Skip to content
  • About
  • Contact
  • Contribute
  • Book
  • Careers
  • Podcast
  • Recommended
  • Speaking
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking

Doctors have a responsibility to outline options. Patients make the final decision.

Don S. Dizon, MD
Physician
October 26, 2017
Share
Tweet
Share

asco-logo

As an oncologist, I want to provide the best treatment for everyone. That should mean the best chance at a long-lasting remission, if not cure. Whatever that might take. Surgery, chemotherapy, radiation therapy — a dark tunnel that I hope patients will enter and then exit, with the sun shining on the other side. But, every now and then, I have a patient who chooses not to pursue the regimen that I think will bring them the best chances. Looking back, I remember such was the case with a woman who sticks out in my own mind. Let’s call her Rachel*.

I met Rachel as a second opinion — referred to me for discussion about next steps. She was African-American and 90 years old, though looked 30 years younger. She lived by herself and was very much independent. She had been married, but her husband had died of a heart condition decades earlier. She had raised three children, and was now a proud grandmother and great-grandmother.

She had been doing well until eight months earlier when she developed a cough. When it progressed to involve severe shortness of breath she had made her way to the walk-in clinic and was told she had a large fluid build-up around her lung — a pleural effusion. A tap followed, which showed cancer, and then a CT scan, which showed a mass in her ovary and abdominal tumors — carcinomatosis. By then she could barely walk due to the shortness of breath. Primary chemotherapy followed, and after three months she had recovered back to her usual self: independent and asymptomatic. Her doctors had told her she required surgery to treat the cancer, and then more chemotherapy. She had balked at the recommendation — she felt fine. Hence, this visit with me.

I spoke with her about her diagnosis — presumed Mullerian cancer, probably from the ovary or uterus originally — and that if she had wanted a “cure” — any chance of it — she should undergo the surgery and more chemotherapy. “I think the chances you can live out the rest of your life and not worry about this cancer are pretty good — if you go through this approach. See, we cannot cure ovarian cancer with medicines.”

She paused after I spoke, and then looked at me.

“Dr. Dizon, we all have to die some time. I am 90 years old. My husband is gone, and my kids have their own lives. It makes me so proud to see them as adults, to have their own families, and their own grandchildren. It’s a sense of pride, of something that I’ve accomplished, and even after I am gone, I will have left my mark on this world, through them.”

As she spoke, I got the sense that she did not want to go through the treatments that I and her other doctors had laid out for her.

“Rachel, you are doing so well, and talking with you, it’s so clear that you still very much enjoy your life. I think we can give you more of this with treatment. We can even give you a chance at cure, so that you don’t die of this.”

She smirked at that. “Doc, no matter how it happens, I’ll still be dead. The way I see it, it’s about whether or not you’re ready. And right here, right now, hearing you speak of my options, I think I am. I am ready for the future — and I am not afraid that I might not be here.”

I was struck by her calmness, and how she spoke so eloquently about living with cancer — and dying of it.

“Rachel, can I ask — what are your goals, then? How would you prefer to live?”

She thought for a moment and then spoke.

“I want to live like I am right now. Independent and able to make my own meals, tend to myself, tend to my garden, and enjoy my family. After getting so sick, it’s a miracle I was able to come back to where I am. My goal, Dr. Dizon, is for a good life, no matter how long or short, and if some sort of chemotherapy can be given to keep me right where I am, without having to think about an extensive surgery, then that’s what I am leaning towards.”

ADVERTISEMENT

“Don’t you want to be cured, though?” I asked.

“From what you said, there is no guarantee of that. Even after the surgery and more of the same chemotherapy, I might still recur and still die of the cancer, right? Well, if that’s the case, let me live for however long from this day forward, without a cure, but on my own.”

We talked some more after that — symptoms of progression, how women usually die of ovarian cancer — and then she got up to leave.

”Thank you for your time, Dr. Dizon,” she said. “I feel better knowing what that road will look like, and in a sense, I am more at peace now.”

As she left the room, I realized that we as doctors have a responsibility to outline options and, yes, to make the best recommendations we can. But, at the end of the day, only one person walks in the shoes of a patient with cancer — and in this case, she walked out of the exam room, fully embracing the life she was leading right here and right now. Her goal was to live for today, and her preferences were to maintain the status quo.

Carpe diem.

* Name and identifying details changed for privacy.

Don S. Dizon is an oncologist who blogs at ASCO Connection.  This article originally appeared in the Oncologist.

Image credit: Shutterstock.com

Prev

Why Medicare cannot stay solvent: a case study

October 26, 2017 Kevin 2
…
Next

The smallest human acts can have a lifetime of impact

October 27, 2017 Kevin 0
…

Tagged as: Hospital-Based Medicine, Oncology/Hematology

Post navigation

< Previous Post
Why Medicare cannot stay solvent: a case study
Next Post >
The smallest human acts can have a lifetime of impact

ADVERTISEMENT

More by Don S. Dizon, MD

  • As an oncologist, this is the hardest role I play

    Don S. Dizon, MD
  • Why physicians should acknowledge the validity of second opinions

    Don S. Dizon, MD
  • A patient who taught an important lesson in doctoring

    Don S. Dizon, MD

Related Posts

  • Here are some things that patients wish doctors knew

    R. Lynn Barnett
  • Should doctors take more responsibility for quality metrics?

    Sarah Gebauer, MD
  • We are warriors: doctors and patients

    Michele Luckenbaugh
  • Doctors and patients should be wary of health care mega-mergers

    Linda Girgis, MD
  • Are patients using social media to attack physicians?

