Navigating a rare neurodegenerative disorder as mother and daughter
Before her diagnosis, my mom was extremely active and healthy. She loved bird watching, walking, and volunteering at her church and its school. So in 2013, when she began experiencing symptoms like incontinence and difficulties with walking, we knew that something wasn’t right.
We faced many potential explanations for my mom’s symptoms before receiving her diagnosis. I remember the doctors testing her for numerous diseases like diabetes and multiple sclerosis (MS), …
