Patients and caregivers writing on KevinMD about the experience of illness and the health care system from the other side of the exam table: navigating care, the doctor-patient relationship, being heard, and what patients want physicians to understand. Physicians who have become patients write here too. For the record of what pain patients and physicians have said to each other about opioids and chronic pain since 2007, with patient authors cited at the same weight as physicians, see Opioids: what physicians and pain patients say, in their own words. For what patients, families, and physicians have said about dying, hospice, and the decisions families face at the end of life, see End of life: what physicians say, in their own words. For what women and the physicians who treat them have said about pregnancy, menopause, and the conditions dismissed for years, see Women's health: what physicians say, in their own words. For what physicians have said about consent, honesty, and who decides, see Medical ethics: what physicians say, in their own words.
I am an enigma. I always have been. Some doctors think of me as a challenge while others make it clear they dislike dealing with my case. I’ve had gastroparesis since I was born. Idiopathic gastroparesis. I’ve had debilitating migraines since I was 3. Idiopathic migraines. I’ve had several-month bouts of low grade fevers for years. Idiopathic fevers. Over the past 6 months I’ve started going into anaphylaxis. Idiopathic anaphylaxis.
Every …
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A note to doctors from a patient labelled as idiopathic
I was working as a PA in an internal medicine office seeing patients. One afternoon, I was in the clinic hallway when I saw an elderly looking wife in her 60s actually pushing her husband into the next exam room. He had his heels dug into the floor, but she was winning, due to his obvious shortness of breath and audible wheezing.
I walked in behind the medical assistant who …
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Without wives, men’s health suffers
I am utterly sick of the myth that living a healthy lifestyle will prevent illness.
- Granted, eating a balanced diet of nutritious food is better than grazing on ice cream and bon-bons all day.
- Getting regular exercise has distinct health benefits; moving as little as possible has a detrimental impact on people’s health.
- Is there anyone who isn’t aware of the health ramifications of smoking?
- Excessive alcohol consumption is another no-no.
The story goes …
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Will a healthy lifestyle prevent illness?
There are multiple costs to non-compliance, including financial, both personal and societal, and physical-emotional. When patients fail to comply with treatment protocols, fail to get prescribed tests, or fail to stop destructive behaviors, there is a societal cost.
Today, I want to address the physical and emotional costs of non-compliance. I just read a brilliant article by Roxanne Sukol, MD. Dr. Sukol’s article discussed the fact that diabetes starts …
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The physical and emotional costs of non-compliance
I had a “wow” experience recently when I accompanied my wife to interview a new doctor for her. As some reader may know she is being seen by specialists at MD Anderson Medical Center in Houston for Stage IV lung cancer. She has not had a local oncologist for the past 6 years, but she does now. And we both love this guy!
You need to understand that I have …
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Think about mindfulness when seeing a new patient
A guest column by the American Society of Anesthesiologists, exclusive to KevinMD.com.
As patient safety advocates responsible for monitoring vital signs, managing pain and safeguarding a patient’s overall health through the surgical process, anesthesiologists are committed to informing patients about the anesthesia experience. The American Society of Anesthesiologists (ASA) and the Michigan Society of Anesthesiologists (MSA) have launched a new public education campaign to help patients better prepare and …
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Demystifying anesthesia to put patients at ease
Another crazy three days at work and I begin to think about the similarities of Seal Team 6 and nurses. Methodical. Precise.
Nursing is not a glorious profession. Even though my father thinks I sit at the bedside of the sick and dying and hold their hands all day, the fact of the matter is, I simply do not have the time. We run around attempting to tread water with …
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Nursing is methodical and precise, like military special ops
One of my professors teaches psychology, but he was hired as a “generalist” meaning that he has no area of specialization when he’s teaching. He ends up with all the 101 classes. And I love that. Trained as a biopsychologist, he’s now known as a clinical psychologist and is one of the best in the area.
As I walked into the class the first day and he was going over standard …
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3 easy ways for doctors to respect patients
I’ve spent a lot of space on this site writing about participating in your healthcare so you get the right care.
