As doctors, we often tend to focus on solving the problem at hand. We identify the issue, make a diagnosis, and try to treat the condition to the best of our capabilities. And in this pursuit to achieve our textbook level of homeostasis, we often forget that it is the patient who requires us. As rightfully pointed out in the posters outside the palliative care center, sometimes we may encounter a roadblock in cure, but the pathway to care remains open throughout the patient’s journey with us. Palliative care is often misunderstood as merely end-of-life care, when in reality it aims to alleviate suffering and improve the quality of life for patients facing serious illnesses. There still exists a wide gap in understanding of this field of medicine even within the medical community, often delaying the presentation of the patient to such settings.
Even though medicine holds a strong foothold in these centers, the science behind patient care plays a strong supporting role, allowing one’s emotional quotient to shine through and take the lead. After all, the goal of the mission is to make sure that the patient is as comfortable as they can be, while their attenders slowly learn to deal with their anxiety. The true potential of benefits from such a structured program starts with the patient and their attitude towards their condition. Some patients take the path of letting go, crying for a swift end; while others remain in denial, perhaps because of a false promise of a cure from elsewhere. Then we come to the third group, patients who make peace with their situation; they do not give up on life, but surely know what lies ahead for them. And the onus to care for all of them lies in our hands. This starts with having a holistic approach towards our patients, addressing their spiritual concerns, providing them with emotional and psychological support, advance care planning, and, most importantly, providing them with a realistic picture regarding their diagnosis and condition.
Palliative care as a system requires strong interpersonal and cross-specialty communication for smooth functioning, as patients may require expert opinions from different fields to optimize their treatment plan. Patient education for systemic follow-ups and establishing a baseline of knowledge regarding their diagnosis and potential danger signs helps create a better environment for holistic care. While we focus on the physical aspects of care and diagnosis, we often fail to realize the psychological and mental impact that such conditions can have on the patient and their family. Regular mental health assessment forms a crucial pillar of palliative care, as depression and anxiety are common among the patients and their attenders in such settings.
The opportunity to make a meaningful difference in patients’ lives by easing their suffering and enhancing their quality of life is profoundly fulfilling. However, it also requires emotional resilience and the ability to cope with the inevitable losses and grief. The true essence of palliative care starts with being present, offering comfort, and honoring the intrinsic worth of each patient. For all those who believe in an afterlife, we help them reach their final destination without pain, in peace and comfort.
It is about recognizing the sacredness of life’s final journey and ensuring that it is met with dignity, respect, and love.
Vishal Parackal is a physician in India.
