Skip to content
  • About
  • Contact
  • Contribute
  • Book
  • Careers
  • Podcast
  • Recommended
  • Speaking
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking

If you’re chronically ill, setting limitations can make your symptoms manageable

Toni Bernhard, JD
Patient
June 24, 2019
Share
Tweet
Share

For many years after I became chronically ill, I blamed myself for failing to recover my health. I told myself: “You get sick; you get better. It’s as simple as that.” As a result of this stubborn attitude, I refused to set limits, even though it would have been a tremendous help, not only in managing my symptoms but in keeping them from flaring.

Learning to set limitations

I have a background in Buddhism (which I practice as a practical path, not a religion). In the first noble truth, the Buddha offers a list of unpleasant experiences we’ll all encounter at some time in life. I’d read that list many times but had never paid attention to these words from the list: pain and illness.

Seeing those words on his list helped me realize chronic illness (which includes chronic pain) is not an aberration. It wasn’t my fault I was struggling with my health. Those struggles are a normal part of the human life cycle. And so, I decided to take chronic illness as my starting point and build a new life from there. That’s when I started to set limitations. Here are those that I’ve found to be essential.

1. Limit the number of things you commit to in a row

I have an online calendar. When I make a doctor’s appointment or agree to an interview or a visit from a friend, I do everything I can to make sure that, on the day before and the day after the commitment, my calendar is empty.

Of course, I can’t always pull this off because, as John Lennon famously said, “Life is what happens to you while you’re busy making other plans.” Some weeks get away from me—my calendar might be empty on a day that I’ve left blank, but if the plumbing backs up, I’m going to call—and then “host”—the plumber!

2. Limit your activities to what you can handle without your symptoms flaring

What constitutes “too much” varies with each person. Some people who are chronically ill can travel, so long as they schedule rest periods. Other people, like me, are mostly housebound.

Enforcing this limitation is much harder than making sure my calendar has commitments spread out across the week. Limiting activities to what I can reasonably handle takes discipline; I have to work at it every day.

I’m better at it than I used to be because, over the years, I’ve seen the consequences of not limiting myself. I remember the day when my granddaughter was visiting from out of town. She was still a toddler then. I wanted so badly to take her by myself to the park next door that I told everyone to stay in the house. I was in a defiant mood: “I’m tired of being restricted by pain and illness; I’m going to stay at the park as long as she wants.”

And so I did—pushing her on the swings, going on the slides with her. I stayed until she was ready to come home. Not surprisingly, I paid dearly for my defiance. It landed me in bed for days. And it had all been unnecessary because anyone in the family would have been glad to come with us so I could leave when I needed to. Now I’ve stopped pretending that I’m not limited by chronic illness.

When it comes to important events, such as a wedding or holiday festivities, each of us must decide if the exacerbation of symptoms is worth going over our limitations. Sometimes it is. I recently attended a wedding of two good friends. I only stayed for the ceremony. Yes, I was sad to leave before the reception started, but I was already over my limit and knew there would be payback. There was, but it was worth it. That said, I don’t have the option to ignore some limitations, such as my inability to travel.

3. Limit what you agree to contribute to events and family gatherings

ADVERTISEMENT

This is related to #2. I raise it separately because it can be such a big challenge to say “no” to loved ones. I suggest that you think ahead of time about what you can comfortably contribute to a gathering. Perhaps you can bake a pie, but can’t do more. Perhaps you can help set the table for a holiday dinner, but can’t help with clean-up.

It’s hard to say “no,” but it gets easier with practice. Let feelings obligation or guilt give way to your need for self-care. If your loved ones don’t understand, try to educate them about your limitations. If they still don’t understand, file it away as yet another instance of those who, not being chronically ill themselves, are ignorant about the effect it has on a person’s life.

4. Limit your negative self-talk

Many people believe that being chronically ill is proof of some personal failure. As a result, they become extremely self-critical. This negative self-talk is often fed by comments from others, such as: “I’m tired too” or “You’re too young to be in pain.” One way to limit negative self-talk is to resolve never to side with others against yourself no matter what they say to you. Their comments reflect their ignorance about chronic pain and illness, so don’t take those comments personally. Trust your own judgment.

If you’re not already doing so, I hope you’ll start setting limitations this very day.

Toni Bernhard was a law professor at the University of California—Davis. She is the author of How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers (Second Edition), How to Wake Up: A Buddhist-Inspired Guide to Navigating Joy and Sorrow, and How to Live Well with Chronic Pain and Illness: A Mindful Guide. She can be reached at her self-titled site, Toni Bernhard.  

Image credit: Shutterstock.com

Prev

Cancer care costs everyone too much. What can we do about it?

