Skip to content
  • About
  • Contact
  • Contribute
  • Book
  • Careers
  • Podcast
  • Recommended
  • Speaking
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking

This is what true patient care is about

Dr. Sander de Hosson
Physician
April 28, 2016
Share
Tweet
Share

Heart of summer. Early August. All of Holland is on holiday. We are sitting in the flesh-colored morning light, in his back room, stuffed away behind the nurses’ station.

He is sick as hell and just 32. I am sitting next to his mother and his girlfriend. The intern and nurse are standing behind me, breathing carefully. He sits with his back to us, at his table. Visibly fighting for air. Short of wind. Hands covering his eyes. I notice his bent back. Track his breathing. 30? 35 times a minute.

The window is open. The sweet smell of summer is wafting in. The contrast between the beauty of outside and the cruelty here inside takes me off guard.

A few weeks ago, I admitted to him that I liked him. Probably not the most professional thing to say. But he clearly appreciated it. He had charisma. The kind of guy who lights up a boring party.

Death is always brutal. But the death of someone so young, at the peak of his life, is one of nature’s most heinous acts. That’s how I felt.

“Of course, I’m bringing this home with me,” was my blatant reply to one of the team residents.

He has an enormous tumor in his lungs that has spread to his bones, liver, and brain.

“My head?” he’d questioned hopelessly, after I’d flipped over the MRI of his cerebrum.

The past few months, we had tried chemo after chemo. Called in renowned professors. The fear was always palpable. Dexamethasone. Pemetrexed. Etoposide. Erlotinib. Some other exotic names. All useless. The cancer continued to spread, mercilessly, gnawing away at his once notable physique, to leave this broken man sitting before us.

His breathing had become even more difficult the last weeks. He could no longer lie down, because it made him feel like he was suffocating. That was because it had spread into the anterior chamber of his heart, cruelly assuring that any decent way of pumping his blood forward was impossible. Decent. A word absent from cancer’s vocabulary.

The diagnoses was chilling. Pericarditis carcinomatosa. Latin for gruesome.

He had spent the last two days resting against his table. And that was where he sat, 24 hours a day. He slept with his head on that table. When I told him, I found it a rather humiliating option, he snapped: “I will stay by my girlfriend until the very end. In full consciousness.” Time and time again, he’d turned down morphine, even though I had made it clear it would not make him drowsy. He’d reply with stoic silence. Regardless of how ridiculous his refusal to take the morphine was to me, I truly admired his character.

His girlfriend glanced over at me. Late 20s. Pretty. She squeezed his hand. Her face, devastated. And then asked she the question that had initially brought us here: “Can we, still? Get married?”

ADVERTISEMENT

We’d just taken several minutes talk about The End. His very imminent death. “So, the final couplet has resounded,” he restated. Symbolically. Painfully. He brazenly admitted his time was up. Finally. Death had already begun. He was looking despondent. He had known it for a while now. I shifted my gaze to the tag around his arm. We shared a birth year. I knew this. 1977.

“We can hold your wedding here, of course,” I said. “But then we have to hurry up a bit. Actually, we have to move pretty quickly. Today. Not a day later.”

In actuality, I had no darn clue if it was even possible. So there we stood. In the hall. The intern directly dials city hall in the neighboring town. We get the registry office on the line, and I brace myself for a bunch of bureaucratic nonsense and the kind of questions only God knows the answer to. But what happens next is completely different.

After telling the whole story, suddenly all the doors seem to be open. The mayor is pulled out of an important council meeting to sign the necessary papers. An army of civil servants is suddenly available at every beck and call. “Passport missing?” says the councilwoman. “Who cares …” she adds in one breath. Wow. In no more than 50 minutes we manage to arrange an entire wedding ceremony, from the witnesses to the officiant. This is not in my job description. But who cares. They can marry that afternoon.

In the meantime, half of the hospital’s support staff is pulling together to turn the sitting room into a virtual wedding chapel. Even the kitchen starts making a cake. I am astounded. This is care. This is what care is about.

The sun sets behind the trees in the distance. She is standing next to him in its soft rays. He, sitting, fighting for air. Intensely happy. They fold their hands together. This leaves an everlasting impression. In the few short months since he became sick, they have reached a remarkable level of unity. Full of strength and love they say their wedding vows, swearing to be faithful ‘til long, long after death has parted them.

In the end, nothing remains but love.

The intern winks to me, teary eyed. Together, we leave them. We cry. In the hallway. This, of course, is very unprofessional. I couldn’t give a damn.

He dies that very night. At his table. But next to his wife.

Sander de Hosson is a pulmonary physician in the Netherlands.  He can be reached on twitter @shossontwits.  This story received the a Global Lung Cancer Journalism award.

