Skip to content
  • About
  • Contact
  • Contribute
  • What Physicians Say
  • My Book
  • Careers
  • Podcast
  • Speaking
KevinMD.com — Social media's leading physician voice
  • All
  • Physician
  • Burnout
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • All
  • Physician
  • Burnout
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
    • All
    • Physician
    • Burnout
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • About
    • Contact
    • Contribute
    • What Physicians Say
    • My Book
    • Careers
    • Podcast
    • Speaking
KevinMD.com — Social media's leading physician voice
  • All
  • Physician
  • Burnout
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
    • All
    • Physician
    • Burnout
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • About
    • Contact
    • Contribute
    • What Physicians Say
    • My Book
    • Careers
    • Podcast
    • Speaking
  • About Kevin Pho, MD, Founder of KevinMD
  • Aging and dementia: what physicians say, in their own words
  • Artificial intelligence: what physicians say, in their own words
  • Be heard on social media’s leading physician voice
  • Cancer: what physicians say, in their own words
  • Children’s health: what pediatricians say, in their own words
  • Contact Kevin
  • COVID-19: what physicians wrote as it happened
  • Custom enhanced author page pricing
  • Diabetes and obesity: what physicians say, in their own words
  • Direct primary care: what physicians say, in their own words
  • DMCA Policy
  • End of life: what physicians say, in their own words
  • Establishing, Managing, and Protecting Your Online Reputation: A Social Media Guide for Physicians and Medical Practices
  • GLP-1 drugs: what physicians say about Ozempic and its successors, in their own words
  • Heart disease: what physicians say, in their own words
  • Immigration and medicine: what physicians say about immigrant doctors and immigrant patients, in their own words
  • KevinMD influencer opportunities
  • Medical errors: what physicians say, in their own words
  • Medical ethics: what physicians say, in their own words
  • Medical malpractice: what physicians say, in their own words
  • Medical school: what students and physicians say, in their own words
  • Mental health: what psychiatrists and physicians say, in their own words
  • Nursing: what nurses and physicians say, in their own words
  • Opinion and commentary by KevinMD
  • Opioids: what physicians and pain patients say, in their own words
  • Physician burnout speakers to keynote your conference
  • Physician burnout: what physicians say, in their own words
  • Physician Coaching by KevinMD
  • Physician keynote speaker: Kevin Pho, MD
  • Physician personal finance: what physicians say about their own money, in their own words
  • Physician Speaking by KevinMD: a boutique speakers bureau
  • Physician suicide: what physicians say, in their own words
  • Physicians and administrators: what physicians say about who runs medicine, in their own words
  • Primary care physician in Nashua, NH | Kevin Pho, MD
  • Primary care: what physicians say, in their own words
  • Prior authorization: what physicians say, in their own words
  • Privacy Policy
  • Private equity and corporate medicine: what physicians say, in their own words
  • Race and medicine: what physicians say, in their own words
  • Recommended services by KevinMD
  • Residency: what residents and attendings say, in their own words
  • Scope of practice: what physicians, nurse practitioners, and PAs say, in their own words
  • Subscribe to the KevinMD enhanced author page
  • Subscribe to the newsletter
  • Surgeons and surgery: what surgeons say, in their own words
  • Take-home messages: what physicians say when asked to leave one
  • Terms of Use Agreement
  • Thank you for subscribing to KevinMD
  • Thank you for upgrading to the KevinMD enhanced author page
  • The electronic health record: what physicians say, in their own words
  • Vaccines: what physicians say, in their own words
  • Violence against health care workers: what physicians and nurses say, in their own words
  • What physicians say: the KevinMD records
  • Women in medicine: what women physicians say, in their own words
  • Women’s health: what physicians say, in their own words

The difficulty in diagnosing autism: Feeling like judge and jury

Lisa Shulman, MD
Conditions and Diseases
March 20, 2014
Share
Tweet
Share

I recently fulfilled my civic responsibility by completing a stint on jury duty. Somehow I had never previously been summoned. Being the Law & Order junkie that I am, I was kind of awestruck by my first up-close exposure to the court system.

I sat erect and at attention in the courtroom, listening to the judge charge us prospective jurors. I even became slightly teary when he spoke of the important role we were playing in assuring the defendant of his right to determination of guilt or innocence by a jury of his peers.

The judge went on to tell us that we would hear testimony from the two opposing sides, and I watched the jury selection process play out with the elimination of candidates whom one side or the other thought might be inclined to have certain biases.

At some point, I found myself thinking that this process reminded me of something more than TV…. What was it? I finally figured it out. Diagnosing autism.

I have spent the past 23 years as a developmental pediatrician at Einstein’s Children’s Evaluation and Rehabilitation Center, with a focus on autism for the past 17 years. Over the last decade I have been on the front line of an epidemic of autism concern.

Through these years, I have personally been involved in the diagnosis and management of about 700 children with autism, and over recent years, I have offered the opinion that a large and growing number of children referred for possible autism do not warrant that diagnosis. To make matters even more complex, the definition of autism has changed three times during my professional career.

