Skip to content
  • About
  • Contact
  • Contribute
  • What Physicians Say
  • My Book
  • Careers
  • Podcast
  • Speaking
KevinMD.com — Social media's leading physician voice
  • All
  • Physician
  • Burnout
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • All
  • Physician
  • Burnout
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
    • All
    • Physician
    • Burnout
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • About
    • Contact
    • Contribute
    • What Physicians Say
    • My Book
    • Careers
    • Podcast
    • Speaking
KevinMD.com — Social media's leading physician voice
  • All
  • Physician
  • Burnout
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
    • All
    • Physician
    • Burnout
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • About
    • Contact
    • Contribute
    • What Physicians Say
    • My Book
    • Careers
    • Podcast
    • Speaking
  • About Kevin Pho, MD, Founder of KevinMD
  • Aging and dementia: what physicians say, in their own words
  • Artificial intelligence: what physicians say, in their own words
  • Be heard on social media’s leading physician voice
  • Cancer: what physicians say, in their own words
  • Children’s health: what pediatricians say, in their own words
  • Contact Kevin
  • COVID-19: what physicians wrote as it happened
  • Custom enhanced author page pricing
  • Diabetes and obesity: what physicians say, in their own words
  • Direct primary care: what physicians say, in their own words
  • DMCA Policy
  • End of life: what physicians say, in their own words
  • Establishing, Managing, and Protecting Your Online Reputation: A Social Media Guide for Physicians and Medical Practices
  • GLP-1 drugs: what physicians say about Ozempic and its successors, in their own words
  • Heart disease: what physicians say, in their own words
  • Immigration and medicine: what physicians say about immigrant doctors and immigrant patients, in their own words
  • KevinMD influencer opportunities
  • Medical errors: what physicians say, in their own words
  • Medical ethics: what physicians say, in their own words
  • Medical malpractice: what physicians say, in their own words
  • Medical school: what students and physicians say, in their own words
  • Mental health: what psychiatrists and physicians say, in their own words
  • Nursing: what nurses and physicians say, in their own words
  • Opinion and commentary by KevinMD
  • Opioids: what physicians and pain patients say, in their own words
  • Physician burnout speakers to keynote your conference
  • Physician burnout: what physicians say, in their own words
  • Physician Coaching by KevinMD
  • Physician keynote speaker: Kevin Pho, MD
  • Physician personal finance: what physicians say about their own money, in their own words
  • Physician Speaking by KevinMD: a boutique speakers bureau
  • Physician suicide: what physicians say, in their own words
  • Physicians and administrators: what physicians say about who runs medicine, in their own words
  • Primary care physician in Nashua, NH | Kevin Pho, MD
  • Primary care: what physicians say, in their own words
  • Prior authorization: what physicians say, in their own words
  • Privacy Policy
  • Private equity and corporate medicine: what physicians say, in their own words
  • Race and medicine: what physicians say, in their own words
  • Recommended services by KevinMD
  • Residency: what residents and attendings say, in their own words
  • Scope of practice: what physicians, nurse practitioners, and PAs say, in their own words
  • Subscribe to the KevinMD enhanced author page
  • Subscribe to the newsletter
  • Surgeons and surgery: what surgeons say, in their own words
  • Take-home messages: what physicians say when asked to leave one
  • Terms of Use Agreement
  • Thank you for subscribing to KevinMD
  • Thank you for upgrading to the KevinMD enhanced author page
  • The electronic health record: what physicians say, in their own words
  • Vaccines: what physicians say, in their own words
  • Violence against health care workers: what physicians and nurses say, in their own words
  • What physicians say: the KevinMD records
  • Women in medicine: what women physicians say, in their own words
  • Women’s health: what physicians say, in their own words

Terminal dehydration: A gentle way to die?

Christopher Stookey, MD
Physician
October 7, 2015
Share
Tweet
Share

My father suffered a massive stroke on a September night not long after his 83rd birthday. It left him conscious yet unable to talk and communicate, unable to swallow and almost completely paralyzed.

After numerous scans and other tests, his doctors determined that there was no chance of recovery. My father would never walk, talk, or swallow food again. With nothing more to do for him in the hospital, we — my mother, my sister, and I — needed to decide what to do next. The social worker on the case encouraged us to put Dad in a nursing home. A gastric feeding tube could be put in, and he could be fed and kept alive that way. Indefinitely.

We knew this was not what Dad would want. Although he could no longer communicate his wishes, his advance directive gave us guidance. “It is my desire that measures not be taken to prolong my life if the results of such efforts will not leave me in a condition where I will be able to enjoy a reasonable quality of life.”

