What can lived experience actually teach us about helping?

I live with eosinophilic esophagitis, often called EoE. It is an uncommon chronic immune condition that affects the esophagus. Living with it has involved appointments, procedures, uncertainty, and the ordinary disruption that happens when your body does not follow the plan.

That experience taught me something useful, but not what people sometimes assume. It did not make me an expert in every uncommon disease. It did not give me permission to …

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What can lived experience actually teach us about helping?