Skip to content
  • About
  • Contact
  • Contribute
  • What Physicians Say
  • My Book
  • Careers
  • Podcast
  • Speaking
KevinMD.com — Social media's leading physician voice
  • All
  • Physician
  • Burnout
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
  • All
  • Physician
  • Burnout
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
    • All
    • Physician
    • Burnout
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • About
    • Contact
    • Contribute
    • What Physicians Say
    • My Book
    • Careers
    • Podcast
    • Speaking
KevinMD.com — Social media's leading physician voice
  • All
  • Physician
  • Burnout
  • Practice
  • Policy
  • Finance
  • Conditions
  • .edu
  • Patient
  • Meds
  • Tech
  • Social
    • All
    • Physician
    • Burnout
    • Practice
    • Policy
    • Finance
    • Conditions
    • .edu
    • Patient
    • Meds
    • Tech
    • Social
    • About
    • Contact
    • Contribute
    • What Physicians Say
    • My Book
    • Careers
    • Podcast
    • Speaking
  • About Kevin Pho, MD, Founder of KevinMD
  • Aging and dementia: what physicians say, in their own words
  • Artificial intelligence: what physicians say, in their own words
  • Be heard on social media’s leading physician voice
  • Cancer: what physicians say, in their own words
  • Children’s health: what pediatricians say, in their own words
  • Contact Kevin
  • COVID-19: what physicians wrote as it happened
  • Custom enhanced author page pricing
  • Diabetes and obesity: what physicians say, in their own words
  • Direct primary care: what physicians say, in their own words
  • DMCA Policy
  • End of life: what physicians say, in their own words
  • Establishing, Managing, and Protecting Your Online Reputation: A Social Media Guide for Physicians and Medical Practices
  • GLP-1 drugs: what physicians say about Ozempic and its successors, in their own words
  • Heart disease: what physicians say, in their own words
  • Immigration and medicine: what physicians say about immigrant doctors and immigrant patients, in their own words
  • KevinMD influencer opportunities
  • Medical errors: what physicians say, in their own words
  • Medical ethics: what physicians say, in their own words
  • Medical malpractice: what physicians say, in their own words
  • Medical school: what students and physicians say, in their own words
  • Mental health: what psychiatrists and physicians say, in their own words
  • Nursing: what nurses and physicians say, in their own words
  • Opinion and commentary by KevinMD
  • Opioids: what physicians and pain patients say, in their own words
  • Physician burnout speakers to keynote your conference
  • Physician burnout: what physicians say, in their own words
  • Physician Coaching by KevinMD
  • Physician keynote speaker: Kevin Pho, MD
  • Physician personal finance: what physicians say about their own money, in their own words
  • Physician Speaking by KevinMD: a boutique speakers bureau
  • Physician suicide: what physicians say, in their own words
  • Physicians and administrators: what physicians say about who runs medicine, in their own words
  • Primary care physician in Nashua, NH | Kevin Pho, MD
  • Primary care: what physicians say, in their own words
  • Prior authorization: what physicians say, in their own words
  • Privacy Policy
  • Private equity and corporate medicine: what physicians say, in their own words
  • Race and medicine: what physicians say, in their own words
  • Recommended services by KevinMD
  • Residency: what residents and attendings say, in their own words
  • Scope of practice: what physicians, nurse practitioners, and PAs say, in their own words
  • Subscribe to the KevinMD enhanced author page
  • Subscribe to the newsletter
  • Surgeons and surgery: what surgeons say, in their own words
  • Take-home messages: what physicians say when asked to leave one
  • Terms of Use Agreement
  • Thank you for subscribing to KevinMD
  • Thank you for upgrading to the KevinMD enhanced author page
  • The electronic health record: what physicians say, in their own words
  • Vaccines: what physicians say, in their own words
  • Violence against health care workers: what physicians and nurses say, in their own words
  • What physicians say: the KevinMD records
  • Women in medicine: what women physicians say, in their own words
  • Women’s health: what physicians say, in their own words

The long years between the last words and the final breath

Rev. Kathy Speas
Patient
November 16, 2012
Share
Tweet
Share

Visiting the dementia unit of a nursing home is never easy.