Before the stroke, Dad had bluntly told us — as well as his family doctor — that he would rather die than be put in a nursing home. He’d been an extremely active and productive person all his life, and he felt every day should be marked by some accomplishment. Inactivity was anathema to him.   When I was living at home, he used to burst into my bedroom if I slept in past 7:00 o’clock. “Out of bed!” he would say, throwing open the blinds. “You’re wasting daylight!”

One evening after dinner, I recall Dad talking to me about his mother. She’d died a slow, agonizing death due to cancer, and my dad was thinking back on those hard days. Looking me squarely in the eyes, he said: “If I ever get like that, I want you to give me hemlock.”

Hemlock. It was his code word for assisted suicide.

With the encouragement of my dad’s family doctor, we decided to bring Dad home to hospice. We would forego the feeding tube. No food, no water, no IVs. In other words, we were bringing him home to die. Living in California, “hemlock” was not an option. My dad would die instead of dehydration.

Voluntary death by dehydration — also known as “terminal dehydration” or “TD” — has its advocates in the death-with-dignity community. Even in states where doctor-assisted suicide is not available, a terminally ill patient still has the right to hasten death by refusing all food and water.

TD advocates assert that death by dehydration is a relatively gentle way to die. As dehydration sets in, the body releases certain chemicals (“esters” and “ketones”) that have the effect of dulling the senses. These chemicals act like an anesthetic, and the dying patient feels little pain.

In a poll of Oregon hospice nurses asked to rank “death experiences” on a scale of 0 (a very bad death) to 9 (a very good death), the nurses gave terminal dehydration an 8.

For my father, dying would take seven days. I stayed with him the whole time. The hospice team was superb: caring, attentive, and knowledgeable.

I wish I could say he died a gentle death. But I’m not so sure.

Over the seven days it took him to die, I watched as my father seemed to become increasingly restless. Despite the stroke, he was able to move his left arm a bit, and beginning on day two, he started reaching with the arm, repeatedly pushing against the bed mattress and the bed rail. I took this as a sign of agitation and discomfort, though I will never know for sure.

ADVERTISEMENT

There were other suggestions of discomfort: rapid breathing, mild groaning, and sweating. Both the hospice nurse and I were giving my father morphine for pain and Ativan for sedation. We were giving the medications around the clock, but as the days progressed, we needed to give higher and higher doses. By day four, we were far exceeding hospice protocol doses. Yet the signs of agitation were still there.

Days five and six were the hardest. The arm reaching, though weakened, continued. At times, my dad’s breathing rate topped 40 breaths a minute (three to four times normal). Triple doses of morphine didn’t seem to help much.

Finally — mercifully — he began to lose consciousness toward the evening of day six. The “esters” and “ketones” were finally kicking in.

As I sat at the bedside watching him finally at peace, I had to ask: Why did we have to wait six days to reach this point? My father was on a sure path to death when we decided to withhold fluids. Why stretch it out over seven days? Without a doubt, the path we’d taken was far preferable to a drawn-out death in the ICU or in a nursing home. Nevertheless, I wish doctor-assisted death had been available to my father. Despite the observations of hospice nurses in Oregon, I believe it is what he would have wanted.

He died at 10:27 p.m. on the 7th night. My mother and I were at the bedside. He took one final breath in but did not exhale. Then, he was still. I wish I could say he looked at peace in death, but he did not. There was a disturbing look on his face, with sunken eyes and a half-open mouth outlined by blue lips. To me, it was a look of perplexity, a look of bewilderment. It was a look that would haunt me for the rest of my life. To me, it was a look that said:

“Where, Son — where my doctor son — was my hemlock?”

Christopher Stookey is an emergency physician and author of Do Go Gentle, Bringing My Father Home to Die With Dignity After a Devastating Stroke.

Prev

Being a musician made him a more compassionate physician

October 7, 2015 Kevin 0
…
Next

Blame the system, not Martin Shkreli

October 8, 2015 Kevin 9
…

Tagged as: Palliative Care

< Previous Post
Being a musician made him a more compassionate physician
Next Post >
Blame the system, not Martin Shkreli

 

ADVERTISEMENT

More by Christopher Stookey, MD

  • Pain tolerance: A story of two patients

    Christopher Stookey, MD

Related Posts

  • Doctors die. But the good ones leave a legacy.

    Jaime B. Gerber, MD
  • Physician Suicide Awareness Day: Where are the patients? 

    Jennifer M. Sweeney
  • What it is like to watch someone die

    Casey Krickus
  • A physician’s addiction to social media

    Amanda Xi, MD
  • This physician is burned out. But not for the reason you think.

