Skip to content
  • About
  • Contact
  • Contribute
  • Book
  • Careers
  • Podcast
  • Recommended
  • Speaking
KevinMD
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking
KevinMD
  • All
  • Physician
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • Video
    • All
    • Physician
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • Video
    • About
    • Contact
    • Contribute
    • Book
    • Careers
    • Podcast
    • Recommended
    • Speaking
  • About KevinMD | Kevin Pho, MD
  • Be heard on social media’s leading physician voice
  • Contact Kevin
  • Discounted enhanced author page
  • DMCA Policy
  • Establishing, Managing, and Protecting Your Online Reputation: A Social Media Guide for Physicians and Medical Practices
  • Group vs. individual disability insurance for doctors: pros and cons
  • KevinMD influencer opportunities
  • Opinion and commentary by KevinMD
  • Physician burnout speakers to keynote your conference
  • Physician Coaching by KevinMD
  • Physician keynote speaker: Kevin Pho, MD
  • Physician Speaking by KevinMD: a boutique speakers bureau
  • Primary care physician in Nashua, NH | Doctor accepting new patients
  • Privacy Policy
  • Recommended services by KevinMD
  • Terms of Use Agreement
  • Thank you for subscribing to KevinMD
  • Thank you for upgrading to the KevinMD enhanced author page
  • The biggest mistake doctors make when purchasing disability insurance
  • The doctor’s guide to disability insurance: short-term vs. long-term
  • The KevinMD ToolKit
  • Upgrade to the KevinMD enhanced author page
  • Why own-occupation disability insurance is a must for doctors

Shielding patients from difficult diagnoses undermines their autonomy

Brian J. Carlisle, MD
Physician
March 2, 2016
Share
Tweet
Share

The affection families express for their dying loved ones can take many forms.  Recently, I saw a spry 91-year-old Spanish-speaking gentleman with lung cancer which had consumed the better part of his right lung.  He had a large family with many doting daughters.  In his neighborhood, he was popular and well respected.   He, according his family, had “many girlfriends.”  His lung cancer was no doubt a result of a 3 to 4 pack a day smoking habit consumed on his porch while socializing with his neighbors.

I saw the patient — I’ll call him Mr. Gomez — shortly after he was admitted to an inpatient hospice unit for increasing pain and shortness of breath.  His complaint to me, however,  was “I am going crazy.”

He had no idea why he was growing weaker.  Chest pain and shortness of breath now limited his daily activity.  20 pounds melted off his frame in the last two months.  My interview with him was completed through a daughter who translated (a big medical/legal no-no, but it was my only option for a few hours until a translator arrived).

His daughter motioned that she wanted to speak to me outside the room.

“We have not told him about his diagnosis” she confided, her voice shaking.  “We don’t think he would handle the news well.”

Amazingly, his family stayed at his side during each doctor’s appointment and hospital visit to help translate.  This allowed family to censor medical details communicated to their father during these encounters.

Mr. Gomez was wise to a conspiracy.  He often yelled at his loved ones: “Tell me the truth!”  This 91-year-old man was worried his severe pain and weakness were a mere figment of his imagination.  His symptoms were a sure sign he was losing his mind while his family reassured him of his physical health.

His daughters worried knowledge of his prognosis would shorten his lifespan. A tearful confession: They did not want to be responsible for decreasing his number of days.

Within each culture exists a wide spectrum of beliefs regarding illness and end of life care.  Certain Eastern cultures consider informing a patient about a cancer diagnosis taboo.  In an individualistic western society, some can hardly imagine deferring the details of diagnosis and treatment options to family consensus.

We learn in medical school that patient autonomy trumps all.  In the end, the decision falls to the individual patient to decide how much or how little they wish to hear about their diagnosis.

Despite the concerns of his family, Mr. Gomez opted for full disclosure: “I want to know everything.”  I sat next to him and started the difficult conversation through a medical translator.

“Doc, do I have cancer?”

He simply needed validation of what he already suspected.  His family felt relieved after learning knowledge of a prognosis does not shorten a patient’s life span.  The 1,000-pound gorilla disappeared from the room.

ADVERTISEMENT

Mr. Gomez was visibly shaken by the news.  After the emotion of our conversation faded, he also expressed relief.  He could now move forward in planning how to spend his final weeks.

Brian J. Carlisle is a palliative care physician and can be reached on Twitter @brianjcarlisle.

Image credit: Shutterstock.com

Prev

Let's fix performance measurement for physicians

March 2, 2016 Kevin 7
…
Next

It's time for doctors to stop feeling guilty for taking time off

March 2, 2016 Kevin 2
…

Tagged as: Palliative Care

< Previous Post
Let's fix performance measurement for physicians
Next Post >
It's time for doctors to stop feeling guilty for taking time off

ADVERTISEMENT

More by Brian J. Carlisle, MD

  • Trust is the foundation of quality patient care at the end of life

    Brian J. Carlisle, MD

Related Posts

  • She sees difficult patients, but is a difficult patient herself

    Kristin Puhl, MD
  • Are patients using social media to attack physicians?

    David R. Stukus, MD
  • 10 tips for delivering difficult pediatric diagnoses

    Laura Spiegel
  • Patients don’t need quick diagnoses. They need accurate ones.

    Denise Reich
  • I vow not to call my patients “difficult.” Here’s why.

    Weisheng Mao, MD
  • “Difficult” patients: Is it them or is it us?