Image credit: Shutterstock.com

Prev

What this physician learned from the starfish story

April 27, 2016 Kevin 0
…
Next

We are all Doc Vader vs. the hospital adminstrator

April 28, 2016 Kevin 2
…

Tagged as: Hospital-Based Medicine

Post navigation

< Previous Post
What this physician learned from the starfish story
Next Post >
We are all Doc Vader vs. the hospital adminstrator

ADVERTISEMENT

Related Posts

  • More physician responsibility for patient care

    Michael R. McGuire
  • The triad of health care: patient, nurse, physician

    Michele Luckenbaugh
  • The ultimate in patient empowerment: advance care planning

    Patricia McTiernan
  • Patient care is not a spectator sport

    Jim Sholler
  • Why health care fails to deliver better value in patient care

    Kristan Langdon, DNP and Timothy Lee, MPH
  • What Celine Dion can teach us about patient care

    Edward Leigh

More in Physician

  • Physician grief and patient loss: Navigating the emotional toll of medicine

    Francisco M. Torres, MD
  • Is primary care becoming a triage station?

    J. Leonard Lichtenfeld, MD
  • Violence against physicians and the role of empathy

    Dr. R.N. Supreeth
  • Finding meaning in medicine through the lens of Scarlet Begonias

    Arthur Lazarus, MD, MBA
  • Profit vs. patients in the U.S. health care system

    Banu Symington, MD
  • Why medicine needs military-style leadership and reconnaissance

    Ronald L. Lindsay, MD
  • Most Popular

  • Past Week

    • Psychiatrists are physicians: a key distinction

      Farid Sabet-Sharghi, MD | Physician
    • The loss of community pharmacy expertise

      Muhammad Abdullah Khan | Conditions
    • Is primary care becoming a triage station?

      J. Leonard Lichtenfeld, MD | Physician
    • How should kratom be regulated? [PODCAST]

      The Podcast by KevinMD | Podcast
    • Why senior-friendly health materials are essential for access

      Gerald Kuo | Conditions
    • Why humanity in medicine requires peace with a spine

      Kathleen Muldoon, PhD | Conditions
  • Past 6 Months

    • Direct primary care in low-income markets

      Dana Y. Lujan, MBA | Policy
    • Psychiatrists are physicians: a key distinction

      Farid Sabet-Sharghi, MD | Physician
    • Patient modesty in health care matters

      Misty Roberts | Conditions
    • The U.S. gastroenterologist shortage explained

      Brian Hudes, MD | Physician
    • The Silicon Valley primary care doctor shortage

      George F. Smith, MD | Physician
    • California’s opioid policy hypocrisy

      Kayvan Haddadan, MD | Conditions
  • Recent Posts

    • What to do if your lab results are borderline

      Monzur Morshed, MD and Kaysan Morshed | Conditions
    • Direct primary care limitations for complex patients

      Zoe M. Crawford, LCSW | Conditions
    • Understanding the unseen role of back-to-school diagnostics [PODCAST]

      The Podcast by KevinMD | Podcast
    • Public violence as a health system failure and mental health signal

      Gerald Kuo | Conditions
    • Physician asset protection: a guide to entity strategy

      Clint Coons, Esq | Finance
    • Understanding factitious disorder imposed on another and child safety

      Timothy Lesaca, MD | Conditions

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

View 2 Comments >

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

ADVERTISEMENT

  • Most Popular

  • Past Week

    • Psychiatrists are physicians: a key distinction

      Farid Sabet-Sharghi, MD | Physician
    • The loss of community pharmacy expertise

      Muhammad Abdullah Khan | Conditions
    • Is primary care becoming a triage station?

      J. Leonard Lichtenfeld, MD | Physician
    • How should kratom be regulated? [PODCAST]

      The Podcast by KevinMD | Podcast
    • Why senior-friendly health materials are essential for access

      Gerald Kuo | Conditions
    • Why humanity in medicine requires peace with a spine

      Kathleen Muldoon, PhD | Conditions
  • Past 6 Months

    • Direct primary care in low-income markets

      Dana Y. Lujan, MBA | Policy
    • Psychiatrists are physicians: a key distinction

      Farid Sabet-Sharghi, MD | Physician
    • Patient modesty in health care matters

      Misty Roberts | Conditions
    • The U.S. gastroenterologist shortage explained

      Brian Hudes, MD | Physician
    • The Silicon Valley primary care doctor shortage

      George F. Smith, MD | Physician
    • California’s opioid policy hypocrisy

      Kayvan Haddadan, MD | Conditions
  • Recent Posts

    • What to do if your lab results are borderline

      Monzur Morshed, MD and Kaysan Morshed | Conditions
    • Direct primary care limitations for complex patients

      Zoe M. Crawford, LCSW | Conditions
    • Understanding the unseen role of back-to-school diagnostics [PODCAST]

      The Podcast by KevinMD | Podcast
    • Public violence as a health system failure and mental health signal

      Gerald Kuo | Conditions
    • Physician asset protection: a guide to entity strategy

      Clint Coons, Esq | Finance
    • Understanding factitious disorder imposed on another and child safety

      Timothy Lesaca, MD | Conditions

MedPage Today Professional

An Everyday Health Property Medpage Today
  • Terms of Use | Disclaimer
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

This is what true patient care is about
2 comments

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...