Lessons from a caregiver for a rare neurodegenerative disorder [PODCAST]
In this episode, we have Bruce Rosky, who is a patient advocate. Bruce shares his personal journey as a caregiver for his wife Jennifer, who was diagnosed with adult polyglucosan body disease (APBD), a rare neurodegenerative disorder. He talks about…
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In this episode, we have Bruce Rosky, who is a patient advocate. Bruce shares his personal journey as a caregiver for his wife Jennifer, who was diagnosed with adult polyglucosan body disease (APBD), a rare neurodegenerative disorder. He talks about the challenges he faced as a caregiver, how he coped emotionally …
Lessons from a caregiver for a rare neurodegenerative disorder [PODCAST]









































