Skip to content
  • About
  • Contact
  • Contribute
  • Book
  • Careers
  • Podcast
  • Recommended
  • Speaking
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking

Navigating complex medical issues: one family’s story of advocacy and hope [PODCAST]

The Podcast by KevinMD
Podcast
February 18, 2023
Share
Tweet
Share
YouTube video

Subscribe to The Podcast by KevinMD. Catch up on old episodes!

In this episode, we have a special guest, Laura Fernando, a patient advocate, who shares her heart-wrenching story of her daughter Lily’s medical journey with COVID-19 and other health conditions. Joining her and Lily is Linda Bluestein, an integrative medicine physician.

Lily was a healthy 12-year-old when she contracted COVID-19 in June 2020. Despite recovering from the initial symptoms, her daughter never fully regained her health. She later contracted a tick-borne illness, and her health declined rapidly. Despite working hard in physical and occupational therapy, her daughter’s health worsened when she contracted COVID-19 a second time in January 2022.

Laura shares the struggles of finding a physician who understood her daughter’s unique and complex medical needs and how one physician’s actions led to a traumatic experience for her daughter and family. But, they eventually found hope and healing with an autonomic specialist team of a neurologist and a gastroenterologist who believed in her daughter and took the time to listen to their narrative and check her previous medical appointments.

Through this episode, the guests discuss the importance of finding the right physician, advocating for yourself and your loved ones in the health care system, and the impact of trauma on the patient’s and their family’s mental and emotional well-being.

Tune in to hear an inspiring story of hope and healing and how one family’s perseverance led to a brighter future for their daughter.

Laura and Lily Fernando are patient advocates. Linda Bluestein is an integrative medicine physician.

They share their stories and discuss the KevinMD article, “My daughter and COVID: a tale of 3 doctors.”

The Podcast by KevinMD is brought to you by the Nuance Dragon Ambient eXperience.

With a growing physician shortage, increasing burnout, and declining patient satisfaction, a dramatic change is needed to make health care more efficient and effective and bring back the joy of practicing medicine. AI-driven ambient clinical intelligence promises to help by revolutionizing patient and provider experiences with clinical documentation that writes itself.

The Nuance Dragon Ambient eXperience, or DAX for short, is a voice-enabled, ambient clinical intelligence solution that automatically captures patient encounters securely and accurately at the point of care. Physicians who use DAX have reported a 50 percent decrease in documentation time and a 70 percent reduction in feelings of burnout, and 83 percent of patients say their physician is more personable and conversational.

Rediscover the joy of medicine with clinical documentation that writes itself, all within the EHR.

ADVERTISEMENT

VISIT SPONSOR → https://nuance.com/daxinaction

SUBSCRIBE TO THE PODCAST → https://kevinmd.com/podcast

RATE AND REVIEW → https://kevinmd.com/rate

FOLLOW ON INSTAGRAM → https://www.instagram.com/kevinphomd

FOLLOW ON TIKTOK → https://www.tiktok.com/@kevinphomd

GET CME FOR THIS EPISODE → https://earnc.me/CJVGLF

Powered by CMEfy.

Prev

Why patients choose who they trust: Understanding the psychology of health care relationships

February 18, 2023 Kevin 0
…
Next

The hidden illness: Understanding and overcoming depersonalization-derealization disorder

February 19, 2023 Kevin 0
…

Tagged as: Pediatrics, Rheumatology

Post navigation

< Previous Post
Why patients choose who they trust: Understanding the psychology of health care relationships
Next Post >
The hidden illness: Understanding and overcoming depersonalization-derealization disorder

ADVERTISEMENT

More by The Podcast by KevinMD

  • Deep transcranial magnetic stimulation for depression [PODCAST]

    The Podcast by KevinMD
  • Eric Topol explores the science of super-agers and healthy aging [PODCAST]

    The Podcast by KevinMD
  • Why your most heroic act might be in a department meeting [PODCAST]

    The Podcast by KevinMD

Related Posts

  • Digital advances in the medical aid in dying movement

    Jennifer Lynn
  • A medical student as storyteller and story-listener

    Yoo Jung Kim, MD
  • You’re lucky to have a medical student in the family

    Nathaniel Fleming
  • 5 ways to maintain family bonds in medical school

    Micaela Stevenson
  • A medical student’s story of racism and bias

    Akosua Y. Oppong
  • A medical student’s summer of 2020: Family matters

    Rohan Sehgal

More in Podcast

  • Deep transcranial magnetic stimulation for depression [PODCAST]

    The Podcast by KevinMD
  • Eric Topol explores the science of super-agers and healthy aging [PODCAST]

