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How HIV stigma creates barriers to effective HIV care

Alejandro Acety
Conditions
May 23, 2026
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HIV in Puerto Rico is no longer defined by lack of treatment, but by the persistence of stigma. From my perspective as a Doctor of Nursing Practice (DNP) student and future Adult-Gerontology Primary Care Nurse Practitioner (AGPCNP), stigma remains one of the most significant barriers to effective HIV care. While biomedical advances such as antiretroviral therapy (ART), pre-exposure prophylaxis (PrEP), and the Undetectable = Untransmittable (U=U) framework have transformed HIV into a manageable chronic condition, the social reality has not evolved at the same pace.

The deeply embedded nature of HIV stigma

In Puerto Rico, HIV stigma is not simply a matter of misinformation, it is structural, cultural, and deeply embedded within health care systems and community norms. Clinically, I see stigma manifest in three key domains: health care stigma, social stigma, and internalized stigma. Patients often experience subtle discrimination in clinical settings, fear judgment from their communities, and internalize negative beliefs about their diagnosis. These factors directly impact disclosure, adherence to treatment, and engagement in care.

What is most concerning is that stigma continues to influence behavior at every level of care. Many individuals avoid HIV testing due to fear, contributing to underdiagnosis. Others delay or disengage from treatment because of mistrust or prior negative health care experiences. Vulnerable populations, particularly LGBTQ+ individuals and people who use drugs, are disproportionately affected, highlighting systemic inequities rather than isolated issues.

Although progress has been made, it is not sufficient. Public health campaigns have increased awareness, and treatment outcomes have improved significantly. However, awareness alone does not dismantle stigma. Many patients still associate HIV with moral failure rather than a chronic medical condition. This disconnect demonstrates that knowledge without cultural and systemic change is ineffective.

Operationalizing stigma reduction in clinical practice

From my clinical perspective, addressing HIV stigma must be operationalized in everyday practice.

  • First, HIV screening should be normalized through routine, opt-out testing in primary care. This reduces the perception that testing is only for “high-risk” individuals.
  • Second, providers must adopt stigma-informed communication, using nonjudgmental language and motivational interviewing to build trust.
  • Third, cultural competence is essential. Understanding Puerto Rico’s sociocultural context is not optional; it directly impacts patient outcomes.
  • Additionally, integrating mental health screening is critical, as internalized stigma often coexists with anxiety and depression.

Equally important is the role of leadership and advocacy. As future DNP-prepared providers, we must push for system-level changes, including anti-stigma training, expanded access to care, and stronger community partnerships. HIV stigma is not inevitable, it is a modifiable barrier.

Ultimately, I view every clinical encounter as an opportunity to challenge stigma. HIV today should be approached like any other chronic condition such as diabetes or hypertension. With proper treatment and adherence, patients can live full, healthy lives. The responsibility lies with us as health care providers to ensure that patients are treated with dignity, respect, and without judgment. Puerto Rico has the tools to end the HIV epidemic, but eliminating stigma is the critical next step.

Alejandro Acety is a nurse practitioner student.

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