Newtown. Aurora. Oak Creek.
A year ago, I’d never even heard of these places, and now those names are permanently imbedded in my mind along with the graphic images of suffering and death.
And now, people are finally talking about it. What can we do to prevent these tragedies? How can we protect our society from senseless bloodshed? I can’t help but think, though, that all of the arguing over guns misses …
Why violence is an infectious disease
Flexibility is important these days, perhaps more than ever before. I’m reminded of this almost every time I order lunch at a fast food joint: “I’d like a double cheeseburger, please, with ketchup only.” “You mean ‘only ketchup,’ don’t you?” “Okay, a double cheeseburger with only ketchup.” “Right, got it, coming up!”
So many changes on the medical care horizon and everyone speaking a slightly different language — it’s bound to …
With health reform, flexibility is important
Just three words, a short phrase, heard from an ICU nurse that changed my friend’s well-being as she lay in an ICU bed. In fact, it is the only phrase my friend remembers from her entire hospital stay after having brain surgery to remove a tumor.
She was experiencing nausea, a sick feeling, and needing and wanting care, direction, and guidance from hospital staff. And three powerful words spoken from a …
The power of words in guiding patients toward recovery
The metaphor we use, almost universally, to describe the experience of illness is that of warfare. Someone diagnosed with cancer is said to be “battling” cancer (as if the diagnosis itself implies a fight). Family members often say that their hospitalized loved one is a “fighter” who “will never give up” or surrender. Doctors refer to the most potent antibiotics as “big guns” that are prescribed to “kill the bugs” …
Change the warfare metaphors when it comes to illness
An excerpt from In the Kingdom of the Sick: A Social History of Chronic Illness in America
For Jennifer Crystal, a thirty-three-year-old woman living with Lyme disease and two of its co-infections, life changed dramatically with one tiny tick bite in the summer of …
Digital advocacy for patients: The message must be accurate
At last it was time for my cataract surgery. Having had one eye surgery done by a different physician in another New York eye and ear specialty hospital a few months earlier, I knew what to look for and could make comparisons from a patient perspective. As I noted months ago on this blog, I really had no choice of hospitals. If I wanted my trusted doctor to …
Reviewing my cataract surgery: A casual disregard for patients
Most of us have spent some time thinking about our own deaths. We do it with a sense of dreadful curiosity, but then we push it aside with “well, we’ve all got to go sometime.”
Unlike most people, I probably know the how, the why, and maybe even the when of that event. It is profound information that turns the world upside down for us, our families, friends and caregivers.
I have …
The simple act of truth in the face of incurable cancer
Years ago I worked as a registered nurse in a busy surgical pre-admission clinic, preparing patients who’d been scheduled for surgery for the upcoming operation and hospital experience.
My workdays were packed with back-to-back, hour-long appointments. Whatever surgery the patient was facing–oral, orthopedic or anything else–every interview followed the same format. I would greet the patient, who’d often bring along a family member, and quickly escort them both into my small …
A reminder to slow down and focus on the human being
While I am currently a second year medical student, my story is one of a sister.
When I was six years old, my mother asked me a question that would forever change my childhood: “Honey, would you be alright with having a foster child join our family? It would mean a little boy coming to live with us for a while.”
My response did not take much thought; how could I refuse …
The heroic task of finding a physician who takes Medicaid
An excerpt from Pet Goats and Pap Smears.
Phoning isn’t an option. Nor is e-mail. So I write a letter to the head elder, asking that the Amish community meet with me. He agrees.
Today is the day. I accompany Steve, the hospital CEO, to an Upper Midwest town so tiny that the post office is inside the grocery store. On the third floor of a local bank, we …
The first meeting with a group of Amish patients
Tuesday morning, eight o’clock, and I have seven things to do. Check vitals, change a dressing, get a patient out of bed, send another to the operating room. Review lab results, give medications, start a blood transfusion.
I have six patients, and they have an average of five morning medications each. I make three trips to the med room for supplies, two trips to the pantry for fresh water.
Mrs. Napoli has …
Be empowered. Get informed. Be engaged. Get involved. We’re exhorted to help make our medical decisions, to speak up, to ask questions, to say how we feel. But if we’re going to get the hang of being engaged patients, we could use a way to practice our role in the privacy of our own homes.
Well, read on my fellow patient. I give …
Practice being an engaged patient: Choose your own adventure
A presentation to patients is an excellent tool to communicate your message. However, the material must be presented in an effective and powerful manner. These tips will help you deliver dazzling presentations.
1. Know your audience. Sounds obvious, but unfortunately I have seen many presentations delivered to patient groups that were full of medical jargon and complex slides. Think about how people speak …
7 tips to improve your patient presentations
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My phone rang a few weeks ago, the morning of January 26th. It was my brother saying “Mom has cancer in her spine. I’m bringing her to the hospital this afternoon. They’re operating Monday.”
I threw my stuff in my suitcase, jumped in the car and drove back home from the conference that moments before had seemed so important.
But before I left, I spoke at length with the orthopedist who’d delivered …
What can you say to the people who saved your mother’s life?
Another disturbed and disturbing night. It doesn’t happen often three years later. Now – when it does happen – I generally know why.
I am preparing to make a presentation of a sentinel event from my daughter’s final illness to a group of medical professionals and patient advocates. Last night, I was working on key points. What issues seem most important for hospital staffs to address after these years of reflection?
I …
After my daughter’s death, I work to prevent future deaths
As we embark on our cancer journey, writing can be a way to help us understand, work out issues, and help us accept and come to terms with our fate. The wide variety of blogs and discussion fora, whether religious or secular in outlook, optimistic or pessimistic in tone, medical or emotional in emphasis, all reflect the richness of our individual lives, circumstances and perspectives.
My cancer journey was no different. …
The evolution of writing during a cancer journey
When you are sorrowful look again in your heart, and you shall see that in truth you are weeping for that which has been your delight.
-Kahlil Gibran
Dear Debbie,
You cared for my mom briefly in the ICU. You might not remember me, but I remember you. My mother, a healthy 54-year-old woman came down with the flu on Christmas. Within a …
In one of the darkest days of my life, you cared for my mom
I was startled awake at 3:40 am by a loudspeaker blaring “Code Blue … Code Blue.”
As the hospital’s newly hired chaplain intern, I’d been sleeping in the overnight room. Stumbling out of bed and groggily changing out of my pajamas, I made sure to put on my hospital badge.
I made my way to the hospital’s “Z” building, where the ICU was located, and took the elevator to the fourth floor. …
I have the paradoxical privilege of being an emergency medical contact for dozens of people. Have you completed a healthcare medical directive with durable power of attorney? While reviewing a DPA with others, I strive to understand their choices in delicate life-or-death situations. This has me confronting death more often than many people.
They still talk to me
Triggered by seemingly insignificant events, fond memories of friends and relatives enter my mind …
How do physicians cope with the emotional aspects of death?
Dad didn’t feel like dying. He felt full of life and longing to live. He had more to do, more to say, more to feel, to taste, to write, to experience. He was angry and sad, disappointed and confused, scared and brave, unaccepting and, finally, accepting.
For the past three years, I talked to him daily to be as close as I could. I listened as he told me everything he …
Accepting the inevitable: The last days with my Dad
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