And, I talked about developing a “relationship” with your doctor so you can effectively communicate. Relationship does not mean drinking buddy, golf partner, or someone to do shopping with. What is meant by “relationship” is developing a trust that allows you to effectively and unashamedly discuss your medical concerns and question treatment options …
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Why developing trust with your doctor is important
Are there moments when caregiving makes you want to scream?
Any number of things related to caring for your aging parent can cause you to feel like you’re at the end of the proverbial rope including:
- your relationship with your parent
- elements of your work life/family life which are separate from, but inextricably linked to, your caregiving
- the myriad experiences inside the elder care maze
But here’s where things get a bit dicey: While …
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Caregiver burnout is just a fancy term for exhaustion
As I look back over my 10 year career in obstetrics and gynecology, I am sometimes struck at how many things have been discovered in this time period.
When I started the origin of pre-eclampsia was unknown, and now we know that it likely originates in an overabundance of a molecule called Soluble FMS-Like Tyrosine Kinase, a competitive inhibitor to natural angiogenesis in the placenta. Ten years ago the origins of …
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Explaining an abnormal pap smear is no longer simple
It’s hard to find anyone who would argue against keeping things “plain and simple.” Or would they?
Is it possible that the imperative to create simple health information has over-promised – hasn’t lived up to its billing? What if the complexity of health, science and technology information in the first half of the 21st century requires more than simple simplicity?
Think back to swine flu.
Dateline November 2009: We were awash in …
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Why don’t simple messages convince people to take action?
A recurring theme on e_Patients.net is the need for empowered, engaged patients to understand what they read about science. It’s true when researching treatments for one’s condition, it’s true when considering government policy proposals, it’s true when reading advice based on statistics. If you take any journal article at face value, you may get severely misled; you need to think critically.
Sometimes there’s corruption (e.g. the fraudulent vaccine/autism data reported …
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Every new scientific finding to be nothing more than a first draft
A fascinating, beautifully-written article on a death penalty granted to a most likely innocent man, with interesting details on fire dynamics and the history of the judicial system pertaining to the death penalty.
Reading about the system in place that should prevent an innocent man from being wrongfully executed reminds me of the supposed system that prevents medical errors from occurring – both are imperfect, with innocent victims falling through …
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What the death penalty has to do with medical errors
Women have a long history of risking health for beauty. But several developments over the past few months suggest they might be starting to choose safer options.
1. Temporary tattoos. The latest trend on the runway and in the beauty isle is temporary tattoos, according to the advertising firm JWT. Chanel now offers limited-edition skin art, and Beyoncé has signed up to help sell Temptu’s product. Permanent tattoos not only cost …
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Women are now choosing safer options for beauty
Dear Members of the Illinois State Board of Education,
As a parent of a child attending Illinois Public Schools, a taxpayer, and a board-certified pediatric allergist and immunologist, I was distressed to hear of the irresponsible comments made by Illinois State Board of Education (ISBE) Members Catherine Campbell and Lawrence Gregorash regarding the requirement for Illinois schools to have a food allergy policy in place by 2011.
When the parents …
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The insensitivity towards kids with food allergies
My friend Nancy went for physical therapy for her back pain the other day, and was really surprised by what she saw there: the place was full of kids.
“Yeah, it’s like this now,” said the therapist when Nancy asked about it. “It’s the sports.”
It’s not that kids are getting clumsier or having more accidents. The injuries that are sending kids to physical therapy are overuse injuries. Kids these days are …
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The achievement culture problem in our country
Privacy, is it important to you? Do you believe that your medical and personal information should be kept in strict privacy? Do you expect your doctor to keep your information private? What is the cost of privacy?
The computer I am typing this article on is protected by Norton’s Security Suite and by Comcast’s Constant Guard. My friends, family, and patients invest a small fortune every year to keep their …
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Your medical information is not private, and it’s sold routinely
Back in 2009, Dr. Amy Ship gave a moving acceptance speech when she received the annual Compassionate Caregiver Award from the Schwartz Center.
The most memorable tag line from the speech was, “There is no billing code for compassion.” This resonated with so many of us — patients and providers — in part because it set forth the proposition that compassionate care should be an inherent aspect …
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There is no billing code for compassion
