We need a doctor-family partnership on the Internet
In early 1996, I sat down at my computer looking for help.
My third child, 2 months old, had just been diagnosed with a severe brain malformation called lissencephaly. He won’t be normal, the doctors said grimly. His life will be shorter, we were told. He will have seizures and other problems, they said, but it’s hard for us to say what or how bad those problems will be. We were …
We need a doctor-family partnership on the Internet

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