    Anonymous
  • Doctor-patient relationships would die without this one thing

    David Penner

More in Physician

  • 3 reforms to counter wellness influencers in practice

    Farid Sabet-Sharghi, MD
  • Choosing a limb lengthening surgeon requires accountability

    Hrayr Basmajian, MD
  • How to reassure patients: 5 steps beyond normal tests

    Devina Maya Wadhwa, MD
  • Setting boundaries as a physician doesn’t mean caring less

    Jerina Gani, MD, MPH
  • How emergency medicine decision making works under pressure

    Geoffrey Mount Varner, MD, MPH
  • Why I stay in emergency medicine: a dancer at nearly 100

    Howie Mell, MD, MPH
  • Most Popular

  • Past Week

    • Retirement isn’t the end of medicine, it’s a second act [PODCAST]

      The Podcast by KevinMD | Podcast
    • The conflict of interest that discloses as nothing

      Martha Rosenberg | Medications
    • 4 fibromyalgia myths the current evidence doesn’t support

      Kayvan Haddadan, MD | Conditions and Diseases
    • Why exhaustion can make you see things that aren’t there [PODCAST]

      The Podcast by KevinMD | Podcast
    • AI governance in health care has to reach the exam room

      Amanda Heidemann, MD | Health Technology
    • The Pennsylvania measles outbreak and the cost of forgetting

      Christine King, CRNA | Conditions and Diseases
  • Past 6 Months

    • Why CDC opioid guidelines get the overdose data wrong

      Richard A. Lawhern, PhD | Conditions and Diseases
    • Retirement isn’t the end of medicine, it’s a second act [PODCAST]

      The Podcast by KevinMD | Podcast
    • Sensory processing in autism and the brain’s volume control

      Josette Pelatan, PhD | Conditions and Diseases
    • What maternity care deserts cost a town

      Manisha Kaliaperumal | Health Policy
    • Why medicine needs a national physician license now

      Vaishali Popat, MD, MPH | Physician
    • A cold cost $945. The cost of primary care is broken.

      Susan Newman, MD | Physician
  • Recent Posts

    • Why exhaustion can make you see things that aren’t there [PODCAST]

      The Podcast by KevinMD | Podcast
    • 3 reforms to counter wellness influencers in practice

      Farid Sabet-Sharghi, MD | Physician
    • Shift work and circadian rhythms shape the 24/7 workplace

      Deepak Gupta, MD | Conditions and Diseases
    • Paid for twice

      Physicians paid for G2211 twice. Most never bill it.

      Michael Duben, MD | Physician Finance
    • The next child

      Medicaid managed care and the case for mutual stewardship

      Steven Merahn, MD | Health Policy
    • Choosing a limb lengthening surgeon requires accountability

      Hrayr Basmajian, MD | Physician

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

View 7 Comments >

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

  • Most Popular

  • Past Week

    • Retirement isn’t the end of medicine, it’s a second act [PODCAST]

      The Podcast by KevinMD | Podcast
    • The conflict of interest that discloses as nothing

      Martha Rosenberg | Medications
    • 4 fibromyalgia myths the current evidence doesn’t support

      Kayvan Haddadan, MD | Conditions and Diseases
    • Why exhaustion can make you see things that aren’t there [PODCAST]

      The Podcast by KevinMD | Podcast
    • AI governance in health care has to reach the exam room

      Amanda Heidemann, MD | Health Technology
    • The Pennsylvania measles outbreak and the cost of forgetting

      Christine King, CRNA | Conditions and Diseases
  • Past 6 Months

    • Why CDC opioid guidelines get the overdose data wrong

      Richard A. Lawhern, PhD | Conditions and Diseases
    • Retirement isn’t the end of medicine, it’s a second act [PODCAST]

      The Podcast by KevinMD | Podcast
    • Sensory processing in autism and the brain’s volume control

      Josette Pelatan, PhD | Conditions and Diseases
    • What maternity care deserts cost a town

      Manisha Kaliaperumal | Health Policy
    • Why medicine needs a national physician license now

      Vaishali Popat, MD, MPH | Physician
    • A cold cost $945. The cost of primary care is broken.

      Susan Newman, MD | Physician
  • Recent Posts

    • Why exhaustion can make you see things that aren’t there [PODCAST]

      The Podcast by KevinMD | Podcast
    • 3 reforms to counter wellness influencers in practice

      Farid Sabet-Sharghi, MD | Physician
    • Shift work and circadian rhythms shape the 24/7 workplace

      Deepak Gupta, MD | Conditions and Diseases
    • Paid for twice

      Physicians paid for G2211 twice. Most never bill it.

      Michael Duben, MD | Physician Finance
    • The next child

      Medicaid managed care and the case for mutual stewardship

      Steven Merahn, MD | Health Policy
    • Choosing a limb lengthening surgeon requires accountability

      Hrayr Basmajian, MD | Physician

Copyright © 2026 KevinMD.com | Powered by Astra WordPress Theme

  • Terms of Use Agreement
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

Terminal dehydration: A gentle way to die?
7 comments

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...