Skip to content
  • About
  • Contact
  • Contribute
  • Book
  • Careers
  • Podcast
  • Recommended
  • Speaking
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking

Navigating the holidays when you’re a caregiver for a loved one living with dementia

Miles J. Varn, MD
Conditions
December 14, 2019
Share
Tweet
Share

The holidays bring friends and family together for celebrations and the chance to reconnect with people we may not see regularly during the rest of the year. But for people who are the caregivers for a parent, spouse, partner, or other family member who is living with Alzheimer’s disease or other forms of dementia, the holidays can be more complicated.

Beyond the stress of continuing to provide care during an especially busy time of year and striving to maintain consistency and calm for the person with dementia to minimize the possibility of increased agitation, anxiety and confusion, caregivers are often faced with surprise and concern from family members and others about the progression of dementia symptoms. This can, unfortunately, lead to tense conversations and friction between family members.

It’s a scenario that is increasingly common as the U.S. population ages and the number of people who are living with dementia grows. According to statistics gathered by the Alzheimer’s Association, in 2019 an estimated 5.8 million Americans are currently living with Alzheimer’s disease and a new study from the Centers for Disease Control and Prevention projects that the number of people affected by Alzheimer’s disease and related dementias will reach 13.9 million, nearly 3.3 percent of the country’s population, in 2060.

Living in the new normal

Although family members and others who don’t have frequent contact with the person with dementia may be concerned that the progression of symptoms means that the caregiver isn’t doing enough to ensure that the disease is being adequately managed, most often that’s not the case. In some cases, caregivers aren’t fully aware of how much the disease has progressed because they are immersed in a new normal — an intense day-to-day life in which they are focused on providing care, scheduling and attending physician’s appointments, refilling prescriptions and managing the many other tasks the person with dementia can no longer handle, such as paying bills, housekeeping, shopping, preparing food and caring for the home. These extra responsibilities are often added on to their own family and work obligations.

The key to preventing family members’ concern and criticism is to open and maintain lines of communication between caregivers and family members. While some caregivers are loath to share these details out of respect for the person with dementia’s privacy, keeping family members apprised of the progression of the disease is key. While this may seem at first glance to be relatively simple, it can be another task added to the to-do list of an already overtaxed caregiver. In addition, family dynamics are often complex, further complicating this type of sensitive communication.

An objective source of support

Geriatric care managers, nurse case managers, and other objective advisors can facilitate communication and provide the other types of support that caregivers, patients, and families need as they live with the many ways that a dementia diagnosis impacts their lives. These professionals serve as an objective resource and problem solver, providing a wide range of types of support that may include:

  • Bringing family members together and explaining the dementia diagnosis, possible prognosis, and treatment options.
  • Connecting patients with physicians to manage not only their dementia but also any other chronic conditions or serious diseases they face and scheduling and attending appointments with the patient and caregiver to take notes and ask questions.
  • Developing and communicating action plans to deal with any health or psychological crises that may arise as a result of the progression of dementia.
  • Reviewing and consolidating medical records so that all treating physicians have a complete understanding of the patient’s current health issues and health history.
  • Researching treatment options, medications, and, if needed, care facilities.
  • Assisting with the creation or updating of powers of attorney, advance directives, and other key documents that caregivers need.

The final piece of the support strategy is one that’s often overlooked — caring for the caregiver. Care managers and advisors also provide much-needed support to caregivers who often put their own health needs on the back burner because they’re overwhelmed with the needs of their loved one. This support can take many forms, including connecting caregivers to respite care resources and community support groups and scheduling regular health care and screening appointments such as annual physicals and recommended cancer screenings.

Miles J. Varn is chief executive officer, PinnacleCare, and can be reached on LinkedIn.

Image credit: Shutterstock.com

Prev

How to KonMari your academic life

December 14, 2019 Kevin 0
…
Next

What I learned from starting medical school in January

December 14, 2019 Kevin 0
…

Tagged as: Geriatrics

Post navigation

< Previous Post
How to KonMari your academic life
Next Post >
What I learned from starting medical school in January

ADVERTISEMENT

More by Miles J. Varn, MD

  • Why sharing your complete medical history with your clinicians is important

    Miles J. Varn, MD
  • Managing key risk factors may lower your dementia risk

    Miles J. Varn, MD
  • Caregiver? Learn how to support older relatives at doctor’s appointments.

    Miles J. Varn, MD

Related Posts

  • Loved ones: You’re with us, too

    Nicole Russell
  • Dementia patients want effective drugs. How will the FDA respond?

    Ron Louie, MD
  • Studying to be a doctor, while living as a patient

    Claudia Martinez
  • Protect yourself and your standard of living as a nurse

    Anne Naulty, RN
  • Health literacy: the missing piece to caregiver support and empowerment

    Sandra Vamos, EdD and Deanna Lernihan, MPH
  • Are we living in a medical Zombie Land?

