Patients and caregivers writing on KevinMD about the experience of illness and the health care system from the other side of the exam table: navigating care, the doctor-patient relationship, being heard, and what patients want physicians to understand. Physicians who have become patients write here too. For the record of what pain patients and physicians have said to each other about opioids and chronic pain since 2007, with patient authors cited at the same weight as physicians, see Opioids: what physicians and pain patients say, in their own words. For what patients, families, and physicians have said about dying, hospice, and the decisions families face at the end of life, see End of life: what physicians say, in their own words. For what women and the physicians who treat them have said about pregnancy, menopause, and the conditions dismissed for years, see Women's health: what physicians say, in their own words. For what physicians have said about consent, honesty, and who decides, see Medical ethics: what physicians say, in their own words.
The approval of dabigatran (Pradaxa) has been long awaited in the cardiology community. Although just about everyone agrees that a good alternative to warfarin is highly desirable, there are many remaining questions about the drug as it prepares to enter the marketplace.
Here are a few questions raised by electrophysiologist John Mandrola on his blog:
In the RE-LY trial, dabigatran was used twice daily. When not symptomatic, patients often …
“A true friend walks in when everyone else walks out.”
I read that on a magnet on my friend’s refrigerator recently and the simple power of that saying brought me to tears. I have learned that lesson of true friends since my son’s diagnosis of cancer in 2007.
Anyone who has faced a serious illness as a patient or a caregiver knows that you quickly learn who your …
You are a new parent. Your infant is gassy, fussy, spitty, and does not sleep much. In other words your infant is a normal baby. You are stressed, and like any good parent, you want to fix what “ails” your infant. As you stroll down the baby aisle at the grocery store, you see labels that tout words like gentle, comfort, and restful. Formula manufacturers are brilliant. They know their …
There has been an irresistible urge for people — doctors, public health officers, politicians, journalists, the usual pundits — to compare adherence to HIV treatment in resource-rich vs. resource-limited setting.
I suspect this is because the whole issue got off to a famously bad start in 2001, when then-head of the U.S. Agency for International Development (USAID) Andrew Natsios said in an interview with the Boston Globe that Africans,
Childhood obesity is a problem. It is a function of the foods children eat both at home and at school. The people responsible for feeding children are parents not advertisers. Running the line that it is all to do with advertising allows adults to run a “Johnny told me to” line, which would not be accepted as an excuse from a child.
The year after I finished my emergency medicine residency, I had all four of my wisdom teeth pulled.
Afterwards, I looked as if I had taken several punches to my face. My jaw was swollen, my skin a cornucopia of muddied blues, purples, greens, yellows and reds. If people didn’t know better, I told my husband with a laugh, they might think that I’d …
It is not until about eight weeks of age that an infant has a fully developed capacity for mutual gaze.
Then a baby looks directly into his mother’s eyes, while she, in turn, reflects back this loving gaze, cooing softly in response to her baby’s earliest communication. When a mother looks at a baby in a way that communicates with him, not with words but with feelings, “I understand you,” he …
“Facebook is for the living, not the dying” – Regina Holliday
It finally happened. The day my Facebook feed included information about a friend’s illness. This is the photograph my friend Matt posted to his feed. Normally I don’t play that close attention to everything in there, but this caught my eye immediately.
When we talked on the phone, I understood that this …
I mentioned having a migraine this past weekend, and was somewhat surprised by how many people commented and wrote to me, surprised that a doctor, let alone a neurologist, would actually get migraines.
What’s up with that?
I know this may be hard to believe, but we get health problems too.
I see this odd view surprisingly often. People who somehow expect us to be beyond the health concerns of non-doctors.
Although much has been written about how red wine in moderation can be good for your heart and your brain, I would like you to reconsider. It’s important to understand that the studies supporting this claim are “observational.” This means they were conducted through self-reported questionnaires inquiring into the drinking habits of a large group of …
How often do you see your doctor? Once a year? Every 6 months? Never? Most of you are pretty healthy and only show up for screening physical exams or aches and pains. Some of you may have more health problems and come more frequently.
What if you had diabetes, coronary disease, hypertension, high cholesterol, and sleep apnea, but no symptoms to indicate any …
As a family physician, I’ve found that patients’ individual health beliefs often play a big role in important decisions such as starting a new medication or undergoing an invasive test or procedure.
Some patients were more willing to endure potentially risky procedures in order to learn their diagnosis quicker, for example, while others preferred “watchful waiting,” or monitoring symptoms that were unlikely to be a sign of anything serious. Unfortunately, in …
Obesity is now increasingly recognized as the “natural” consequence of societal changes that have occurred over the past decades to foster an increasingly obesogenic environment.
Yet, rather than focus on the root causes of these societal drivers of obesity, governments apparently prefer to make obesity prevention a personal matter, with a strong emphasis on trying to get individuals to change their lifestyles.
It is clearly far easier to simply tell people to …
On eBay, you can buy a fetal ultrasound scrapbook that has a poem on the first page that begins, “I loved you from the start.” It comes with Care Bear stickers. One of them is a pregnant rabbit eating …
She has Alzheimer’s Disease and now it has progressed to that inevitable stage of the dementing process where she is paranoid, agitated, and confused. She fidgets and paces and walks all day. She gets out of bed multiple times each night. She has gone out the door into the back yard and tried to escape to the street, wearing only her night clothes. Sometimes …
I recently completed a long stretch of night shifts in the emergency department. I have done a myriad of things – spent over twenty minutes trying to convince a patient to take a pill that she needed to treat her psychosis, sutured a facial laceration for a young gentleman who kept insisting that he wanted to leave AMA (against medical advice) and just place a …
An excerpt from Saying Goodbye: How Families Can Find Renewal Through Loss. Published by arrangement with Berkley, a member of Penguin Group (USA), Inc. Copyright(c)2011.
by Barbara Okun, PhD and Joseph Nowinski, PhD
One of the first tasks facing families upon receiving a diagnosis is to learn more about the illness or disorder that faces them. There are many ways to do this: by visiting Internet web sites; by …
Advocacy is an important and vital skill for any young adult, but young adults with cerebral palsy and other disabilities have a bit of a unique need for developing the skills. I would argue that the skills needed for self advocacy need to have the opportunity to develop in small ways when a child becomes a toddler.
For me, the roots of my advocacy were planted in the years prior to …
Doctor D has dodged some questions in his career, but he has also been on the receiving end of some non-answers and can attest to their usefulness on the patient’s side of things.
How can a doctor dodging a question help the patient?
Let me tell you a story:
Doctor D’s son Little D was born with a very rare genetic condition which required he see an expert at a big university. As …
It finally happened. The day my Facebook feed included information about a friend’s illness. This is the photograph my friend Matt posted to his feed. Normally I don’t play that close attention to everything in there, but this caught my eye immediately.