    Laila Knio

More in Physician

  • Moral injury in medicine: When silence becomes a survival strategy

    Timothy Lesaca, MD
  • Medical misinformation: Navigating vaccine hesitancy with empathy

    Christine J. Ko, MD
  • The American Board of Internal Medicine maintenance of certification lawsuit: What physicians need to know

    Brian Hudes, MD
  • Physician weight loss strategy: Why willpower isn’t enough in 2026

    Archana Reddy Shrestha, MD
  • Demedicalize dying: Why end-of-life care needs a spiritual reset

    Kevin Haselhorst, MD
  • Physician due process: Surviving the court of public opinion

    Muhamad Aly Rifai, MD
  • Most Popular

  • Past Week

    • Why Medicare must cover atrial fibrillation screening to prevent strokes

      Radhesh K. Gupta | Conditions
    • Why medical school DEI mission statements matter for future physicians

      Aditi Mahajan, MEd, Laura Malmut, MD, MEd, Jared Stowers, MD, and Khaleel Atkinson | Education
    • The American Board of Internal Medicine maintenance of certification lawsuit: What physicians need to know

      Brian Hudes, MD | Physician
    • Teaching joy transforms the future of medical practice [PODCAST]

      The Podcast by KevinMD | Podcast
    • Immigrant caregiver burden: the hidden cost of the five-year Medicaid wait

      Ranjita Suresh | Policy
    • Celiac disease psychiatric symptoms: When anxiety is autoimmune

      Carrie Friedman, NP | Conditions
  • Past 6 Months

    • Will AI replace primary care physicians?

      P. Dileep Kumar, MD, MBA | Tech
    • What is the minority tax in medicine?

      Tharini Nagarkar and Maranda C. Ward, EdD, MPH | Education
    • Why the U.S. health care system is failing patients and physicians

      John C. Hagan III, MD | Policy
    • Alex Pretti: a physician’s open letter defending his legacy

      Mousson Berrouet, DO | Physician
    • Health care as a human right vs. commodity: Resolving the paradox

      Timothy Lesaca, MD | Physician
    • Why voicemail in outpatient care is failing patients and staff

      Dan Ouellet | Tech
  • Recent Posts

    • Immigrant caregiver burden: the hidden cost of the five-year Medicaid wait

      Ranjita Suresh | Policy
    • Connected health care workflows: From chore to core patient care

      Grace E. Terrell, MD, MMM | Tech
    • Business literacy empowers physicians to lead sustainable health systems [PODCAST]

      The Podcast by KevinMD | Podcast
    • The necessity of getting lost to find yourself

      Michele Luckenbaugh | Conditions
    • Physician resilience: Why systems matter more than heroism

      Harvey Castro, MD, MBA | Tech
    • Medical bankruptcy: the hidden cost of U.S. health care

      Richard A. Lawhern, PhD | Conditions

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

View 7 Comments >

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

ADVERTISEMENT

  • Most Popular

  • Past Week

    • Why Medicare must cover atrial fibrillation screening to prevent strokes

      Radhesh K. Gupta | Conditions
    • Why medical school DEI mission statements matter for future physicians

      Aditi Mahajan, MEd, Laura Malmut, MD, MEd, Jared Stowers, MD, and Khaleel Atkinson | Education
    • The American Board of Internal Medicine maintenance of certification lawsuit: What physicians need to know

      Brian Hudes, MD | Physician
    • Teaching joy transforms the future of medical practice [PODCAST]

      The Podcast by KevinMD | Podcast
    • Immigrant caregiver burden: the hidden cost of the five-year Medicaid wait

      Ranjita Suresh | Policy
    • Celiac disease psychiatric symptoms: When anxiety is autoimmune

      Carrie Friedman, NP | Conditions
  • Past 6 Months

    • Will AI replace primary care physicians?

      P. Dileep Kumar, MD, MBA | Tech
    • What is the minority tax in medicine?

      Tharini Nagarkar and Maranda C. Ward, EdD, MPH | Education
    • Why the U.S. health care system is failing patients and physicians

      John C. Hagan III, MD | Policy
    • Alex Pretti: a physician’s open letter defending his legacy

      Mousson Berrouet, DO | Physician
    • Health care as a human right vs. commodity: Resolving the paradox

      Timothy Lesaca, MD | Physician
    • Why voicemail in outpatient care is failing patients and staff

      Dan Ouellet | Tech
  • Recent Posts

    • Immigrant caregiver burden: the hidden cost of the five-year Medicaid wait

      Ranjita Suresh | Policy
    • Connected health care workflows: From chore to core patient care

      Grace E. Terrell, MD, MMM | Tech
    • Business literacy empowers physicians to lead sustainable health systems [PODCAST]

      The Podcast by KevinMD | Podcast
    • The necessity of getting lost to find yourself

      Michele Luckenbaugh | Conditions
    • Physician resilience: Why systems matter more than heroism

      Harvey Castro, MD, MBA | Tech
    • Medical bankruptcy: the hidden cost of U.S. health care

      Richard A. Lawhern, PhD | Conditions

MedPage Today Professional

An Everyday Health Property Medpage Today

Copyright © 2026 KevinMD.com | Powered by Astra WordPress Theme

  • Terms of Use | Disclaimer
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

Shielding patients from difficult diagnoses undermines their autonomy
7 comments

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...