Skip to content
  • About
  • Contact
  • Contribute
  • Book
  • Careers
  • Podcast
  • Recommended
  • Speaking
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking

From devotion to despair: a teacher’s fight against glioblastoma

Dr. Damane Zehra
Conditions
August 15, 2024
Share
Tweet
Share

He was only 31 years old. He had a beard and was a very tall and incredibly handsome man. He was a teacher who used to teach the Holy Quran to young children in a faraway village in Punjab. He used to offer his prayers regularly. He did not go to school or college but was a productive member of society. He worked at a tailor shop and used to stitch garments as a part-time job.

One day, he had a generalized tonic-clonic fit while praying at a mosque. He fainted, and his neighbors brought him home. His parents took him to several local physicians who kept prescribing him antiepileptics, but his condition worsened over weeks. He started losing balance, having headaches, and experiencing projectile vomiting. His father thought of consulting some expert doctors in a big city.

When he saw a neurophysician, he was advised to get an MRI brain scan as soon as possible. His scan showed an aggressive brain tumor. His surgery was performed urgently, and the tumor turned out to be glioblastoma multiforme. He was referred to radiation oncology for further treatment.

On the first encounter, when I saw him, he was wearing a kufi. “Kufis are the traditional and religious skull caps for Muslim men, mostly worn on the head during prayer.” Being a mullah, he was extremely modest and reserved towards women. When I first met him, he respectfully introduced himself but did not even look at me. I had to remove his cap to examine the scar and look for skull edema.

He spoke and understood Punjabi only. Being an unknowledgeable person who could not understand Urdu, it was difficult for him to understand his diagnosis, the nature of the disease, and his treatment course. His parents did not tell him at all that he had a brain tumor. They informed him that he had some swelling in his brain that was causing his fits and that he would be completely fine after completing treatment.

He started radiation treatment with oral chemotherapy. He became familiar with me and started calling me his elder sister. He used to talk to me in Punjabi, and we met almost every day. Whenever he came for radiation treatment, he would simply say hi to me.

He was not completely fine. He had been facing urinary incontinence since the time of his diagnosis. At each of his weekly radiation follow-ups, his major concern was the difficulty he had been facing regarding his prayers. He had to change his clothes multiple times a day and perform ablution again and again, just with the thought of purifying himself. I felt inspired that despite having vertigo, balance, vision, and other neurological issues, his only worry was not to miss his prayers. He had memory problems and used to talk about the same things over and over again. I just kept reassuring him that he would be fine in no time.

When a patient lies down on a treatment couch on the linear accelerator, some patients can hear the beep-like sound coming from the gantry head. As days pass, patients become accustomed to the sound, finding reassurance in its indication that their treatment is underway.

He also noticed that sound and named that beep “tik tik.” He did not know what to call the radiation treatment, so he just called the treatment “tik tik.” Our linear accelerator broke down for two days, and he came to see me on both days to inquire, “Baji, aj tik tik nae laani?” “Sister, won’t you do my tik tik (radiation treatment) today?”

Sometimes the radiation staff felt irritable due to his repetitive talking. On those days when he had a delay in his treatment, he would come to me and complain about the radiation staff. After my reassurance, he became satisfied. On such days, he used to say, “I am angry with the radiation staff, but I can never be angry with you. You are my sister. How can I be angry with you ever?”

His parents always asked me to give him sedatives because he used to talk a lot and repeat the same phrases over and over again. Over time, I started seeing an elder brother in him. I found him adorable. I liked talking to him. I liked hearing the same phrases again and again. I didn’t find them irritating. I wish he could be cured in any possible way. I wanted to see him healthy and happy.

Isn’t it ironic that doctors, who understand diseases well, sometimes think irrationally when it comes to their own family or loved ones? They seem to forget the harsh realities. The same happened with me. I forgot everything. I just wanted to listen to him; I wished he would keep talking. I wanted to hear the sound of his laughter and his silly jokes daily.

Unfortunately, during the last week of his treatment, he suddenly went into status epilepticus. Imaging showed a huge tumor relapse, extending into his brainstem. His parents decided not to intervene further. He developed severe brain edema. He was admitted and started on supportive medications. He was unconscious when I last saw him, just behind the glass door. I couldn’t summon the courage to go inside the ward.

ADVERTISEMENT

The next day, his condition deteriorated. My colleagues informed me that he was close to passing away. I didn’t have the courage or the heart to witness him dying. I never went to see him. I knew I would not be able to listen to the sound of his laughter, his silly jokes, and those repetitive phrases again. I wish I could do anything, no matter the cost. My brother died that day, and all I could do was cry.

Damane Zehra is a radiation oncology resident in Pakistan.

Prev

How to rewire your brain with positive language

August 15, 2024 Kevin 0
…
Next

Stop physician burnout: the hidden danger of AI note-writing software

August 15, 2024 Kevin 2
…

Tagged as: Oncology/Hematology

Post navigation

< Previous Post
How to rewire your brain with positive language
Next Post >
Stop physician burnout: the hidden danger of AI note-writing software

ADVERTISEMENT

More by Dr. Damane Zehra

  • Love and loss in the oncology ward

    Dr. Damane Zehra
  • Love, birds, and fries: a story of innocence and connection

    Dr. Damane Zehra
  • What a dying patient taught me about compassion in silence

    Dr. Damane Zehra

Related Posts

  • Physicians fight from the social media frontlines

    Neha Pidatala, MD
  • Gun violence during residency: Run. Hide. Fight.

