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Continuity of care in HIV/AIDS lives in the people who stay

Gus W. Krucke, MD
Physician
May 15, 2026
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There are moments in medicine when the entire architecture of modern health care reveals both its brilliance and its limitations at the same time.

Years ago, a familiar face appeared quietly in our treatment room, though diminished enough that several people did not recognize him immediately. He had once been the life of every room he entered, effortlessly social, funny, alive in the particular way some people seem born carrying light for others. Over time, however, he had begun withdrawing from the world around him. He missed appointments. Friends drifted away. Eventually he admitted, reluctantly and almost with embarrassment, that he had become very sick, frightened, and increasingly alone.

The treatment room itself had been created years earlier for patients living with HIV/AIDS who often existed in the fragile space between outpatient clinic and hospitalization. At the old Thomas Street Health Center, many of us learned quickly that traditional office visits alone could not sustain some of the patients entrusted to our care. Too many hovered precariously between clinic and catastrophe, sick enough to fail in fragmented systems yet still reachable through continuity, procedural care, infusion therapy, wound management, transfusions, chemotherapy, and daily human presence.

Over time the treatment room became something more than a clinical innovation. It became haven.

Patients entered a place where real personal safety and acceptance existed alongside medical complexity. Many had spent years moving through systems shaped by stigma, addiction, poverty, psychiatric illness, abandonment, or simple exhaustion. Yet inside that space they were not treated as contamination, inconvenience, throughput burden, or social problem. They were known personally. Nurses recognized them immediately. Physicians followed them longitudinally. Staff understood their histories, their fears, their humor, their partners, their estrangements, their relapses, their small victories, and sometimes the exact expression on their face that signaled trouble before a single lab result returned.

That morning, trouble was immediately obvious.

His CD4 count was four. Many of us were old enough to remember what that once meant.

Within hours the machinery of modern medicine activated around him with extraordinary speed and competence. He was transferred from the treatment room to the emergency department. EMS arrived. Emergency physicians and nurses stabilized him. Lines were placed. Vasopressors began. Consultants accumulated. Protocols activated. Intensive care teams moved with the practiced choreography modern critical illness demands.

Later, standing briefly in the emergency department after the initial stabilization, I remember patting several of my emergency medicine colleagues on the back and telling them what a remarkable save they had achieved. And it was remarkable. Modern medicine can still perform astonishing acts of rescue, yet even its greatest triumphs cannot fully outrun mortality.

I visited him later in the ICU, though I knew he would probably never remember the encounter itself. Sedated patients rarely do. Yet the visit still mattered. The nurses understood immediately why I had come. The residents understood too. They recognized that medicine, despite all its operational complexity, still involves a kind of continuity that cannot be fully captured in documentation, handoffs, or electronic records. Someone who had known the patient before the crisis remained present after the crisis began.

Eventually he left the ICU. Later he entered the care of our inpatient team. Then rehabilitation. Then hospice. By then the pace of medicine had slowed again.

At Omega House, Standy Stacy, RN (the archangel of her kind) moved quietly through the room with the practiced gentleness that only years beside suffering can teach. The monitors, infusions, consultations, and procedural urgency that once surrounded him had largely fallen away into the kind of care that cannot be fully described in textbooks, where the deepest parts of our shared humanity still glow quietly beside the dying. What remained now was presence. Adjustment of blankets. Soft conversation. Small reassurances. Familiar faces entering the room without needing explanation for why they had come.

The extraordinary interventions that once sustained him had been appropriate and necessary. But eventually a quieter transition occurred, what medicine often describes as a change in “goals of care,” though at the bedside it sometimes feels less like surrender than acceptance, an acknowledgment that mortality itself had entered the room and would no longer be negotiated away. He remained a human being nearing the end of his life, and people still stayed beside him.

The transitions themselves had all been medically appropriate. In many ways they reflected the sophistication of contemporary medicine. Different environments existed for different needs. Specialists rotated appropriately through each phase of care. Documentation moved continuously through the electronic record. Teams signed out to other teams. Operationally, the system functioned as designed.

Having practiced within nearly all of these environments over the years, I gradually came to understand that each part of medicine often sees only a brief portion of a patient’s larger journey. Yet for patients and families, the experience remains singular and continuous. Fear, hope, uncertainty, exhaustion, and love travel with them from room to room long after teams change, consultations end, and transfers are completed. And yet severe illness remained stubbornly human.

The landscape of HIV/AIDS has changed dramatically since the years when entire wards seemed filled with young men dying before medicine possessed the tools to save them. The urgency that once dominated headlines, hospital systems, and public imagination has softened into something quieter, more chronic, and often less visible to the outside world. Yet the work never disappeared. The suffering did not disappear either. A smaller army simply remained behind to continue carrying it.

The architecture itself remains. Patients like this still arrive. Many are now treated by the same teams, some familiar faces weathered by decades of care and many new clinicians who inherited the work without fully witnessing the years that first shaped it. At places like McGovern Medical School at UTHealth Houston, Baylor College of Medicine, the Thomas Street Health Center and Quentin Mease Community Hospital systems within Harris Health, and Omega House under the auspices of Avenue 360 Health and Wellness, generations of physicians, nurses, social workers, pharmacists, therapists, hospice workers, case managers, and support staff quietly devoted enormous portions of their lives to people many others no longer saw.

Looking back now, I recognize it as one of the great privileges of my life: to have cared for this patient population alongside so many gifted clinicians across the Houston institutions that carried this work forward for decades. And perhaps that is what I remember most clearly now. Not merely the procedures themselves, the protocols, or even the astonishing scientific advances that transformed HIV from near-certain death into chronic survivorship for so many. What remains most vividly are the people who stayed present inside the suffering long enough to build structures of refuge around vulnerable human beings.

The buildings changed over time. Systems reorganized. Entire institutions evolved or disappeared. Yet the vocation itself persisted quietly through the people who remained.

That was the real continuity.

Gus W. Krucke is board-certified in internal medicine and emergency medicine and certified as a hospice medical director. After decades in academic medicine and physician education in Texas, he now serves as core faculty in internal medicine at Northeast Georgia Health System in Gainesville, Georgia. He is also medical director of Omega House HIV/AIDS Hospice in Houston, Texas.

Dr. Krucke writes on physician identity, moral courage, medical education, the corporatization of health care, and the preservation of professional judgment in modern medicine. His essays explore the tension between metrics and meaning, the human consequences of diffuse accountability, and the enduring importance of bedside presence, integrity, and fortitude in patient care.

His scholarly work includes publications in MedEdPublish, Proceedings of Baylor University Medical Center, Texas Heart Institute Journal, World Journal of AIDS, Consultant, The Breast Journal, The American Journal of Emergency Medicine, and Critical Care Medicine. His writing and research have addressed scholarly productivity in residency education, complex infectious disease cases, HIV-related dermatologic disease, diagnostic challenges, migraine treatment, critical care monitoring, and the central role of the individual patient in medical education. More information is available through Krucke’s Medicine, Doximity, LinkedIn, and X.

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