Once upon a time, I’d imagined myself the Lone Ranger physician, self-sufficient and incapable of weakness, and when I had my spinal cord injury in 2008, I really felt alone, in the negative spiral of a victim mindset, my own worst enemy and in a dark space where my idea of myself felt entirely lost.
Then, one day, in December 2009, I heard about a center for spinal cord injury recovery …
Last month, while spring cleaning my home-based office, I faced off with a bookshelf full of past writing journals.
Get rid of them (I coaxed myself). Whatever you wrote here is history now.
My inner packrat resisted. Couldn’t I just box them up and move them to the basement to join all those other journals that, together, chronicle my three-plus decades of living in the United States?
One gray-covered notebook with pink post-it …
Oxford Dictionary defines stigma as “a mark of disgrace associated with a particular circumstance, quality, or person.” In other words, it’s a state of being in shame. One of the most influential thought leaders in shame is Brene Brown. She describes shame as “the intensely painful feeling or experience of believing that we are flawed and therefore unworthy of love and belonging. We feel like something we have experienced, done, …
The prevalence of coronary artery disease (CAD) and stroke is increased in patients with chronic inflammatory diseases such as rheumatoid arthritis (RA) or systemic lupus erythematosus (SLE). These are also known as IMID: immune-mediated inflammatory diseases. Rheumatic IMIDs, including rheumatoid and osteoarthritis, are associated with multiple cardiovascular issues with an enhanced cardiovascular risk, including premature coronary artery disease. Lupus can also increase coronary artery disease because of the elevated chronic …
Uterine fibroids are a common condition that affects up to 7 in 10 women. While some fibroid patients live with the condition without serious issues, many suffer from disruptive symptoms, such as heavy menstrual bleeding, pelvic pain, and infertility, which make it difficult for them to go about their daily lives.
Treatment options are broad and include medical management, hysterectomy, myomectomy, uterine artery embolization (UAE), endometrial ablation, and magnetic resonance-guided focused …
The Texas Department of State Health Services reported the first case of H5N1 avian influenza in a human who contracted the virus not from a bird but from an infected dairy cow. The next pandemic could be around the corner, and the food we choose to purchase (or not to purchase) is playing a role in its development.
As we saw with the COVID-19 pandemic, viruses can undergo mutations rapidly, …
A bunch of symptoms, which may persist many months or even years after an acute COVID infection has cleared, have been described in the medical literature with increasing frequency since the onset of the pandemic. This constellation of findings has been dubbed “long COVID.” Long COVID’s effects on the brain, in particular, have certainly been in the news, and it’s also been popping up in the medical literature. So, what’s …
“You sure know a lot about your condition.”
Many patients with long-term illnesses have heard this. When it comes from a medical professional, it’s never a compliment. It’s a statement that is usually, at best, laced with disapproval.
The thing is, patients like me, who have long-term complex conditions, are encouraged to know a lot. As someone with CVID and other issues, I’ve attended seminars and patient Q&As with immunologists. There’s a …
An excerpt from Sugar Free.
“What do you want to do?” Ginny said.
“Chinese jump rope.”
“Tilly, you always want to play Chinese jump rope,” Renée said.
“So?” Tilly said.
Renée didn’t have an answer to that.
They let Tilly go first. Renée and Ginny faced each other, put the large elastic loop that was the jump rope around their ankles, and backed up until it was taut.
“What happened to you?” Tilly said to Ginny. …
Health care in the United States is in a state of turmoil. Many Americans are struggling to pay for health care. Even if they have health insurance, many have to pay high out-of-pocket copayments and, in the end, feel that what they do pay for is not worth the cost.
As a result of the COVID pandemic, many health care workers faced mounting mental health crises from burnout, physical and mental …
Treatment plans are crucial to a behavioral health practice as they can help improve client outcomes. Setting mental health treatment plan goals and objectives is a crucial aspect of the process, and providers and their clients need to work together in identifying long-term therapy goals. They should also communicate openly about the objectives used to achieve these goals.
The concept of SMART goals can be valuable here. SMART stands for Specific, …
Modern medicine often fails to effectively manage complex chronic conditions. Physicians are often constrained by tightly packed clinic schedules, leaving only brief windows of time for each patient encounter. While this setup may allow for basic diagnosis and treatment planning, there is scarcely enough time for comprehensive patient education, let alone providing the necessary support, guidance, and empowerment that complex patients need.
Fortunately, the post-pandemic surge in telemedicine has brought fresh …
Patients, as the primary stakeholders in their own well-being, are increasingly showing a profound interest in holistic approaches to cancer care that extend beyond traditional medical treatments. Growing evidence supports this interest, showing that some whole-person and integrative approaches can improve quality of life and survival outcomes. Oncologists’ attitudes are shifting in the same direction, though with less urgency than our patients’.
We recently conducted parallel surveys of oncologists …
I’m sure you can picture it. You’re sitting in an exam room wearing a paper gown, waiting for your health care provider to walk in the room. There are a few colorful posters on the wall about flu season, health screenings, and a discount prescription program available to patients. But all you can think about is the conversation you’re about to have. Will they bring it up? Will you ask? …
As physicians, we are trained to dissect symptoms and to hunt for a diagnosis. But my own journey with Sjogren’s, like my patients’, wasn’t a textbook case. It was a puzzle with pieces scattered over decades, ignored or dismissed at each turn, including by myself.
There’s the college student, fearing the agony a simple meal might bring, never dreaming of asking why. The med student, convinced of an impending heart attack, …
An excerpt from Winter’s End: Dementia and Dying Well.
Are there really fates worse than death? Like most people, Dan Winter was uncertain. That is until he visited his father at a memory care unit in Lawrence, Kansas.
Dan’s father had been diagnosed with Alzheimer’s disease at the age of 70. Winton “Wint” Allen Winter Sr. survived for 13 years, spending his final days in …
Springtime. Blooming trees. Green grass. Cool winds. Sunny skies. COVID.
That is where my mind wanders every year since 2020, when the season turns. I flash back to the drive between the hospital and my home. Every evening after fighting a losing battle at an academic institution hell-bent on ignoring and downplaying the horror that was about to breach our borders. I was a fighter then — maybe more in that …
Although it’s hard for me to comprehend and even harder to admit, I’m “of age” to be on Medicare. Recently, I visited my primary care physician (PCP) for a Medicare Annual Wellness Visit, a one-hour appointment that requires the inclusion of a cognitive screening—whether or not the patient or clinician suspects a decline in memory, judgment, or other brain functions.
The myriad brief screening tools, consisting of various questions and tasks, …
One doctor I’ve worked with had gotten caught up in the idea of being a doctor. She realized, during her training with us, that she had stopped looking her patients in the eye. In fact, she had stopped making eye contact with her patients when she was in residency. She had to tell these two parents that their baby had died in the womb, and she did not know how …
I understand it well. You persuade yourself that everything is fine. And then you persuade others that your marriage is perfect.
You’re facing a terminal illness, but you’re the exception because it surely can’t happen to you.
You’re in poor health with unexplained aches and pains, but you avoid visiting your doctors, instead praying to Jesus to alleviate your pain. To heal you of whatever it might be.
Denial. I was a workhorse. …
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