    Gillian Naro, MD
  • Doctors: Fight for your role as our physicians

    Michele Luckenbaugh
  • Family medicine and the fight for the soul of health care

    Timothy Hoff, PhD
  • To fight medical student burnout, focus less on the clinic and more on life

    Natalie LaBossier
  • Driving culture change in the pursuit of oncology value

    Mark Walshauser, MD

More in Conditions

  • Why health care needs empathy, not just algorithms

    Muhammad Abdullah Khan
  • A doctor’s story of IV ketamine for depression

    Dee Bonney, MD
  • Why you should get your Lp(a) tested

    Monzur Morshed, MD and Kaysan Morshed
  • Is modern medicine losing its soul?

    Michele Luckenbaugh
  • The opioid crisis’s other victims

    Kayvan Haddadan, MD
  • The need for pediatric respite care

    Kathleen Muldoon, PhD
  • Most Popular

  • Past Week

    • Rebuilding the backbone of health care [PODCAST]

      The Podcast by KevinMD | Podcast
    • Why you should get your Lp(a) tested

      Monzur Morshed, MD and Kaysan Morshed | Conditions
    • The psychological trauma of polarization

      Farid Sabet-Sharghi, MD | Physician
    • Why CPT coding ambiguity harms doctors

      Muhamad Aly Rifai, MD | Physician
    • Why physicians must not suffer in silence [PODCAST]

      The Podcast by KevinMD | Podcast
    • What burnout does to your executive function

      Seleipiri Akobo, MD, MPH, MBA | Physician
  • Past 6 Months

    • Rebuilding the backbone of health care [PODCAST]

      The Podcast by KevinMD | Podcast
    • The dangerous racial bias in dermatology AI

      Alex Siauw | Tech
    • When language barriers become a medical emergency

      Monzur Morshed, MD and Kaysan Morshed | Physician
    • The dismantling of public health infrastructure

      Ronald L. Lindsay, MD | Physician
    • A doctor’s letter from a federal prison

      L. Joseph Parker, MD | Physician
    • The high cost of PCSK9 inhibitors like Repatha

      Larry Kaskel, MD | Conditions
  • Recent Posts

    • What burnout does to your executive function

      Seleipiri Akobo, MD, MPH, MBA | Physician
    • The paradox of primary care and value-based reform

      Troyen A. Brennan, MD, MPH | Policy
    • Why physicians must lead the vetting of medical AI [PODCAST]

      The Podcast by KevinMD | Podcast
    • Dealing with physician negative feedback

      Jessie Mahoney, MD | Physician
    • Deaths in custody highlight crisis in Philly prisons

      Kendall Major, MD, Tommy Gautier, MD, Alyssa Lambrecht, DO, and Elle Saine, MD | Policy
    • Why CPT coding ambiguity harms doctors

      Muhamad Aly Rifai, MD | Physician

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

Leave a Comment

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

ADVERTISEMENT

  • Most Popular

  • Past Week

    • Rebuilding the backbone of health care [PODCAST]

      The Podcast by KevinMD | Podcast
    • Why you should get your Lp(a) tested

      Monzur Morshed, MD and Kaysan Morshed | Conditions
    • The psychological trauma of polarization

      Farid Sabet-Sharghi, MD | Physician
    • Why CPT coding ambiguity harms doctors

      Muhamad Aly Rifai, MD | Physician
    • Why physicians must not suffer in silence [PODCAST]

      The Podcast by KevinMD | Podcast
    • What burnout does to your executive function

      Seleipiri Akobo, MD, MPH, MBA | Physician
  • Past 6 Months

    • Rebuilding the backbone of health care [PODCAST]

      The Podcast by KevinMD | Podcast
    • The dangerous racial bias in dermatology AI

      Alex Siauw | Tech
    • When language barriers become a medical emergency

      Monzur Morshed, MD and Kaysan Morshed | Physician
    • The dismantling of public health infrastructure

      Ronald L. Lindsay, MD | Physician
    • A doctor’s letter from a federal prison

      L. Joseph Parker, MD | Physician
    • The high cost of PCSK9 inhibitors like Repatha

      Larry Kaskel, MD | Conditions
  • Recent Posts

    • What burnout does to your executive function

      Seleipiri Akobo, MD, MPH, MBA | Physician
    • The paradox of primary care and value-based reform

      Troyen A. Brennan, MD, MPH | Policy
    • Why physicians must lead the vetting of medical AI [PODCAST]

      The Podcast by KevinMD | Podcast
    • Dealing with physician negative feedback

      Jessie Mahoney, MD | Physician
    • Deaths in custody highlight crisis in Philly prisons

      Kendall Major, MD, Tommy Gautier, MD, Alyssa Lambrecht, DO, and Elle Saine, MD | Policy
    • Why CPT coding ambiguity harms doctors

      Muhamad Aly Rifai, MD | Physician

MedPage Today Professional

An Everyday Health Property Medpage Today
  • Terms of Use | Disclaimer
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

Leave a Comment

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...