First off, you have to find your patient amid the assemblage of people–mostly women–seated in wheelchairs, recliners, wingbacks, sofas and assorted walkers, or wandering around.

Then, you must make yourself known to the person you’ve found. Here’s where the harder questions arise: How can I introduce myself and convey my role–a hospice chaplain–to someone who has outlasted language? Is my state of mind so calm and engaged that my very being will exude peace and generate trust? Am I totally present, or is my mind bouncing back and forth between tomorrow and yesterday? And just what does it mean, as a hospice chaplain, to provide spiritual support to someone at the end of life?

The end of life can be big drama, that’s for sure. In nearly a decade of doing this work, I’ve witnessed momentous final decisions; conversations carried on with mysterious, unseen figures; visions of the afterlife; and eleventh-hour forgiveness. We release each other–one back to the seen, known world and one into the unseen, unknown–and are ourselves released.

For many elderly patients, though, the experience is far from dramatic. More often, there can be long months, even years, between the last words and the final breath.

Meaning and identity dissolve. The roles men and women have played in life–mother, father, teacher, neighbor, The Pretty One, Mr. Fix-It, Always Dependable–all wash away.

The connections forged over a lifetime–with parents and siblings, with lifelong friends and neighbors, with fellow church members–become a part of the past: Everyone else has moved or died or gone round the bend. Even when people can still talk, they barely have the strength to pick up a phone.

When the memory fades, so do long-cherished concepts of God. It’s my observation that rational concepts last longer than our knees and teeth, but not as long as our lungs and bowels.

Human life has its own inexorable arc. When we’re born, we emerge from God knows where into the world–one with our mothers, unaware of ourselves as separate. The arc of our life begins as we develop a sense of ourselves as finite beings within time and space.

At the height of the arc, we do our best to wield our abilities and aspirations–to realize our potential and resist our despair.

Then, somewhere along the way, a great unraveling begins. Eventually, becoming untethered from time and place, we return to the unknown from which we emerged.

As someone who’s still at the height of the arc, I often wonder what I can learn of this great returning before it happens to me. I ask myself what might be revealed by elders–people who stand closer to the brink of the final unraveling. Can they perhaps look over the edge and report some of what they see?

Marlys was such a one. Living in a dismal warehouse of a nursing facility, she was well into her nineties. Her dementia had progressed, and she was now on hospice because she was no longer eating much, had lost her ability to fight off infections and had generally withdrawn from the world. “Debility and decline,” they call it, or “adult failure to thrive.”

ADVERTISEMENT

Her chart listed her as an atheist–yet, despite that, I have her to thank for perhaps the most indispensable guidance I’ve ever received as a hospice chaplain.

Our initial meeting was not propitious.

Locating her slumped-over gray head among all the others in the crowd of wheelchairs parked in front of the giant, blaring TV, I greeted her cheerfully: “Hi, Marlys.”

She gave me a groggy look and went right back to sleep.

I sat next to her. She let me hold her hand, so I stayed with her for a while; you don’t have to be religious to appreciate a little friendly respite from Jerry Springer and Judge Judy.

She didn’t have any family, really, so there was no one to tell her story. She’d never had children, and her siblings and husband were all long dead. She lived half a country away from her native Arkansas; her only remaining family was the daughter of her sister’s daughter. The grandniece lived a few hours away, with young kids, a full-time job and all the frantic trappings of a twenty-first-century life, so couldn’t often get to the nursing home.

I didn’t learn anything about Marlys or her life until the grandniece and I were planning her small, simple burial service. Turns out that Marlys was pretty interesting: She’d been one of the first woman doctors in the rural Ozarks.