The reason the jury system comes to mind is that to date, there is no blood test for autism, no confirmatory MRI findings or positive culture of any bodily fluids. No hair analysis for mercury, or stool sample for yeast, will confirm or rule out this diagnosis. The diagnosis of autism remains a “judgment call” made after gathering all of the relevant data, including “testimony” of all those who spend time with the child, and then organizing those data for a determination of whether the sum of its components  supports or goes against the diagnosis of autism.

I am the “jury” in this process.

Sometimes, the child in question has every feature of autism; the diagnosis is clear, and no judgment call is really needed. A jury of 12 autism experts would need to deliberate but a moment in order to render its unanimous opinion.

Other times, the process may lead to a “hung jury” of diagnosticians. In a certain percentage of cases where families seek an evaluation at a specialty center such as ours, the families have sought previous diagnostic feedback. They may be seeking from us a second, third or even fourth opinion. Families have been known to arrive with suitcases of prior evaluations in tow; they have brought three-ring binders, with color-coded section dividers separating the multiple prior evaluations and opinions.

Alternatively, and not infrequently, families have denied any previous evaluations — for fear that we would be influenced by their opinions and they would then not truly receive a new opinion — only to have it later come to light that previous evaluations had been carried out, yielding a diagnostic formulation on one side or the other.

The rationale for how a multidisciplinary evaluation arrives at a valid diagnostic formulation for a complex clinical scenario such as autism is at its core quite similar to the rationale behind a jury looking at evidence to determine a defendant’s guilt or innocence.

In a multidisciplinary team, a complex child is seen by several specialists with differing expertise — for example, a developmental pediatrician, a psychologist and a speech and language pathologist. Each specialist uses different instruments specific to his or her discipline to make observations relevant to the diagnosis of autism, and carries out standardized testing delineating the child’s pattern of strengths and weaknesses. In borderline situations, the child may undergo the Autism Diagnostic Observation Schedule, an instrument considered the gold standard; it attempts to clarify the features of autism through a structured, videotaped play-based assessment.

ADVERTISEMENT

Following the completion of all of the evaluations, a team conference is held and each clinician shares her or his impressions of the child. The hope is that a valid diagnostic formulation will emerge through the differing but overlapping professional expertise and multiple points of observation.

Most times, the team process leads to a consensus and a particular diagnosis is offered with surety. But sometimes, it is impossible to pull it all together. For example, two clinicians may feel that the child meets the criteria for autism and two may not. The team is “hung.”

In the conference later held with the family, in such cases, I often find myself explaining that the child has language delays and social weaknesses, but in determining whether the child meets the criteria for autism, “the jury is still out.” I often go on to say, “If you get 10 opinions (but please don’t) from experienced clinicians, five will say yes and five no.” And yes — the discussion usually relies on courtroom analogies.

But this is where the systems differ. Children at risk of autism are rarely sent home on a technicality. Double jeopardy never applies. The family members must contend with life in the diagnostic gray zone. Rather than having them use their energies and resources to seek yet another opinion (an “appeal”), we urge them in this circumstance to put the issue of autism diagnosis on the back burner and concentrate on the needed treatment.

Generally, time will tell whether the social impairment significantly affects the child’s functioning and therefore is consistent with a diagnosis of autism. In the meantime, the child will receive intervention targeting his or her areas of weakness and giving the child the greatest likelihood of the best outcome.

When I render this diagnostic judgment, I often feel like both judge and jury, while my little patient and his or her parents rise at the defendant’s table awaiting my verdict. I strive to be “fair-minded” and “just,” but with a hefty measure of hope.

Inevitably, I picture the child and his or her loving family’s future hanging in the balance on the scales of justice — only everyone is innocent in this court.

Lisa Shulman is a neurodevelopmental pediatrician and director, infant and toddler services, Children’s Evaluation and Rehabilitation Center (CERC), Albert Einstein College of Medicine. She blogs at The Doctor’s Tablet.

Prev

Is Match Day outdated?

March 19, 2014 Kevin 15
…
Next

This is why doctors practice cover your ass medicine

March 20, 2014 Kevin 208
…

Tagged as: Neurology, Pediatrics

< Previous Post
Is Match Day outdated?
Next Post >
This is why doctors practice cover your ass medicine

 

ADVERTISEMENT

More by Lisa Shulman, MD

  • Pediatricians should listen to parents. Here’s why.

    Lisa Shulman, MD
  • a desk with keyboard and ipad with the kevinmd logo

    New hope for those diagnosed with autism

    Lisa Shulman, MD
  • a desk with keyboard and ipad with the kevinmd logo

    After an autism diagnosis: A new parental role

    Lisa Shulman, MD

Related Posts

  • Don’t judge when trainees use dating apps in the hospital

    Austin Perlmutter, MD
  • Don’t worry, medical students don’t judge

    Nathaniel Fleming
  • Patients with severe autism: medical and dental care in the community

    Irene Tanzman
  • It’s always easier to judge someone’s failures from higher ground

    Michael Kirsch, MD
  • Our doctors are feeling the emotional burden of the state of health care

    Michele Luckenbaugh

More in Conditions and Diseases

  • Shift work and circadian rhythms shape the 24/7 workplace

    Deepak Gupta, MD
  • Telehealth and postpartum psychosis defy simple blame

    Rabia Cheema, MD
  • Underage online gambling needs more than a checkbox

    Kayvan Haddadan, MD
  • Why must fourth trimester care begin after delivery?