    The Podcast by KevinMD
  • Why your most heroic act might be in a department meeting [PODCAST]

    The Podcast by KevinMD
  • How Project ECHO is fighting physician isolation and transforming medical education [PODCAST]

    The Podcast by KevinMD
  • Beyond burnout: Understanding the triangle of exhaustion [PODCAST]

    The Podcast by KevinMD
  • Why ADHD in women requires a new approach [PODCAST]

    The Podcast by KevinMD
  • Most Popular

  • Past Week

    • Who gets to be well in America: Immigrant health is on the line

      Joshua Vasquez, MD | Policy
    • Why specialist pain clinics and addiction treatment services require strong primary care

      Olumuyiwa Bamgbade, MD | Conditions
    • Harassment and overreach are driving physicians to quit

      Olumuyiwa Bamgbade, MD | Physician
    • Why peer support can save lives in high-pressure medical careers

      Maire Daugharty, MD | Conditions
    • When a medical office sublease turns into a legal nightmare

      Ralph Messo, DO | Physician
    • Addressing menstrual health inequities in adolescents

      Callia Georgoulis | Conditions
  • Past 6 Months

    • Forced voicemail and diagnosis codes are endangering patient access to medications

      Arthur Lazarus, MD, MBA | Meds
    • How President Biden’s cognitive health shapes political and legal trust

      Muhamad Aly Rifai, MD | Conditions
    • Why are medical students turning away from primary care? [PODCAST]

      The Podcast by KevinMD | Podcast
    • The One Big Beautiful Bill and the fragile heart of rural health care

      Holland Haynie, MD | Policy
    • Who gets to be well in America: Immigrant health is on the line

      Joshua Vasquez, MD | Policy
    • Why “do no harm” might be harming modern medicine

      Sabooh S. Mubbashar, MD | Physician
  • Recent Posts

    • The shocking risk every smart student faces when applying to medical school

      Curtis G. Graham, MD | Physician
    • Clinical ghosts and why they haunt our exam rooms

      Kara Wada, MD | Conditions
    • High blood pressure’s hidden impact on kidney health in older adults

      Edmond Kubi Appiah, MPH | Conditions
    • Deep transcranial magnetic stimulation for depression [PODCAST]

      The Podcast by KevinMD | Podcast
    • How declining MMR vaccination rates put future generations at risk

      Ambika Sharma, Onyi Oligbo, and Katrina Green, MD | Conditions
    • The physician who turned burnout into a mission for change

      Jessie Mahoney, MD | Physician

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

Leave a Comment

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

  • Most Popular

  • Past Week

    • Who gets to be well in America: Immigrant health is on the line

      Joshua Vasquez, MD | Policy
    • Why specialist pain clinics and addiction treatment services require strong primary care

      Olumuyiwa Bamgbade, MD | Conditions
    • Harassment and overreach are driving physicians to quit

      Olumuyiwa Bamgbade, MD | Physician
    • Why peer support can save lives in high-pressure medical careers

      Maire Daugharty, MD | Conditions
    • When a medical office sublease turns into a legal nightmare

      Ralph Messo, DO | Physician
    • Addressing menstrual health inequities in adolescents

      Callia Georgoulis | Conditions
  • Past 6 Months

    • Forced voicemail and diagnosis codes are endangering patient access to medications

      Arthur Lazarus, MD, MBA | Meds
    • How President Biden’s cognitive health shapes political and legal trust

      Muhamad Aly Rifai, MD | Conditions
    • Why are medical students turning away from primary care? [PODCAST]

      The Podcast by KevinMD | Podcast
    • The One Big Beautiful Bill and the fragile heart of rural health care

      Holland Haynie, MD | Policy
    • Who gets to be well in America: Immigrant health is on the line

      Joshua Vasquez, MD | Policy
    • Why “do no harm” might be harming modern medicine

      Sabooh S. Mubbashar, MD | Physician
  • Recent Posts

    • The shocking risk every smart student faces when applying to medical school

      Curtis G. Graham, MD | Physician
    • Clinical ghosts and why they haunt our exam rooms

      Kara Wada, MD | Conditions
    • High blood pressure’s hidden impact on kidney health in older adults

      Edmond Kubi Appiah, MPH | Conditions
    • Deep transcranial magnetic stimulation for depression [PODCAST]

      The Podcast by KevinMD | Podcast
    • How declining MMR vaccination rates put future generations at risk

      Ambika Sharma, Onyi Oligbo, and Katrina Green, MD | Conditions
    • The physician who turned burnout into a mission for change

      Jessie Mahoney, MD | Physician

MedPage Today Professional

An Everyday Health Property Medpage Today
  • Terms of Use | Disclaimer
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

Leave a Comment

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...