Skip to content
  • About
  • Contact
  • Contribute
  • Book
  • Careers
  • Podcast
  • Recommended
  • Speaking
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking

We forget to ask patients what their goals are

Mitch Kaminski, MD
Physician
January 29, 2015
Share
Tweet
Share

Mr. Dwyer isn’t my patient, but today I’m covering for my partner in our family practice office, so he’s been slipped into my schedule.

Reading his chart, I have an ominous feeling that this visit won’t be simple.

A tall, lanky man with an air of quiet dignity, Mr. Dwyer is eighty-eight. His legs are swollen, and merely talking makes him short of breath.

He suffers from both congestive heart failure and renal failure. It’s a medical catch-22: When one condition is treated and gets better, the other condition gets worse. His past year has been an endless cycle of medication adjustments carried out by dueling specialists and punctuated by emergency room visits and hospitalizations.

Hemodialysis would break the medical stalemate, but Mr. Dwyer flatly refuses it. Given his frail health, and the discomfort and inconvenience involved, I can’t blame him.


Now his cardiologist has referred him back to us, his primary-care providers. Why send him here and not to the ER? I wonder fleetingly.

With us is Mr. Dwyer’s daughter, Karen, who has driven from Philadelphia, an hour away. She seems dutiful but wary, awaiting the clinical wisdom of yet another doctor.

After thirty years of practice, I know that I can’t possibly solve Mr. Dwyer’s medical conundrum.

A cardiologist and a nephrologist haven’t been able to help him, I reflect, so how can I? I’m a family doctor, not a magician. I can send him back to the ER, and they’ll admit him to the hospital. But that will just continue the cycle …

Still, my first instinct is to do something to improve the functioning of his heart and kidneys. I start mulling over the possibilities, knowing all the while that it’s useless to try.

Then I remember a visiting palliative-care physician’s words about caring for the fragile elderly: “We forget to ask patients what they want from their care. What are their goals?”

I pause, then look this frail, dignified man in the eye.

“Mr. Dwyer, what are your goals for your care?” I ask. “How can I help you?”

ADVERTISEMENT

My intuition tells me that Mr. Dwyer, like many patients in their eighties, harbors a fund of hard-won wisdom.

He won’t ask me to fix his kidneys or his heart, I think. He’ll say something noble and poignant: “I’d like to see my great-granddaughter get married next spring,” or “Help me to live long enough so that my wife and I can celebrate our sixtieth wedding anniversary.”

Karen, looking tense, also faces her father and waits.

“I would like to be able to walk without falling,” Mr. Dwyer says. “Falling is horrible.”

This catches me off-guard.

That’s all?

But it makes perfect sense. With Mr. Dwyer’s challenging medical conditions commanding his caregivers’ attention, something as simple as walking is easily overlooked.

A wonderful geriatric nurse practitioner’s words come to mind: “Our goal for younger people is to help them live long and healthy lives; our goal for older patients should be to maximize their function.”

Suddenly I feel that I may be able to help, after all.

“We can order physical therapy — and there’s no need to admit you to the hospital for that,” I suggest, unsure of how this will go over.

Mr. Dwyer smiles. And Karen sighs with relief.

“He really wants to stay at home,” she says matter-of-factly.

As new as our doctor-patient relationship is, I feel emboldened to tackle the big, unspoken question looming over us.

“Mr. Dwyer, I know that you’ve decided against dialysis, and I can understand your decision,” I say. “And with your heart failure getting worse, your health is unlikely to improve.”

He nods.

“We have services designed to help keep you comfortable for whatever time you have left,” I venture. “And you could stay at home.”

Again, Karen looks relieved. And Mr. Dwyer seems … well … surprisingly fine with the plan.

I call our hospice service, arranging for a nurse to visit him later today to set up physical therapy and to begin plans to help him to stay comfortable — at home.

Although I never see Mr. Dwyer again, over the next few months, I sign the order forms faxed by his hospice nurses. I speak once with his granddaughter. It’s somewhat hard on Mr. Dwyer’s wife to have him die at home, she says, but he’s adamant that he wants to stay there.

A faxed request for sublingual morphine (used in the terminal stages of dying) prompts me to call to check up on Mr. Dwyer.

The nurse confirms that he is near death.

I feel a twinge of misgiving: Is his family happy with the process that I set in place? Does our one brief encounter qualify me to be his primary-care provider? Should I visit them all at home? 

Two days later, and two months after we first met, I fill out Mr. Dwyer’s death certificate.

Looking back, I reflect, He didn’t go back to the hospital, he had no more falls, and he died at home, which is what he wanted. But I wonder if his wife felt the same …

Several months later, a new name appears on my patient schedule: Ellen Dwyer.

“My family all thought I should see you,” she explains.

She too is in her late eighties and frail, but independent and mentally sharp. Yes, she is grieving the loss of her husband, and she’s lost some weight. No, she isn’t depressed. Her husband died peacefully at home, and it felt like the right thing for everyone.

“John liked you,” she says.

She’s suffering from fatigue and anemia. About a year ago, a hematologist diagnosed her with myelodysplasia (a bone-marrow failure, often terminal). But six months back, she stopped going for medical care.

I ask why.

“They were just doing more and more tests,” she says. “And I wasn’t getting any better.”

Now I know what to do. I look her in the eye and ask:

“Mrs. Dwyer, what are your goals for your care, and how can I help you?