    David Penner

More in Conditions

  • Why medicine must stop worshipping burnout and start valuing humanity

    Sarah White, APRN
  • Why perinatal mental health is the top cause of maternal death in the U.S.

    Sheila Noon
  • A world without vaccines: What history teaches us about public health

    Drew Remignanti, MD, MPH
  • Unraveling the mystery behind one of the most dangerous pregnancy complications: preeclampsia

    Thomas McElrath, MD, PhD and Kara Rood, MD
  • How community paramedicine impacts Indigenous elders

    Noah Weinberg
  • Pain is more than physical: the story your body is trying to tell

    Katie Hatt, DO
  • Most Popular

  • Past Week

    • Why are medical students turning away from primary care? [PODCAST]

      The Podcast by KevinMD | Podcast
    • Here’s what providers really need in a modern EHR

      Laura Kohlhagen, MD, MBA | Tech
    • Why “do no harm” might be harming modern medicine

      Sabooh S. Mubbashar, MD | Physician
    • How community paramedicine impacts Indigenous elders

      Noah Weinberg | Conditions
    • Why doctors are reclaiming control from burnout culture

      Maureen Gibbons, MD | Physician
    • Addressing U.S. vaccine inequities in vulnerable communities [PODCAST]

      The Podcast by KevinMD | Podcast
  • Past 6 Months

    • Why tracking cognitive load could save doctors and patients

      Hiba Fatima Hamid | Education
    • Why are medical students turning away from primary care? [PODCAST]

      The Podcast by KevinMD | Podcast
    • Why “do no harm” might be harming modern medicine

      Sabooh S. Mubbashar, MD | Physician
    • Here’s what providers really need in a modern EHR

      Laura Kohlhagen, MD, MBA | Tech
    • What the world must learn from the life and death of Hind Rajab

      Saba Qaiser, RN | Conditions
    • How medical culture hides burnout in plain sight

      Marco Benítez | Conditions
  • Recent Posts

    • Addressing U.S. vaccine inequities in vulnerable communities [PODCAST]

      The Podcast by KevinMD | Podcast
    • Why Canada is losing its skilled immigrant doctors

      Olumuyiwa Bamgbade, MD | Physician
    • Why doctors are reclaiming control from burnout culture

      Maureen Gibbons, MD | Physician
    • Would The Pitts’ Dr. Robby Robinavitch welcome a new colleague? Yes. Especially if their initials were AI.

      Gabe Jones, MBA | Tech
    • Why medicine must stop worshipping burnout and start valuing humanity

      Sarah White, APRN | Conditions
    • Why screening for diseases you might have can backfire

      Andy Lazris, MD and Alan Roth, DO | Physician

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

Leave a Comment

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

  • Most Popular

  • Past Week

    • Why are medical students turning away from primary care? [PODCAST]

      The Podcast by KevinMD | Podcast
    • Here’s what providers really need in a modern EHR

      Laura Kohlhagen, MD, MBA | Tech
    • Why “do no harm” might be harming modern medicine

      Sabooh S. Mubbashar, MD | Physician
    • How community paramedicine impacts Indigenous elders

      Noah Weinberg | Conditions
    • Why doctors are reclaiming control from burnout culture

      Maureen Gibbons, MD | Physician
    • Addressing U.S. vaccine inequities in vulnerable communities [PODCAST]

      The Podcast by KevinMD | Podcast
  • Past 6 Months

    • Why tracking cognitive load could save doctors and patients

      Hiba Fatima Hamid | Education
    • Why are medical students turning away from primary care? [PODCAST]

      The Podcast by KevinMD | Podcast
    • Why “do no harm” might be harming modern medicine

      Sabooh S. Mubbashar, MD | Physician
    • Here’s what providers really need in a modern EHR

      Laura Kohlhagen, MD, MBA | Tech
    • What the world must learn from the life and death of Hind Rajab

      Saba Qaiser, RN | Conditions
    • How medical culture hides burnout in plain sight

      Marco Benítez | Conditions
  • Recent Posts

    • Addressing U.S. vaccine inequities in vulnerable communities [PODCAST]

      The Podcast by KevinMD | Podcast
    • Why Canada is losing its skilled immigrant doctors

      Olumuyiwa Bamgbade, MD | Physician
    • Why doctors are reclaiming control from burnout culture

      Maureen Gibbons, MD | Physician
    • Would The Pitts’ Dr. Robby Robinavitch welcome a new colleague? Yes. Especially if their initials were AI.

      Gabe Jones, MBA | Tech
    • Why medicine must stop worshipping burnout and start valuing humanity

      Sarah White, APRN | Conditions
    • Why screening for diseases you might have can backfire

      Andy Lazris, MD and Alan Roth, DO | Physician

MedPage Today Professional

An Everyday Health Property Medpage Today
  • Terms of Use | Disclaimer
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

Leave a Comment

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...