A couple’s journey with a rare neurodegenerative disorder
It was in 2012 that I started to realize that my wife Jennifer’s memory lapses were a significant sign to be taken seriously. That insight set us on a four-year journey, during which we engaged four neurologists in our quest for an answer. At last, Dr. Brent Fogel at the David Geffen School of Medicine at UCLA diagnosed Jennifer with adult polyglucosan body disease (APBD), an ultra-rare, neurodegenerative disorder characterized …
A couple’s journey with a rare neurodegenerative disorder
