Family-centered care starts with the parent at 2 a.m.
Somewhere tonight, a parent is managing a feeding tube and watching a monitor, deciding whether a small change in their child’s breathing is the start of something serious. Families of children with special health care needs do this around the clock. They run what amounts to an intensive care unit at home, handling medications and equipment that would test a trained nurse. They do it because they want their child …
Family-centered care starts with the parent at 2 a.m.