The grandniece didn’t know much about her except that she was one of the only women in medical school at the University of Arkansas in the 1950s, and that her husband was considered unusual because he was fully supportive of her career.

I felt so sad that the stories of this progressive, groundbreaking woman had faded with each generation. I could only imagine what was lost–a whole chapter in the history of public health. Think of the passionate arguments for and against women in medicine, stories about patients saved or lost, stories of those who’d shared and shaped her journey. Is there anyone in her family who can carry Marlys’ vision, courage and determination into the next generation? Is her story lost?

As I continued to visit Marlys over the months, she began to recognize me. She’d try to talk, but you could see the words just dissolve between her brain and her mouth.

At the same time, it got harder and harder to find her awake. I wondered if my interventions were doing good, harm or nothing at all.

One day I asked her, “How can I, a chaplain, support you, an atheist?”

She looked right at me. Then she spoke, so clearly:

“Believe in me.”

I felt she was asking me to keep hold of the woman she had been–to see not a disabled old woman but a doctor, a wife, a great-aunt, a friend, an early pioneer of women’s rights. She was asking me to see her with my heart, not just with my eyes.

In the seven years since, this charge has kept me in my seat when I otherwise would feel like running away from people whose language is nonsense, whose needs seem incomprehensible and whose confusion overwhelms my problem-solving skills.

Entering a nursing home, I no longer see just a crowd of old people in wheelchairs; I’m acutely aware of the teachers, singers, travelers, neighbors, poets, jokesters, builders and who knows whom else I may be accompanying on this journey.

Marlys is dead now, but I still hear her voice sometimes. She speaks to me when I sit with someone who can no longer tell me his story, somebody who has no visitors because she can’t converse anymore.

Marlys reminds me not to forget those whose memories have left them.

“Believe in me.”

Kathy Speas is a hospital chaplain.  This piece was originally published in Pulse — voices from the heart of medicine, and is reprinted with permission. 

Prev

The obstacles patients face in making the right decisions

November 16, 2012 Kevin 5
…
Next

MKSAP: 38-year-old man is evaluated during a routine health examination

November 17, 2012 Kevin 0
…

Tagged as: Geriatrics, Palliative Care

< Previous Post
The obstacles patients face in making the right decisions
Next Post >
MKSAP: 38-year-old man is evaluated during a routine health examination

 

ADVERTISEMENT

More in Patient

  • Patient communication ends when the patient understands

    Diane Bruno
  • Book publishing scams took $7,500 from me by wire transfer

    Richard A. Lawhern, PhD
  • Cosmetic dentistry abroad is not about the lowest price

    Anna Estrin
  • There’s no one to drive your patient home

    Denise Reich
  • Dying is a selfish business

    Nancie Wiseman Attwater
  • A story of a good death

    Carol Ewig
  • Most Popular

  • Past Week

    • Retirement isn’t the end of medicine, it’s a second act [PODCAST]

      The Podcast by KevinMD | Podcast
    • The conflict of interest that discloses as nothing

      Martha Rosenberg | Medications
    • 4 fibromyalgia myths the current evidence doesn’t support

      Kayvan Haddadan, MD | Conditions and Diseases
    • Why exhaustion can make you see things that aren’t there [PODCAST]

      The Podcast by KevinMD | Podcast
    • AI governance in health care has to reach the exam room

      Amanda Heidemann, MD | Health Technology
    • The Pennsylvania measles outbreak and the cost of forgetting

      Christine King, CRNA | Conditions and Diseases
  • Past 6 Months

    • Why CDC opioid guidelines get the overdose data wrong

      Richard A. Lawhern, PhD | Conditions and Diseases
    • Retirement isn’t the end of medicine, it’s a second act [PODCAST]

      The Podcast by KevinMD | Podcast
    • Sensory processing in autism and the brain’s volume control

      Josette Pelatan, PhD | Conditions and Diseases
    • What maternity care deserts cost a town

      Manisha Kaliaperumal | Health Policy
    • Why medicine needs a national physician license now

      Vaishali Popat, MD, MPH | Physician
    • A cold cost $945. The cost of primary care is broken.