June 24, 2019 Kevin 0
…
Next

Remembering a physician, suddenly taken away

June 25, 2019 Kevin 1
…

Tagged as: Patients, Rheumatology

Post navigation

< Previous Post
Cancer care costs everyone too much. What can we do about it?
Next Post >
Remembering a physician, suddenly taken away

ADVERTISEMENT

More by Toni Bernhard, JD

  • 4 things the chronically ill wish others understood

    Toni Bernhard, JD
  • 5 hidden consequences of chronic pain

    Toni Bernhard, JD
  • 10 challenges faced by those with chronic pain and illness

    Toni Bernhard, JD

Related Posts

  • 4 things the chronically ill wish others understood

    Toni Bernhard, JD
  • Loved ones: You’re with us, too

    Nicole Russell
  • Setting the facts straight about The Joint Commission’s stance on food and drink

    Mark Pelletier, MS, RN
  • Issues faced by LGBTQ individuals in the operative setting

    Indraneel Prabhu
  • Turning negatives into positives when you’re chronically ill

    Toni Bernhard, JD
  • The most frustrating things about being chronically ill 

    Toni Bernhard, JD

More in Patient

  • AI’s role in streamlining colorectal cancer screening [PODCAST]

    The Podcast by KevinMD
  • There’s no one to drive your patient home

    Denise Reich
  • Dying is a selfish business

    Nancie Wiseman Attwater
  • A story of a good death

    Carol Ewig
  • We are warriors: doctors and patients

    Michele Luckenbaugh
  • Patient care is not a spectator sport

    Jim Sholler
  • Most Popular

  • Past Week

    • Why are medical students turning away from primary care? [PODCAST]

      The Podcast by KevinMD | Podcast
    • Why “do no harm” might be harming modern medicine

      Sabooh S. Mubbashar, MD | Physician
    • Here’s what providers really need in a modern EHR

      Laura Kohlhagen, MD, MBA | Tech
    • How New Mexico became a malpractice lawsuit hotspot

      Patrick Hudson, MD | Physician
    • Why doctors are reclaiming control from burnout culture

      Maureen Gibbons, MD | Physician
    • A world without vaccines: What history teaches us about public health

      Drew Remignanti, MD, MPH | Conditions
  • Past 6 Months

    • Why tracking cognitive load could save doctors and patients

      Hiba Fatima Hamid | Education
    • Why are medical students turning away from primary care? [PODCAST]

      The Podcast by KevinMD | Podcast
    • What the world must learn from the life and death of Hind Rajab

      Saba Qaiser, RN | Conditions
    • Why “do no harm” might be harming modern medicine

      Sabooh S. Mubbashar, MD | Physician
    • Here’s what providers really need in a modern EHR

      Laura Kohlhagen, MD, MBA | Tech
    • How the 10th Apple Effect is stealing your joy in medicine

      Neil Baum, MD | Physician
  • Recent Posts

    • From Founding Fathers to modern battles: physician activism in a politicized era [PODCAST]

      The Podcast by KevinMD | Podcast
    • From stigma to science: Rethinking the U.S. drug scheduling system

      Artin Asadipooya | Meds
    • The gift we keep giving: How medicine demands everything—even our holidays

      Tomi Mitchell, MD | Physician
    • The promise and perils of AI in health care: Why we need better testing standards

      Max Rollwage, PhD | Tech
    • From burnout to balance: a neurosurgeon’s bold career redesign

      Jessie Mahoney, MD | Physician
    • Healing the doctor-patient relationship by attacking administrative inefficiencies

      Allen Fredrickson | Policy

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

Leave a Comment

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

  • Most Popular

  • Past Week

    • Why are medical students turning away from primary care? [PODCAST]

      The Podcast by KevinMD | Podcast
    • Why “do no harm” might be harming modern medicine

      Sabooh S. Mubbashar, MD | Physician
    • Here’s what providers really need in a modern EHR

      Laura Kohlhagen, MD, MBA | Tech
    • How New Mexico became a malpractice lawsuit hotspot

      Patrick Hudson, MD | Physician
    • Why doctors are reclaiming control from burnout culture

      Maureen Gibbons, MD | Physician
    • A world without vaccines: What history teaches us about public health

      Drew Remignanti, MD, MPH | Conditions
  • Past 6 Months

    • Why tracking cognitive load could save doctors and patients

      Hiba Fatima Hamid | Education
    • Why are medical students turning away from primary care? [PODCAST]

      The Podcast by KevinMD | Podcast
    • What the world must learn from the life and death of Hind Rajab

      Saba Qaiser, RN | Conditions
    • Why “do no harm” might be harming modern medicine

      Sabooh S. Mubbashar, MD | Physician
    • Here’s what providers really need in a modern EHR

      Laura Kohlhagen, MD, MBA | Tech
    • How the 10th Apple Effect is stealing your joy in medicine

      Neil Baum, MD | Physician
  • Recent Posts

    • From Founding Fathers to modern battles: physician activism in a politicized era [PODCAST]

      The Podcast by KevinMD | Podcast
    • From stigma to science: Rethinking the U.S. drug scheduling system

      Artin Asadipooya | Meds
    • The gift we keep giving: How medicine demands everything—even our holidays

      Tomi Mitchell, MD | Physician
    • The promise and perils of AI in health care: Why we need better testing standards

      Max Rollwage, PhD | Tech
    • From burnout to balance: a neurosurgeon’s bold career redesign

      Jessie Mahoney, MD | Physician
    • Healing the doctor-patient relationship by attacking administrative inefficiencies

      Allen Fredrickson | Policy

MedPage Today Professional

An Everyday Health Property Medpage Today
  • Terms of Use | Disclaimer
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

Leave a Comment

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...