An excerpt from How to Live Well with Chronic Pain and Illness: A Mindful Guide. Copyright 2015 by Toni Bernhard. Excerpted with permission from Wisdom Publications.
“Remembrance of things past is not necessarily the remembrance of things as they were.”
– Marcel Proust
For the most part, I’ve adjusted to my new …
Beware of “Good Old Days Syndrome”
November of last year found me living as best I could with several health issues, the most debilitating of which stems from never having recovered from a serious viral infection in 2001. I’ve been diagnosed with chronic fatigue syndrome, a little understood and much-misunderstood illness. It keeps me virtually housebound. For the most part, I’ve made peace with feeling sick all …
You can never be prepared for a diagnosis of breast cancer
It’s hard enough to sustain a good relationship when neither partner is facing a health challenge. Illness ranks high on the list of life’s stressful events, so it’s no surprise that it can have a negative impact on a close relationship. Couples may benefit from counseling, one of the principal reasons being that the presence of a neutral party in the room can facilitate more calm and constructive communication.
What follows …
Tips for resolving conflicts when a partner is chronically ill
My family and close friends have done so much for me since I became chronically ill in 2001, and I’m deeply grateful to them. I’ve written this piece because there are a few important things I want them to know about how I feel.
Although this piece is personal in nature, I’ve been hanging out online for over a dozen years with other people who are chronically ill (which includes those …
What the chronically ill wish their loved ones knew
My illness has been as hard on my caregiver-husband as it’s been on me. I know how fortunate I am that he’s stuck around and that he never complains about the extra burdens he’s had to take on. My heart goes out to those of you who don’t have someone to care for you in this way.
This piece covers several ways …
If only our lives were more predictable and certain, we’d feel a greater sense of security and safety. Yet, much of what happens to us is beyond our ability to control. This is true whether we live in a third-world country or in the most advanced scientific and technological environment. It’s also true whether we’re struggling to make ends meet or living in the lap of luxury.
No one is immune …
The uncertainty that the chronically ill face
From years of writing about chronic pain and illness, I’ve learned that young people carry several extra burdens, especially when their disability is invisible (as is more often the case than not). This piece focuses on young people, although some of its points apply to people of any age, depending on their circumstances.
1. Young people are treated as if their health issues can’t possibly be chronic. I confess that before I …
7 ways chronic illness imposes an extra burden on the young
In a study published in the Journal of the Royal Society of Medicine, “Quality of life: impact of chronic illness on the partner,” the authors stated: “… the most striking research finding is a tendency for the partner’s quality of life to be worse than that of the patient.”
The people who are least likely to be surprised by this finding are not just caregivers but those who are in their …
6 things not to do as a caregiver
As we reflect on the year that’s passing, it’s not unusual to formulate wishes and resolutions for the new year. I’m not much for resolutions anymore, but I do have hopes and wishes for me and for my readers.
Of course, my first wish is that those of you who suffer from chronic illness — including chronic pain — have your health restored. I know that, for some, this is a …
7 wishes that I hope come true for those with health problems
I’ve been chronically ill since I contracted a viral infection in 2001. Were I to recover, I’d take these six hard-earned lessons with me into the land of the healthy.
1. Less is more. I used to be an accumulator. My life was filled with stuff: books and magazines that sat unread; CDs; jewelry; knickknacks and trinkets; clothing and all its accompaniments (shoes, belts, scarves). Since becoming sick, I’ve learned that less …
6 lessons the sick can teach the healthy
I love to-do lists. I depended on them when I was working outside the home. I’ve depended them since my bed became my office. The one difference is that, pre-illness, I had fancy notepads and appointment books in which to keep my lists. Now I scribble them on any random piece of paper I can find.
A few weeks ago, I realized I could benefit from a not-to-do list that would …
A not-to-do list for those with chronic pain or illness
I’ve had my share of unsuccessful experiences with doctors and at medical clinics, including being intimidated by them. But after twelve years of chronic illness, I’m happy to report that I’m doing better in this uncomfortable setting. Here are six strategies to help minimize the odds you’ll be intimidated and to help ensure you make the most of the short time allotted …
6 tips to prevent being intimidated at the doctor’s office
When I began to gather my thoughts for this piece, I asked my husband what he thought. It was eye-opening. Even after twelve years of illness, I forget that his life has been impacted as much as mine by my health limitations. This is partly because he’s changed his major task in life to that of caregiver and partly because we can no longer do most of the things we …
What chronic pain and illness make me miss the most
Suffering from chronic pain or illness—or, as is often the case, both—can feel like a full-time job. One reason for this is that we must constantly assess and evaluate if we’re managing our health and our relationships as skillfully as possible. This ongoing decision making makes up a major part of the workload in this full-time job—a position we certainly never applied …
Being chronically ill or in pain can feel like a full-time job
It’s easy for those with health problems to complain about what we don’t want to hear others say to us, but I thought it might be helpful to let others know what we wish they would say to us.
“You look so good, but how are you really feeling?”
It’s hard for us to respond to comments like, “You look so good” (or …
Helpful things to say to someone who’s sick
A year ago, KevinMD.com was kind enough to post my piece, 10 Tips from 10 Years Sick. Well, a year has gone by and I’m still sick. So, I’ve re-visited that post, changing several of the tips and adding to others. And, of course, there are now 11 tips, not 10! At the end of the piece, I hope you’ll share your own experiences.
1. The onset of chronic illness …
11 tips I’ve learned from 11 years sick
Last year, I was referred to two different dermatologists because I have two skin conditions and each dermatologist is an expert on one of them. (I know how fortunate I am to have access to this level of medical care.) Something amusing happened at each visit.
After examining me and deciding on a course of treatment, the first dermatologist said, “When you get home, don’t look up this condition on the …
Tips for your online health information search
Labels matter. We quickly form judgments based on them. If we hear someone called lazy, the label “lazy person” attaches in our mind even though we may not have even met the person. The same is true for labels given to various medical conditions. If the label for an illness uses language such as “fatigue,” we abstract from our experience and think we know what it’s like to suffer from …
Why we need truth in labeling of medical conditions
It’s that time of year. The media is filled with stories about people traveling to be with loved-ones. Holiday decorations and yummy recipes abound. But for many people, the holidays are a difficult time of year. This piece is for those of you who face isolation during the holidays, either because you’re unable to be with others at all due to health or financial limitations (which often go hand in …
How to ease the pain of isolation during the holidays
In the U.S., we’re getting ready to celebrate Thanksgiving. Soon, people around the world will turn their attention to the holiday season. Chronic health problems can take a toll on relationships any time of the year. Most people have to experience unrelenting pain or illness themselves before they understand how debilitating it is, physically and mentally. Loved-ones (by whom I mean family and close friends) may be in some form …
Living with chronic illness during the holiday season
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