Mitch Kaminski is a family physician. This piece was originally published in Pulse — voices from the heart of medicine, and is reprinted with permission. 

Prev

Stop with the curbside consultations. They don't help anyone.

January 29, 2015 Kevin 15
…
Next

Inactivity kills more than obesity: Let's go beyond the headline

January 29, 2015 Kevin 0
…

Tagged as: Palliative Care

Post navigation

< Previous Post
Stop with the curbside consultations. They don't help anyone.
Next Post >
Inactivity kills more than obesity: Let's go beyond the headline

ADVERTISEMENT

More by Mitch Kaminski, MD

  • The trust patients show you is an honor

    Mitch Kaminski, MD
  • a desk with keyboard and ipad with the kevinmd logo

    I’m grateful that I’ve been given a second chance

    Mitch Kaminski, MD

More in Physician

  • Love, birds, and fries: a story of innocence and connection

    Dr. Damane Zehra
  • The overlooked power of billing in primary care

    Jerina Gani, MD, MPH
  • Why pain doctors face unfair scrutiny and harsh penalties in California

    Kayvan Haddadan, MD
  • Why physicians need a place to fall apart

    Annia Raja, PhD
  • The joy of teaching medicine through life’s toughest challenges

    John F. McGeehan, MD
  • Why health care can’t survive on no-fail missions alone

    Wendy Schofer, MD
  • Most Popular

  • Past Week

    • Why transgender health care needs urgent reform and inclusive practices

      Angela Rodriguez, MD | Conditions
    • New student loan caps could shut low-income students out of medicine

      Tom Phan, MD | Physician
    • Why pain doctors face unfair scrutiny and harsh penalties in California

      Kayvan Haddadan, MD | Physician
    • What street medicine taught me about healing

      Alina Kang | Education
    • The silent cost of choosing personalization over privacy in health care

      Dr. Giriraj Tosh Purohit | Tech
    • A new telehealth model for adolescent obesity [PODCAST]

      The Podcast by KevinMD | Podcast
  • Past 6 Months

    • Why transgender health care needs urgent reform and inclusive practices

      Angela Rodriguez, MD | Conditions
    • Why primary care doctors are drowning in debt despite saving lives

      John Wei, MD | Physician
    • Confessions of a lipidologist in recovery: the infection we’ve ignored for 40 years

      Larry Kaskel, MD | Conditions
    • A physician employment agreement term that often tricks physicians

      Dennis Hursh, Esq | Finance
    • Why taxing remittances harms families and global health care

      Dalia Saha, MD | Finance
    • mRNA post vaccination syndrome: Is it real?

      Harry Oken, MD | Conditions
  • Recent Posts

    • A new telehealth model for adolescent obesity [PODCAST]

      The Podcast by KevinMD | Podcast
    • Love, birds, and fries: a story of innocence and connection

      Dr. Damane Zehra | Physician
    • Why the future of cancer prevention starts from within

      Raphael E. Cuomo, PhD | Conditions
    • A new approach to South Asian heart health [PODCAST]

      The Podcast by KevinMD | Podcast
    • Private practice employment agreements: What happens if private equity swoops in?

      Dennis Hursh, Esq | Conditions
    • Inside the final hours of a failed lung transplant

      Jonathan Friedman, RN | Conditions

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

View 5 Comments >

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

ADVERTISEMENT

  • Most Popular

  • Past Week

    • Why transgender health care needs urgent reform and inclusive practices

      Angela Rodriguez, MD | Conditions
    • New student loan caps could shut low-income students out of medicine

      Tom Phan, MD | Physician
    • Why pain doctors face unfair scrutiny and harsh penalties in California

      Kayvan Haddadan, MD | Physician
    • What street medicine taught me about healing

      Alina Kang | Education
    • The silent cost of choosing personalization over privacy in health care

      Dr. Giriraj Tosh Purohit | Tech
    • A new telehealth model for adolescent obesity [PODCAST]

      The Podcast by KevinMD | Podcast
  • Past 6 Months

    • Why transgender health care needs urgent reform and inclusive practices

      Angela Rodriguez, MD | Conditions
    • Why primary care doctors are drowning in debt despite saving lives

      John Wei, MD | Physician
    • Confessions of a lipidologist in recovery: the infection we’ve ignored for 40 years

      Larry Kaskel, MD | Conditions
    • A physician employment agreement term that often tricks physicians

      Dennis Hursh, Esq | Finance
    • Why taxing remittances harms families and global health care

      Dalia Saha, MD | Finance
    • mRNA post vaccination syndrome: Is it real?

      Harry Oken, MD | Conditions
  • Recent Posts

    • A new telehealth model for adolescent obesity [PODCAST]

      The Podcast by KevinMD | Podcast
    • Love, birds, and fries: a story of innocence and connection

      Dr. Damane Zehra | Physician
    • Why the future of cancer prevention starts from within

      Raphael E. Cuomo, PhD | Conditions
    • A new approach to South Asian heart health [PODCAST]

      The Podcast by KevinMD | Podcast
    • Private practice employment agreements: What happens if private equity swoops in?

      Dennis Hursh, Esq | Conditions
    • Inside the final hours of a failed lung transplant

      Jonathan Friedman, RN | Conditions

MedPage Today Professional

An Everyday Health Property Medpage Today
  • Terms of Use | Disclaimer
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

We forget to ask patients what their goals are
5 comments

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...