Ashley Youngdale
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Latest articles
Conditions and diseases
As someone who spent years advocating for my medically complex son, I'm often asked how to do it. What advocacy looks like. How to push back. The truth is, advocacy itself isn't that complicated. At its core, it's standing up…
As someone who spent years advocating for my medically complex son, I’m often asked how to do it. What advocacy looks like. How to push back. The truth is, advocacy itself isn’t that complicated. At its core, it’s standing up for what you know is right, and refusing to accept an unacceptable status quo. I believe the hard part is taking up space. Challenging people and systems that aren’t used …
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How patient advocacy in the hospital can prevent a stroke
Conditions and diseases
We didn't know that school districts have the power to ignore medical decisions made by doctors for medically complex children. We found out when we switched districts, assuming our son's complex care would follow him the way it always had.…
We didn’t know that school districts have the power to ignore medical decisions made by doctors for medically complex children. We found out when we switched districts, assuming our son’s complex care would follow him the way it always had. It hadn’t been an issue before. His home care nurses went to school with him, and his needs were consistently supported. Our new district was one of the strongest and …
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School nursing for medically complex kids is not guaranteed
Conditions and diseases
When my medically complex son Declan came home from the hospital, he needed round-the-clock care, 24 hours a day, 365 days a year. A full-time worker puts in about 1,960 hours a year, assuming 40 hours a week minus vacation…
When my medically complex son Declan came home from the hospital, he needed round-the-clock care, 24 hours a day, 365 days a year. A full-time worker puts in about 1,960 hours a year, assuming 40 hours a week minus vacation and holidays. Each year has 8,760 hours. That means caring for Declan required an equivalent of 4.47 full-time employees every year.
In Minnesota, where we live, for even the highest-acuity cases, …
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Pediatric home health care oversight: Why accountability is failing
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