Once upon a time, I’d imagined myself the Lone Ranger physician, self-sufficient and incapable of weakness, and when I had my spinal cord injury in 2008, I really felt alone, in the negative spiral of a victim mindset, my own worst enemy and in a dark space where my idea of myself felt entirely lost.
Then, one day, in December 2009, I heard about a center for spinal cord injury recovery …
If you are a fan of pharma, you might want to skip this article. Some pharma enthusiasts will call it a rant. By pharma, I mean avaricious pharmaceutical (a pleonasm) companies collectively. On the other hand, those of you who treat acute migraines will learn of a highly effective, innovative, inexpensive, and relatively safe way to help many of your migraineurs. Those of you who believe that pharma is interested …
An excerpt from Winter’s End: Dementia and Dying Well.
Are there really fates worse than death? Like most people, Dan Winter was uncertain. That is until he visited his father at a memory care unit in Lawrence, Kansas.
Dan’s father had been diagnosed with Alzheimer’s disease at the age of 70. Winton “Wint” Allen Winter Sr. survived for 13 years, spending his final days in …
Although it’s hard for me to comprehend and even harder to admit, I’m “of age” to be on Medicare. Recently, I visited my primary care physician (PCP) for a Medicare Annual Wellness Visit, a one-hour appointment that requires the inclusion of a cognitive screening—whether or not the patient or clinician suspects a decline in memory, judgment, or other brain functions.
The myriad brief screening tools, consisting of various questions and tasks, …
“Some memories are unforgettable, remaining ever vivid and heartwarming!”
– Joseph B. Wirthlin
I love my role as a hospice volunteer mostly because I enjoy meeting the patients and hearing their life stories. I heard a tale from the Vietnam vet who won the Congressional Medal of Honor, which he humbly said was for “just driving a jeep.” (He later admitted that he saved a general by “just driving a jeep” through …
Teresa has Down syndrome and was 49 when the capacity assessment took place in Ontario.
I saw her as happy, healthy, and active. She enjoyed living nearby with my 91-year-old father, who often said, “We’re a team. We help each other.”
But that’s not how the social worker saw her.
Teresa didn’t understand what the assessment was for, and according to the records, she did not agree to be …
You can’t treat something until you know it’s there. Currently, there’s no cure for Alzheimer’s disease (AD) but earlier diagnosis may lead to better understanding of how the disease inexorably progresses, which in turn may lead to prevention of AD and ultimately eradication of this horrific scourge. The latest breakthroughs in earlier diagnosis and even perhaps pre-diagnosis have involved lumbar punctures, brain MRIs, eye exams, and blood tests.
A 2024 study, …
An excerpt from Releasing the Butterfly: A Love Affair in Four Acts.
Imagine there must be thousands, if not millions, of family members and caregivers who wonder what it must be like to be the one who has Alzheimer’s. Genie and I have always shared our thoughts and experiences with each other. Often, I would imagine telling her about something that had happened to me and could hear her voice …
I recently worked a 28-hour shift in the hospital. I am on a rotation where I work these long shifts every four days, and my last 3 or 4 of these shifts have been the kind that really tries a person’s soul. I got called all night to see new patients and take care of existing ones, and mind you, this is after a 6:45 a.m. to 5 p.m. day …
It’s been said that the challenges neurodiverse people face are the ones that neurotypical people view as easy, and vice versa. It speaks to the hard-wired diversity of cognitive styles and perspectives among different individuals.
Neurotypical people, who generally fit within the societal norms of cognitive functioning, might find certain tasks or social situations easier due to their alignment with mainstream expectations. On the other hand, neurodivergent individuals, who have variations …
Dr. Shaun Murphy (played by Freddie Highmore) stars in ABC’s The Good Doctor, a television drama that centers around an autistic surgeon whose job at the hospital was frequently threatened and would be lost if it were not for the practical and emotional support from the hospital president.
I don’t know how many “Doctor Murphys” practice medicine in real life – autism spectrum disorder (ASD) prevails in about 1% to 2% …
The acceleration of new Parkinson’s disease cases outpaces other age-related conditions, and as a result, the patient population is growing quickly. In 2022 there were about 90,000 new diagnoses in the U.S., versus the previous prevailing estimate of 60,000. While some of the increase can doubtless be attributed to improved diagnostics and improved access to health care, those factors affect the statistics of other diseases and cannot explain why …
I recently watched an Indian movie called The Three of Us, which revolves around a woman named Shelujah. She is in her late 30s, very charming, traditional, and intelligent. She works as a marriage counselor, leading a happy married life with one son studying abroad. Shelujah diligently maintains a diary, documenting even her minor daily chores. Often, she becomes engrossed in her thoughts, even failing to respond when called by …
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You’ve undoubtedly heard the buzzwords: ketogenic diet, intermittent fasting. I don’t have much of an opinion about what that all does for your waistline, but I venture to say that ketones may benefit your brain.
Some doctors have recommended, with rock-solid evidence, diets that increase brain ketone levels as part of the regimen to treat drug-resistant epilepsy in children. Others claim that high ketone levels are like a magic bullet and …
The eyes can’t see what the mind doesn’t yet know – an axiom to remind us not just of the value of lifelong learning, but that the answers are often in the exam room with us.
Though bright and committed clinical people we may be, we’re dragged by the tendrils of a lumbering behemoth. American health care is designed to produce revenue and built to punish highly visible mistakes over more …
Dementia is a general term for diseases affecting memory, thinking, or decision-making, impacting daily activities.
Someone in the world develops dementia, on average, every 3 seconds. That’s 10 million new cases of dementia each year worldwide. In 2020, over 55 million individuals worldwide were living with this disease. This figure is expected to double every 20 years, reaching 78 million in 2030 and 139 million in 2050. As you can see, …
No one knows exactly why we need to sleep, but we certainly do. Although the brain can’t thrive on sleep alone, good sleep is an essential ingredient necessary to keep your brain functioning at its best. New research is shedding light on how a good night’s sleep may protect your brain from neurodegenerative diseases.
In 2022, Canadian scientists evaluated the medical literature regarding sleep apnea and its link to the risk …
I had chosen a seat towards the back of the conference room because I noticed the legendary Jimmy Pollard sitting there. I didn’t want to miss the chance to sit next to this Huntington’s disease (HD) advocate and all-around amazing person.
I was at the Help4HD conference in Detroit, Michigan. It was my first time attending an event like this on my own. In the years past, I wouldn’t have had …
An excerpt from A Petit Mal.
In ER, we are seen by French doctor, which is unusual and relevant because doctor asks boy if he likes any French soccer teams. Boy is wearing Italian soccer jersey.
Yes, Paris Saint-Germain, boy says.
Ah, doctor says, you like PSG. And you also like Juventus, ah.
Boy …
Despite a growing body of research and clinical guidelines, a significant evidence-practice gap persists in the management of concussions. This gap represents a challenge that health care professionals and researchers are working diligently to bridge. Here are the basics of how the gap plays out in concussion care and how telemedicine is providing a promising solution to the problem.
What is the evidence-practice gap?
The evidence-practice gap refers to the disparity between …
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