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The hidden cost of long-term care policy for family caregivers

Gerald Kuo
Conditions
March 18, 2026
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Every spring, millions of families across Chinese communities around the world travel back to their hometowns for Qingming Festival, often translated as “Tomb-Sweeping Day.” It is a centuries-old tradition of honoring ancestors. Highways fill with traffic. Families gather at gravesites to clean tombstones, burn incense, and leave offerings of food. On the surface, Qingming is about remembering the dead. But in many homes, the holiday quietly exposes a different reality: the exhausting work of caring for the living. After the cemetery visits, families gather around dining tables. That is often when relatives begin to notice things they had not seen before. The pill organizers stacked across the kitchen counter. The slow, hollow fatigue in the eyes of the primary caregiver, usually a daughter or an aging spouse. The subtle confusion of a parent whose dementia has worsened since the last family gathering. What was meant to be a ritual of remembrance becomes an unexpected moment of recognition. Families begin to see how much one person has been carrying alone.

In Taiwan, where I work in community-based elder care, this scene is becoming increasingly common. Taiwan is one of the fastest-aging societies in the world. Government spending on long-term care has expanded dramatically in recent years. Community care stations are increasing. Programs and services continue to grow. From a policy perspective, the system appears to be expanding successfully. But anyone who has spent time inside a patient’s living room knows that what happens on a government spreadsheet often looks very different from what happens inside a home. In health care management, Harvard Business School professor Michael Porter proposed a simple equation for value:

Value = Quality of outcomes / Cost of inputs.

A system creates value when outcomes improve without endlessly increasing costs. Governments provide funding. Hospitals and community clinics deliver medical care. In theory, these inputs move through a care process that produces better health and dignity for older adults. But elder care exposes a critical flaw in how this formula is applied. The equation assumes that the cost of care is primarily financial and that the health care system controls the process. In reality, the moment an older adult leaves the hospital, the formal system’s role largely ends. The responsibility shifts almost instantly to the family. Doctors complete treatment plans. Health systems close the case. Policy reports record another successful discharge. And then the family becomes the final quality-control layer of the entire system.

Except unlike a hospital ward, a family home has no rotating shifts, no staffing ratios, and no emergency backup teams. Care happens at the kitchen table. A daughter adjusts medications while cooking dinner. A son uses his savings to pay for part-time home assistance. A spouse wakes up at 2:00 a.m. to calm a confused partner wandering through the house. None of this appears in policy reports. Public officials often rely on key performance indicators, or KPIs, to measure the success of long-term care systems. They track the number of home visits, the number of beds available, the number of services delivered. But the KPIs that families track look very different. Families count sleepless nights. They calculate how long their savings will last. They measure the quiet erosion of their own health, energy, and emotional resilience.

In business strategy, frameworks such as Robert Kaplan and David Norton’s Balanced Scorecard emphasize that a system cannot be judged by a single metric. Financial performance must be balanced with user experience, internal processes, and long-term sustainability. When one dimension collapses, the entire system becomes unstable. Yet long-term care policy often overlooks one critical dimension entirely: the capacity of family caregivers. We expand services and infrastructure, but we treat the caregiver’s time, income, and emotional strength as if they were infinite, free resources. A long-term care system that proudly reports high performance metrics while quietly pushing families toward exhaustion is not creating value. It is merely shifting the cost. Qingming Festival reminds us to honor those who came before us. But perhaps it should also remind us of something else: A society’s true compassion is revealed not only in how it remembers the dead, but in how it supports those who are still alive, and those who care for them. Behind every long-term care statistic is a light still on in someone’s home late at night. And behind that light is usually a family member trying to hold the system together in the dark.

Gerald Kuo, a doctoral student in the Graduate Institute of Business Administration at Fu Jen Catholic University in Taiwan, specializes in health care management, long-term care systems, AI governance in clinical and social care settings, and elder care policy. He is affiliated with the Home Health Care Charity Association and maintains a professional presence on Facebook, where he shares updates on research and community work. Kuo helps operate a day-care center for older adults, working closely with families, nurses, and community physicians. His research and practical efforts focus on reducing administrative strain on clinicians, strengthening continuity and quality of elder care, and developing sustainable service models through data, technology, and cross-disciplinary collaboration. He is particularly interested in how emerging AI tools can support aging clinical workforces, enhance care delivery, and build greater trust between health systems and the public.

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