern, PhD | Conditions
    • Is primary care becoming a triage station?

      J. Leonard Lichtenfeld, MD | Physician
    • Psychiatrists are physicians: a key distinction

      Farid Sabet-Sharghi, MD | Physician
    • The loss of community pharmacy expertise

      Muhammad Abdullah Khan | Conditions
    • Accountable care cooperatives: a community-owned health care fix

      David K. Cundiff, MD | Policy
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      Dana Y. Lujan, MBA | Conditions
    • How frivolous lawsuits drive up health care costs

      Howard Smith, MD | Physician
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      Timothy Lesaca, MD | Physician
    • Emotional abuse recognition: a nurse’s story

      Debbie Moore-Black, RN | Conditions
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    • Pediatric respite homes provide a survival mechanism for struggling families [PODCAST]

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