    Allison P. Boyle, DPA, PA-C
  • Nutrition during cancer treatment is more than calories

    Dr. Manjari Chandra
  • Why witnessing death outside the hospital felt different

    Denise Moulton, RN
  • Most Popular

  • Past Week

    • Retirement isn’t the end of medicine, it’s a second act [PODCAST]

      The Podcast by KevinMD | Podcast
    • The conflict of interest that discloses as nothing

      Martha Rosenberg | Medications
    • 4 fibromyalgia myths the current evidence doesn’t support

      Kayvan Haddadan, MD | Conditions and Diseases
    • Why exhaustion can make you see things that aren’t there [PODCAST]

      The Podcast by KevinMD | Podcast
    • AI governance in health care has to reach the exam room

      Amanda Heidemann, MD | Health Technology
    • The Pennsylvania measles outbreak and the cost of forgetting

      Christine King, CRNA | Conditions and Diseases
  • Past 6 Months

    • Why CDC opioid guidelines get the overdose data wrong

      Richard A. Lawhern, PhD | Conditions and Diseases
    • Retirement isn’t the end of medicine, it’s a second act [PODCAST]

      The Podcast by KevinMD | Podcast
    • Sensory processing in autism and the brain’s volume control

      Josette Pelatan, PhD | Conditions and Diseases
    • What maternity care deserts cost a town

      Manisha Kaliaperumal | Health Policy
    • Why medicine needs a national physician license now

      Vaishali Popat, MD, MPH | Physician
    • A cold cost $945. The cost of primary care is broken.

      Susan Newman, MD | Physician
  • Recent Posts

    • Why exhaustion can make you see things that aren’t there [PODCAST]

      The Podcast by KevinMD | Podcast
    • 3 reforms to counter wellness influencers in practice

      Farid Sabet-Sharghi, MD | Physician
    • Shift work and circadian rhythms shape the 24/7 workplace

      Deepak Gupta, MD | Conditions and Diseases
    • Paid for twice

      Physicians paid for G2211 twice. Most never bill it.

      Michael Duben, MD | Physician Finance
    • The next child

      Medicaid managed care and the case for mutual stewardship

      Steven Merahn, MD | Health Policy
    • Choosing a limb lengthening surgeon requires accountability

      Hrayr Basmajian, MD | Physician

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

Leave a Comment

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

  • Most Popular

  • Past Week

    • Retirement isn’t the end of medicine, it’s a second act [PODCAST]

      The Podcast by KevinMD | Podcast
    • The conflict of interest that discloses as nothing

      Martha Rosenberg | Medications
    • 4 fibromyalgia myths the current evidence doesn’t support

      Kayvan Haddadan, MD | Conditions and Diseases
    • Why exhaustion can make you see things that aren’t there [PODCAST]

      The Podcast by KevinMD | Podcast
    • AI governance in health care has to reach the exam room

      Amanda Heidemann, MD | Health Technology
    • The Pennsylvania measles outbreak and the cost of forgetting

      Christine King, CRNA | Conditions and Diseases
  • Past 6 Months

    • Why CDC opioid guidelines get the overdose data wrong

      Richard A. Lawhern, PhD | Conditions and Diseases
    • Retirement isn’t the end of medicine, it’s a second act [PODCAST]

      The Podcast by KevinMD | Podcast
    • Sensory processing in autism and the brain’s volume control

      Josette Pelatan, PhD | Conditions and Diseases
    • What maternity care deserts cost a town

      Manisha Kaliaperumal | Health Policy
    • Why medicine needs a national physician license now

      Vaishali Popat, MD, MPH | Physician
    • A cold cost $945. The cost of primary care is broken.

      Susan Newman, MD | Physician
  • Recent Posts

    • Why exhaustion can make you see things that aren’t there [PODCAST]

      The Podcast by KevinMD | Podcast
    • 3 reforms to counter wellness influencers in practice

      Farid Sabet-Sharghi, MD | Physician
    • Shift work and circadian rhythms shape the 24/7 workplace

      Deepak Gupta, MD | Conditions and Diseases
    • Paid for twice

      Physicians paid for G2211 twice. Most never bill it.

      Michael Duben, MD | Physician Finance
    • The next child

      Medicaid managed care and the case for mutual stewardship

      Steven Merahn, MD | Health Policy
    • Choosing a limb lengthening surgeon requires accountability

      Hrayr Basmajian, MD | Physician

Copyright © 2026 KevinMD.com | Powered by Astra WordPress Theme

  • Terms of Use Agreement
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

Leave a Comment

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...