    David R. Stukus, MD
  • A perk of Medicare for all: More time for doctors and patients

    Rani Marx, PhD, MPH and James G. Kahn, PhD

More in Physician

  • When cancer costs too much: Why financial toxicity deserves a place in clinical conversations

    Yousuf Zafar, MD
  • The hidden rewards of a primary care career

    Jerina Gani, MD, MPH
  • Why doctors regret specialty choices in their 30s

    Jeremiah J. Whittington, MD
  • 10 hard truths about practicing medicine they don’t teach in school

    Steven Goldsmith, MD
  • How I learned to love my unique name as a doctor

    Zoran Naumovski, MD
  • What Beauty and the Beast taught me about risk

    Jayson Greenberg, MD
  • Most Popular

  • Past Week

    • The human case for preserving the nipple after mastectomy

      Thomas Amburn, MD | Conditions
    • Nuclear verdicts and rising costs: How inflation is reshaping medical malpractice claims

      Robert E. White, Jr. & The Doctors Company | Policy
    • IMGs are the future of U.S. primary care

      Adam Brandon Bondoc, MD | Physician
    • Why I left the clinic to lead health care from the inside

      Vandana Maurya, MHA | Conditions
    • How doctors can think like CEOs [PODCAST]

      The Podcast by KevinMD | Podcast
    • A surgeon’s testimony, probation, and resignation from a professional society

      Stephen M. Cohen, MD, MBA | Physician
  • Past 6 Months

    • Health equity in Inland Southern California requires urgent action

      Vishruth Nagam | Policy
    • How restrictive opioid policies worsen the crisis

      Kayvan Haddadan, MD | Physician
    • Why primary care needs better dermatology training

      Alex Siauw | Conditions
    • Why pain doctors face unfair scrutiny and harsh penalties in California

      Kayvan Haddadan, MD | Physician
    • How a doctor defied a hurricane to save a life

      Dharam Persaud-Sharma, MD, PhD | Physician
    • What street medicine taught me about healing

      Alina Kang | Education
  • Recent Posts

    • Affordable postpartum hemorrhage solutions every OB/GYN can use worldwide [PODCAST]

      The Podcast by KevinMD | Podcast
    • When cancer costs too much: Why financial toxicity deserves a place in clinical conversations

      Yousuf Zafar, MD | Physician
    • Psychiatrist tests ketogenic diet for mental health benefits

      Zane Kaleem, MD | Conditions
    • The hidden rewards of a primary care career

      Jerina Gani, MD, MPH | Physician
    • Why physicians should not be their own financial planner

      Michelle Neiswender, CFP | Finance
    • Why doctors regret specialty choices in their 30s

      Jeremiah J. Whittington, MD | Physician

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

View 2 Comments >

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

ADVERTISEMENT

  • Most Popular

  • Past Week

    • The human case for preserving the nipple after mastectomy

      Thomas Amburn, MD | Conditions
    • Nuclear verdicts and rising costs: How inflation is reshaping medical malpractice claims

      Robert E. White, Jr. & The Doctors Company | Policy
    • IMGs are the future of U.S. primary care

      Adam Brandon Bondoc, MD | Physician
    • Why I left the clinic to lead health care from the inside

      Vandana Maurya, MHA | Conditions
    • How doctors can think like CEOs [PODCAST]

      The Podcast by KevinMD | Podcast
    • A surgeon’s testimony, probation, and resignation from a professional society

      Stephen M. Cohen, MD, MBA | Physician
  • Past 6 Months

    • Health equity in Inland Southern California requires urgent action

      Vishruth Nagam | Policy
    • How restrictive opioid policies worsen the crisis

      Kayvan Haddadan, MD | Physician
    • Why primary care needs better dermatology training

      Alex Siauw | Conditions
    • Why pain doctors face unfair scrutiny and harsh penalties in California

      Kayvan Haddadan, MD | Physician
    • How a doctor defied a hurricane to save a life

      Dharam Persaud-Sharma, MD, PhD | Physician
    • What street medicine taught me about healing

      Alina Kang | Education
  • Recent Posts

    • Affordable postpartum hemorrhage solutions every OB/GYN can use worldwide [PODCAST]

      The Podcast by KevinMD | Podcast
    • When cancer costs too much: Why financial toxicity deserves a place in clinical conversations

      Yousuf Zafar, MD | Physician
    • Psychiatrist tests ketogenic diet for mental health benefits

      Zane Kaleem, MD | Conditions
    • The hidden rewards of a primary care career

      Jerina Gani, MD, MPH | Physician
    • Why physicians should not be their own financial planner

      Michelle Neiswender, CFP | Finance
    • Why doctors regret specialty choices in their 30s

      Jeremiah J. Whittington, MD | Physician

MedPage Today Professional

An Everyday Health Property Medpage Today
  • Terms of Use | Disclaimer
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

Doctors have a responsibility to outline options. Patients make the final decision.
2 comments

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...