Ellen Diamond
Ellen Diamond is a retired social worker.
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Latest articles
Patient voices
Before I retired in 2000, I worked in a state agency as a peer counselor, or more formally, an employee assistance program (EAP) coordinator. The "coordinator" part was there because my job description wasn't actually to do counseling; it was…
Before I retired in 2000, I worked in a state agency as a peer counselor, or more formally, an employee assistance program (EAP) coordinator. The “coordinator” part was there because my job description wasn’t actually to do counseling; it was to assess the problem and refer the client for help.
But of course both of those processes involved counseling. We just couldn’t call it that.
In 1986, shortly after I’d begun the …
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Life is a terminal illness
Patient voices
For the past fifteen years, I have had an incurable form of leukemia. Such diseases used to be called terminal illnesses, but we don't hear that term as much anymore. With all the new drugs and treatments available, doctors have…
For the past fifteen years, I have had an incurable form of leukemia.
Such diseases used to be called terminal illnesses, but we don’t hear that term as much anymore. With all the new drugs and treatments available, doctors have become more reluctant to refer to diseases they can’t cure yet as “terminal.”
In the years just after my diagnosis, when friends and family would ask what could be done for it, …
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Living with an illness for which there is no cure
Patient voices
Recently, while reading a post in an online chat group for people with chronic lymphocytic leukemia (CLL), I spotted an intriguing comment. At an important conference, a world-renowned hematologist had referred to a "five-year timeline" for a cure. This took…
Recently, while reading a post in an online chat group for people with chronic lymphocytic leukemia (CLL), I spotted an intriguing comment. At an important conference, a world-renowned hematologist had referred to a “five-year timeline” for a cure.
This took me back fourteen years, to when I’d just been diagnosed with CLL. There was a Gilda’s Club near my workplace; I’d always passed it quickly on my way home. Now I …
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I do not require perfect health to be happy
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