      Susan Newman, MD | Physician
  • Recent Posts

    • Why exhaustion can make you see things that aren’t there [PODCAST]

      The Podcast by KevinMD | Podcast
    • 3 reforms to counter wellness influencers in practice

      Farid Sabet-Sharghi, MD | Physician
    • Shift work and circadian rhythms shape the 24/7 workplace

      Deepak Gupta, MD | Conditions and Diseases
    • Paid for twice

      Physicians paid for G2211 twice. Most never bill it.

      Michael Duben, MD | Physician Finance
    • The next child

      Medicaid managed care and the case for mutual stewardship

      Steven Merahn, MD | Health Policy
    • Choosing a limb lengthening surgeon requires accountability

      Hrayr Basmajian, MD | Physician

Subscribe to KevinMD and never miss a story!

Get free updates delivered free to your inbox.


Find jobs at
Careers by KevinMD.com

Search thousands of physician, PA, NP, and CRNA jobs now.

Learn more

View 2 Comments >

Founded in 2004 by Kevin Pho, MD, KevinMD.com is the web’s leading platform where physicians, advanced practitioners, nurses, medical students, and patients share their insight and tell their stories.

Social

  • Like on Facebook
  • Follow on Twitter
  • Connect on Linkedin
  • Subscribe on Youtube
  • Instagram

ADVERTISEMENT

  • Most Popular

  • Past Week

    • Retirement isn’t the end of medicine, it’s a second act [PODCAST]

      The Podcast by KevinMD | Podcast
    • The conflict of interest that discloses as nothing

      Martha Rosenberg | Medications
    • 4 fibromyalgia myths the current evidence doesn’t support

      Kayvan Haddadan, MD | Conditions and Diseases
    • Why exhaustion can make you see things that aren’t there [PODCAST]

      The Podcast by KevinMD | Podcast
    • AI governance in health care has to reach the exam room

      Amanda Heidemann, MD | Health Technology
    • The Pennsylvania measles outbreak and the cost of forgetting

      Christine King, CRNA | Conditions and Diseases
  • Past 6 Months

    • Why CDC opioid guidelines get the overdose data wrong

      Richard A. Lawhern, PhD | Conditions and Diseases
    • Retirement isn’t the end of medicine, it’s a second act [PODCAST]

      The Podcast by KevinMD | Podcast
    • Sensory processing in autism and the brain’s volume control

      Josette Pelatan, PhD | Conditions and Diseases
    • What maternity care deserts cost a town

      Manisha Kaliaperumal | Health Policy
    • Why medicine needs a national physician license now

      Vaishali Popat, MD, MPH | Physician
    • A cold cost $945. The cost of primary care is broken.

      Susan Newman, MD | Physician
  • Recent Posts

    • Why exhaustion can make you see things that aren’t there [PODCAST]

      The Podcast by KevinMD | Podcast
    • 3 reforms to counter wellness influencers in practice

      Farid Sabet-Sharghi, MD | Physician
    • Shift work and circadian rhythms shape the 24/7 workplace

      Deepak Gupta, MD | Conditions and Diseases
    • Paid for twice

      Physicians paid for G2211 twice. Most never bill it.

      Michael Duben, MD | Physician Finance
    • The next child

      Medicaid managed care and the case for mutual stewardship

      Steven Merahn, MD | Health Policy
    • Choosing a limb lengthening surgeon requires accountability

      Hrayr Basmajian, MD | Physician

Copyright © 2026 KevinMD.com | Powered by Astra WordPress Theme

  • Terms of Use Agreement
  • Privacy Policy
  • DMCA Policy
All Content © KevinMD, LLC
Site by Outthink Group

The long years between the last words and the final breath
2 comments

Comments are moderated before they are published. Please read the comment policy.

Loading Comments...